Rare Disease Team

A Canadian research team focusing on rare disease policy.

[Rare Disease Team @RareDxResearch]

B.C. teen with rare disease wins fight to receive costly drug from province | CBC News https://t.co/0fMjoIxOgN

[Rare Disease Team @RareDxResearch]

NIH-supported research survey to examine impact of COVID-19 on rare diseases community https://t.co/keI4Ak8xSv

[Rare Disease Team @RareDxResearch]

B.C. funding decision on pricey drug leaves teen with rare disease facing 'scary' future | CBC News https://t.co/XsnPfdfg9l

[Rare Disease Team @RareDxResearch]

Post Doctoral Fellow needed for Data Science in Neurological Diseases. This is an opportunity to work with epi/biostats and machine learning methods on a Canadian study of MS progression. Click here for more details on how to apply: https://t.co/131lifKT5b

[Rare Disease Team @RareDxResearch]

B.C. patients and families demand access to $700,000 a year drug for rare disease https://t.co/4sBtsFP2Ry

[Rare Disease Team @RareDxResearch]

Canadian breakthrough that became the world's most expensive drug, then vanished, gets second chance | CBC News https://t.co/ZgHN1w1Q3T

[Rare Disease Team @RareDxResearch]

Toronto family turns to fundraising 'boot camp' to help back research into son's rare genetic disorder | CBC News https://t.co/G9UnBCCJB4

[Rare Disease Team @RareDxResearch]

Alberta runner Dave Proctor looking to shatter trans-Canada speed record in 2020 to raise funds for Rare Diseases https://t.co/W2cTdZTQNT

[Rare Disease Team @RareDxResearch]

His daughter Annabel has a rare disorder. He’s developing a novel gene therapy. https://t.co/SaKLeQBJgz

[Rare Disease Team @RareDxResearch]

Opinion: Drug-price reforms need not affect research on rare diseases – or the Canadians who have them /via @globeandmail https://t.co/DuDWCNjCn9

[Rare Disease Team @RareDxResearch]

Life-Changing Drugs Almost Nobody Can Afford https://t.co/4Xdq2FCaik

[Rare Disease Team @RareDxResearch]

Ottawa promises to save billions with tweaks to patent drug system | CBC News https://t.co/Lmyk0g1PQx

[Rare Disease Team @RareDxResearch]

New hope for patients with rare diseases with the launching of a new fund in Singapore https://t.co/sW98uRZHX8

[Rare Disease Team @RareDxResearch]

B.C. Minister of Health: approvals for expensive treatment must be based on evidence, affordability https://t.co/l6O0adeddX

[Rare Disease Team @RareDxResearch]

'This is our only hope': B.C. boy fights for province to fund potentially life-changing drug | CBC News https://t.co/3qA0bSaMcl

[Rare Disease Team @RareDxResearch]

Patient with rare disease pleads for life-saving drug funding | CBC News https://t.co/idpDsYBtft

[Rare Disease Team @RareDxResearch]

Province working on approving life-saving medication for Vancouver Island 3-year-old https://t.co/kQvp8XdUrc

[Rare Disease Team @RareDxResearch]

Ontario expands coverage for Spinraza https://t.co/OvGcyROR2b

[CORE UBC @CORE_UBC]

Another CORE Post Doc Opportunity! Postdoctoral Fellowship in Data Science for Neurological Diseases, find out more here: https://t.co/0aYzXHrUl4

[CORE UBC @CORE_UBC]

CORE is hiring a Post Doc for the Economic Evaluation of Precision Medicine for Genetic Diseases - view the posting here: https://t.co/KgpDIFrhV4