Rare-X

Rare-X 2024, Africa's leading conference on rare disease treatment and access, will be taking place at Indaba Hotel, Johannesburg from 14-17 February 2024

[Rare-X @RareX_2024]

THANK YOU TO AMICUS FOR COMING ON BOARD AS A SPONSOR AT THE RARE-X CONFERENCE 2024

Amicus Therapeutics is a global biotechnology company at the forefront of advancing therapies for rare diseases.

Join the conversation today - https://t.co/Ygxd9SWQbD

#Rare-X #RarediseaseSA

[Rare-X @RareX_2024]

CALLING ALL SUPPORT GROUPS

Rare-X is an excellent opportunity to bring awareness about your support group to the rare disease community. Please visit https://t.co/Ygxd9SWQbD to register your support group.

#Rare-x #rarediseasesSA #rarediseases

[Rare-X @RareX_2024]

PANEL DISCUSSION – CLINICAL TRIALS

Join our panel discussion on the 14th of February at the Rare-X conference. The almost two-hour-long discussion goes into depth on the subject of clinical trials

Visit https://t.co/Ygxd9SWQbD to join the conversation

#Rare-X #rarediseases

[Rare-X @RareX_2024]

Just three weeks to go to the highly anticipate Rare-X conference. Don't hang about, register now to join the conversation

https://t.co/Ygxd9SWQbD

#Rare-X #RDSA #rarediseases #rarediseaseawareness

[Rare-X @RareX_2024]

🚨 LAST CALL: REGISTRATION CLOSING SOON FOR RARE X 2024! 🚨

Don’t miss on the incredible opportunity to be part of the highly-anticipated Rare X Conference in Johannesburg between the 14th and 17th of February.

Head over to https://t.co/Ygxd9SWQbD to register now!

[Rare-X @RareX_2024]

🚨 LAST CALL: REGISTRATION CLOSING SOON FOR RARE X 2024! 🚨

Don’t miss on the incredible opportunity to be part of the highly-anticipated Rare X Conference in Johannesburg between the 14th and 17th of February.

Head over to https://t.co/Ygxd9SWQbD to register now!

[Rare-X @RareX_2024]

Meet Dr Laurenne James

Date: Thursday 15 February
Time: 11h20 - 11h40
Topic: ISPOR & improving HTAs in South Africa – the role of patients
Session: Health Technology Assessments

Visit https://t.co/2OvWvbWf6o for our full programme of speakers and all things Rare-x.

[Rare-X @RareX_2024]

Meet Dr Niri Bhimsan

Date: Thursday 15 February
Time: 11h00 - 11h20
Topic: Private sector view
Session: Health Technology Assessments

Head over to https://t.co/jtuadmE4i6 to view the full programme of speakers and see all things Rare-X.

#RDSA #Rare-x #Rarediseases

[Rare-X @RareX_2024]

Meet Dr Mohamedraza Ebrahim

Date: Friday 16 February
Time: 13h30 – 13h45
Topic: The role of patient organisation’s in gaining access for patients in Africa
Session: Breakaway – Policy

Head over to https://t.co/Ygxd9SWQbD to see our full programme of speakers.

[Rare-X @RareX_2024]

Meet Miracle May

Wednesday 14 February
Time: 14h06-14h18
Topic: Patient perspective (Interview format)
Session: Breakaway – Community Engagement

#RDSA #Rare-x #Rarediseases

[Rare-X @RareX_2024]

Meet Dr Elne Conradie

Wednesday 14 February
Time: 13h54-14h06
Topic: Recruitment strategies for a non-hospital based academic biobank in South Africa
Session: Breakaway – Data & Research

[Rare-X @RareX_2024]

Meet Alexandra Heumber Perry

Date: Wednesday 14 Feb
Time: 10h40-11h00
Session : Global perspectives on policies relating to access
Topic: Universal Health Coverage for Rare Diseases

[Rare-X @RareX_2024]

Meet Prof. Michèle Ramsay

Date : Wednesday 14 February
Time: 13h30-13h42
Topic: An overview of data & research issues in rare diseases
Session: Breakaway – Data & Research

[Rare-X @RareX_2024]

Meet Alexandra Heumber Perry

Date: Wednesday 14 Feb
Time: 10h40-11h00
Session : Global perspectives on policies relating to access
Topic: Universal Health Coverage for Rare Diseases

[Rare-X @RareX_2024]

Meet Alexandra Heumber Perry

Date: Wednesday 14 Feb
Time: 10h40-11h00
Session : Global perspectives on policies relating to access
Topic: Universal Health Coverage for Rare Diseases

[Rare-X @RareX_2024]

5 days remain for Early Bird Registration!

Time is ticking, and we don't want you to miss out on the fantastic opportunities at Rare-X 2024, taking place between 14-17 Feb 2024 in Johannesburg.

Register before the 20th Nov at https://t.co/Ygxd9SWQbD

[Rare-X @RareX_2024]

WHY YOU SHOULD ATTEND RARE-X 2024

There are plenty of reasons to attend the Rare-X Conference 2024. Here are just a few:
Build a network
Learn
Hone your skills
Educate others

So don’t miss out on our Early Bird specials; attend the event at a reduced rate!

[Rare-X @RareX_2024]

FINAL CALL FOR ABSTRACTS – EXTENSION OF DEADLINE

Abstract submission for Rare X 24 has been extended until the 27th of October 23.
Don’t miss out on this incredible opportunity.

Please contact [email protected] if you have any questions about the submission process.

[Rare-X @RareX_2024]

5 DAYS TO GO

Share your knowledge and experience with a global audience and inspire discussions in our community. Abstract submissions close 18 October 2023.

Submit yours now at https://t.co/Ygxd9SWQbD

#RareX2024 #RareX #rarediseases #rare #RareXconference #access

[Rare-X @RareX_2024]

Introducing Scientific Committee Member, Dr Helen @rarediseasessa and Extraordinary Associate Professor at the Centre for Metabolomics at NWU.

To find out more about Helen and her fellow Committee Members visit https://t.co/Ygxd9SWQbD

#RareX2024 #RareX #rarediseases #rare