Rare Patient Voice

We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.

[Rare Patient Voice @rarepatientvoic]

RPV's Wes Michael is off to the Intellus Worldwide Institute & Awards Celebration this week, with colleagues from Konovo. Learn more: https://t.co/ZneJWcawpR

[Rare Patient Voice @rarepatientvoic]

Listen in as RPV’s Founder & President Wes Michael discusses helping patients have a voice in research on The Teaching Journeys podcast with Dave Roberts.
https://t.co/2XBWxgCv6l

[Rare Patient Voice @rarepatientvoic]

Join us 10.1 11am ET to discuss one of pharma MR’s most persistent assumptions: HCP insights are a reliable proxy for patient experience. We fielded parallel surveys across Konovo's HCP panel & RPV's patient community. Register for The Perception Gap: https://t.co/cIkQN7S9HJ

[Rare Patient Voice @rarepatientvoic]

@rarepatientvoic - a Konovo company will be exhibiting at the Society for Clinical Research Sites (SCRS) for Clinical Research Sites' Global Site Solutions Summit in Orlando, FL this October 16-18. 
https://t.co/33vOhHfCyM

[Rare Patient Voice @rarepatientvoic]

Read the new RPV white paper on patient preferences on decentralized trials, available now. https://t.co/IGGGE96fqf

[Rare Patient Voice @rarepatientvoic]

@rarepatientvoic - a Konovo Company will be in the RPV booth, #603, at the Quirk's Media NY Event, 7.29-30. Visit to learn about recent happenings at RPV & hear how we can connect you with patients & family caregivers for you next research study. https://t.co/iRf09VXKd5

[Rare Patient Voice @rarepatientvoic]

A new white paper from @rarepatientvoic presenting the results and key highlights from a recent survey of patients on clinical research participation preferences is available for download now by filling out this form: https://t.co/IGGGE96fqf

[Rare Patient Voice @rarepatientvoic]

In a recent @pharmaphorum #webinar, Konovo & @rarepatientvoic experts addressed critical topics impacting today’s #healthcaremarketresearch, in light of AI advances. Read more:
https://t.co/AthEy7QIMb

[Rare Patient Voice @rarepatientvoic]

ICYMI: RPV's Wes Michael discussed lessons he learned launching and growing Rare Patient Voice on the Passion, Purpose and Possibilities podcast recently. Listen to the interview in its entirety:
https://t.co/VV4kKnjV3P

[Rare Patient Voice @rarepatientvoic]

On June 9, 11:00am ET, join RPV’s Pam Cusick & DMD Pathways founder Jamie Tierney for Patients at the Center: Understanding Preferences in the Age of Decentralized Trials. Register now: https://t.co/WDSeMRCR7Y

[Rare Patient Voice @rarepatientvoic]

Adam Mendler recently interviewed Wes Michael for his Leadership Today blog. Live now, the interview includes qualities of an effective leader, importance of clear & effective communication, & best methods for building trust with clients & patients.https://t.co/EEAUUSu9kX

[Rare Patient Voice @rarepatientvoic]

@rarepatientvoic’s Pam Cusick & Tiffany White are headed to Boston for #WorldOrphanUSA in a few weeks! Read more:
https://t.co/sktwMzbwkO

[Rare Patient Voice @rarepatientvoic]

@rarepatientvoic President Wes Michael will be joining our Konovo colleagues at #ISPOR2026 in Philadelphia, May 18-20!

[Rare Patient Voice @rarepatientvoic]

Listen in to Dr. Tara Munoz and Wes Michael, President of @rarepatientvoic , a Konovo company, on how people decide whether or not to participate in clinical research.
https://t.co/OPGKjahasc

[Rare Patient Voice @rarepatientvoic]

Another reason to stop by the Konovo booth at the BHBIA conference - sweet treats celebrating Konovo's first anniversary & @rarepatientvoic becoming part of the family!
#BHBIA2026

[Rare Patient Voice @rarepatientvoic]

Listen in as RPV's Wes Michael visits Real World Wednesdays live on April 22, or check out the archived recording after at https://t.co/an9o11kHhx.

[Rare Patient Voice @rarepatientvoic]

@rarepatientvoic has once again been certified by the BBB! Read more:
https://t.co/DchwIKzVGX

[Rare Patient Voice @rarepatientvoic]

Listen to this great interview on the Intellicast Podcast w/Konovo CEO Tal Rosenberg & ROV President Wes Michael on Konovo’s recent acquisition of RPV, what it means for healthcare research, & the future.
#MRX #PatientRecruitment #HealthcareMarketing
https://t.co/qwJAS3FVNi

[Rare Patient Voice @rarepatientvoic]

Check out this terrific new episode of the Intellicast podcast with Brian Peterson, featuring an interview with Tal Rosenberg & Wes Michael on the recent acquisition & benefits of Konovo + @rarepatientvoic
https://t.co/qwJAS3FVNi

[RARE Revolution Magazine® @RareRevolutionM]

Mental health is a core, often unaddressed, part of the rare disease experience for patients and caregivers alike. New research from @RarePatientVoic shows over 82% experience frequent emotional distress, highlighting a critical gap between need and support.
https://t.co/e3ykgGVJYC
#RareDisease #MentalHealthMatters #PatientVoice #CaregiverSupport