RareShare

RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.

[RareShare @RareShareOrg]

Listen to RareShare's latest podcast with Geraldine Renton, book author and Irish mother of a Hunter Syndrome child:
https://t.co/51K207f38Q

[RareShare @RareShareOrg]

February 28th is Rare Disease Day! This global movement raises awareness for rare diseases and highlights the urgent need for research, innovation, and advocacy.

Join us in the lead-up to #RareDiseaseDay by spreading awareness and supporting the rare disease community. 💡💜

[RareShare @RareShareOrg]

Volunteers at #Rare Genomics Institute (RG) are advocates for patients with rare diseases. Our services #empower patients to push forward towards a diagnosis and provide hope for a cure.

Hear from our volunteers:
https://t.co/c5uLaljOsK

[RareShare @RareShareOrg]

💜 We’re counting down to Rare Disease Day on February 28, 2025! Over 300 million people worldwide live with a rare disease—yet many still lack a diagnosis and treatment.

At @RareGenomics, we’re committed to empowering families with genomic insights and expert connections.

[RareShare @RareShareOrg]

RG is a non-profit community – run entirely by volunteers – to diagnose and treat individuals with rare conditions. But we can’t continue our work without your assistance. Take it from one of our amazing volunteers.

Support our cause: https://t.co/wJewC0CCwP

[RareShare @RareShareOrg]

It’s Day 7, and we’re sharing another reason why volunteering with Rare Genomics (RG) is so impactful. Here’s a quote from Elizabeth L, a RG patient advocate, sharing why she loves volunteering.

#RareGenomics #VolunteerSpotlight #12DaysOfHolidays #RareDiseases #TogetherWeCan

[RareShare @RareShareOrg]

🎁 On the 6th day of this holiday countdown, we’re honoring the selfless work of RG volunteer, Mark B. His words truly embody our non-profit’s spirit.

#RareGenomics #VolunteerSpotlight #12DaysOfHolidays #RareDiseases #TogetherWeCan #GeneticMutations #ShowYourRare

[RareShare @RareShareOrg]

🌟 Day 5 is here, and we’re thrilled to highlight more of the incredible reasons our volunteers love working with Rare Genomics!

Our volunteers' passion and dedication are truly the greatest gifts to the rare disease community. Thank you for all that you do! 🎁

#raredisease

[RareShare @RareShareOrg]

🎄 It’s Day 4 of our holiday countdown, and we’re so excited to share another inspiring volunteer story! Today’s quote comes from Jahnavi G, a volunteer on the Rare Genomics Innovation Team.

Volunteers like Jahnavi remind us what the season of giving is truly about. 💙

[RareShare @RareShareOrg]

✨ On Day 3 of Christmas, we continue to celebrate our amazing volunteers! Here’s a quote from Natasha P, a Rare Genomics Analyst, that perfectly captures the spirit of giving.

Your efforts make a world of difference—thank you for being part of our mission! 💪

[RareShare @RareShareOrg]

🎁 Day 2 of our 12 Days of Holiday Countdown is here! Today, we’re spotlighting a volunteer who shares why being part of Rare Genomics means so much to them.

Thank you to all our volunteers who bring hope and positivity to the rare disease community! 🌟

#RareDiseases

[RareShare @RareShareOrg]

On the 1st day of this holiday season, we’re kicking off our celebration with a Rare Genomics patient! Today, we’re sharing a heartfelt quote from Elizabeth. Stay tuned as we continue to highlight many incredible patients and volunteers! 💙

#RareDiseases #PatientSpotlight

[RareShare @RareShareOrg]

This holiday, we celebrate the incredible volunteers at Rare Genomics who give their time, energy, and hearts to support rare disease patients and families.

Why I volunteer for RG? https://t.co/tsP7O6cV6v via @YouTube

[RareShare @RareShareOrg]

Our countdown to the New Years is here! Celebrate 12 days with us where we spotlight our Rare Genomics volunteers and spread the joy of why we love volunteering!

#GeneticMutations #ShowYourRare #Nonprofit #RareGenomics #RareDiseaseResearch

[RareShare @RareShareOrg]

New Blog Alert! Clinical trials offer hope for rare disease patients—but where do you start? Our latest blog breaks down the process of finding the right clinical trial, understanding existing roadblocks, and helps you to make informed decisions.

https://t.co/mc2lUnl4m5

[RareShare @RareShareOrg]

If Giving Tuesday slipped your mind, don’t worry—you can still make a meaningful impact! Your donation to Rare Genomics supports rare disease patients by funding:
--Rare disease genetic testing
--Research for rare conditions
--Support for families

https://t.co/okUQI5iW1h

[RareShare @RareShareOrg]

Missed Giving Tuesday? It’s Not Too Late to Make a Difference!

You can still support families impacted by rare diseases today! Every contribution counts toward changing lives. Donate now and make an impact: https://t.co/okUQI5iW1h

#RareDisease #GivingTuesday2024

[RareShare @RareShareOrg]

Rare Genomics is dedicated to empowering families and advancing discoveries for rare disease patients. Your generosity this #GivingTuesday can help fund diagnostics, research, and advocacy for those who need it most!

👉 Donate today and make an impact: https://t.co/okUQI5iW1h

[RareShare @RareShareOrg]

We're thrilled to introduce our latest blog post on the groundbreaking role of AI in healthcare! 🌐🧬 Discover how AI is transforming genomic sequencing, making diagnostics faster and more precise, and opening new doors for treating rare diseases.

https://t.co/X2fNc4mfP0

[RareShare @RareShareOrg]

Exciting news for rare disease patients! Rare Genomics Institute has partnered with Bodimetrics to offer free wearable health devices to qualified patients.

To enroll with RareWear, click here: https://t.co/uGC1KTwkbU

#wearables #raredisease #diseasemonitoring #nonprofit

[RareShare @RareShareOrg]

Urgent action needed! The Creating Hope Reauthorization Act is key to supporting children with rare diseases. We can’t let the progress stop here! Contact your Senator TODAY! @RareDiseases

Before September 30th, Take Action!: https://t.co/VX07S7sows