Becky M. Abbott, MPH

Wisconsin mom of 3 sons - advocating for #craniofacialcongenitalanomalies coverage #RareDisease #ELSACoalition #EnsuringLastingSmiles Act #Autism

[PeDRAResearch @PeDRAResearch]

Please join us next Wednesday 10/12 at 4PM PT / 7PM ET for a webinar on #ectodermaldysplasias presented by @NFED_ORG 📺

Learn more and register ⬇
https://t.co/7jIwvsHZuh

#PeDRA #pedraresearch #dermatology #pedsderm #dermresearch #dermnerds #dermtwitter

[Becky M. Abbott, MPH @RareWashWoman]

Thankyou @SenatorBaldwin for your continued support, listening to Aidan’s story & taking action. The #EnsuringLastingSmiles Act is critical legislation that will be life-changing for individuals born with #congenitalanomalies. Let’s get ELSA passed in the 117th Congress.

[Sen. Tammy Baldwin @SenatorBaldwin]

Aidan has been my friend, inspiration, and partner to pass the #EnsuringLastingSmiles Act. He is an everyday hero and is what my bipartisan legislation is all about. https://t.co/kjLS71Gd0s

[Becky M. Abbott, MPH @RareWashWoman]

What do I want for #mothersday? The best gift would be insurance coverage for our children born with #congentialanomalies who need #medicallynecessary treatments. Skip flowers & gifts it’s time for the #USSenate to pass the #EnsuringLastingSmiles Act. #momonamission #rarediseases

[Becky M. Abbott, MPH @RareWashWoman]

@genomenon @Beringea Congrats!

[RARESUPERMAN1 @AAbbott77940320]

Roses are red,
Violets are blue,
It’s time for ELSA to be passed,
So those with congenital anomalies can receive medically necessary treatments too!
#EnsuringLastingSmiles #PatientAdvocacy #RareDiseases #EctodermalDysplasias

[Kevin Koser @Kosers4ELSA]

Cheers to progress! It’s my hope and dream that “politics” (read: infighting, bickering, etc.) please stay as far away as possible from this STRONG bipartisan bill—304 House cosponsors—and successfully passes the House, then the Senate, and then to POTUS! #EnsuringLastingSmiles

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

Attention ELSA advocates—save the date for Virtual Advocacy Day on the Hill, March 30, 2022! Your voice is critical to the passage of this important legislation. If we do not get ELSA passed this year, we will have to start all over again with a new Congress in 2023.

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

VOLUNTEERS NEEDED FOR DERMATOLOGY RESEARCH SURVEY
Dermatologist Dr. Amy Paller is researching transition readiness in adolescents with genetic chronic skin disorders, such as ectodermal dysplasia. Learn more about - https://t.co/nHjTMRvamN

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

Show Your Sign: November 13th
We appreciate you advocating for the Ensuring Lasting Smiles Act. We are asking you to post the sign below on your social media platforms on November 13th to raise awareness for ELSA and use #EnsuringLastingSmiles. Let's get this hashtag trending!

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

@SenatorHick, we are asking you to co-sponsor the #EnsuringLastingSmiles Act (HR.1916/S.754). This bipartisan legislation will ensure our loved ones born with congenital anomalies will receive medically necessary treatments. Our family is counting on you!

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

@SenFeinstein, we are asking you to co-sponsor the #EnsuringLastingSmiles Act (HR.1916/S.754). This bipartisan legislation will ensure our loved ones born with congenital anomalies will receive medically necessary treatments. Our family is counting on you!

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

@SenTomCotton, we are asking you to co-sponsor the #EnsuringLastingSmiles Act (HR.1916/S.754). This bipartisan legislation will ensure our loved ones born with congenital anomalies will receive medically necessary treatments. Our family is counting on you!

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

@TTuberville, we are asking you to co-sponsor the #EnsuringLastingSmiles Act (HR.1916/S.754). This bipartisan legislation will ensure our loved ones born with congenital anomalies will receive medically necessary treatments. Our family is counting on you!

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

@SenShelby, we are asking you to co-sponsor the #EnsuringLastingSmiles Act (HR.1916/S.754). This bipartisan legislation will ensure our loved ones born with congenital anomalies will receive medically necessary treatments. Our family is counting on your support!

[RARESUPERMAN1 @AAbbott77940320]

If you believe people born with #congenitalanomalies deserve medical coverage for #medicallynecessary treatments, contact your legislators & ask them to cosponsor the #EnsuringLastingSmiles Act HR.1916/S.754. I need all parents, patient advocates, doctors, teachers to email NOW!

[Becky M. Abbott, MPH @RareWashWoman]

#NewProfilePic

[National Foundation for Ectodermal Dysplasias @NFED_ORG]

Make sure to register for Virtual Advocacy Day on the Hill before March 26th, 2021. We are just 11 days away from the registration deadline. Together we can make dreams become realities!

To register now, click this link: https://t.co/rSKaQmE0Bk

#EnsuringLastingSmiles

[Becky M. Abbott, MPH @RareWashWoman]

@SenatorBaldwin Thank you for all you have done to move the #EnsuringLastingSmiles Act forward. Can’t wait for the day that this legislation is passed!

[Becky M. Abbott, MPH @RareWashWoman]

Congratulations @Kosers4ELSA! Thank you for your leadership in moving #ELSA forward.

[RDLA @RareAdvocates]

The #RareVoiceAwards2020 winner of the Federal Advocacy - Patient Advocate or Organization is Kevin Koser! @NFED_ORG

[Becky M. Abbott, MPH @RareWashWoman]

The #EnsuringLastingSmiles Act S.560/H.R.1379 is common sense legislation with strong bipartisan support. #ELSA would ensure medical insurance coverage for the medically necessary repair of #congenitalanomalies. Thank-you to our cosponsors for your continued support. #raredisease