Recordati Rare Diseases

At Recordati Rare Diseases, we focus on the few - those affected by rare diseases.
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[Recordati Rare Diseases @RecordatiD]

📍 Ne manquez pas ce moment fort de la SFE2025 !
📅 Jeudi 25 septembre 2025 de 18h à 19h30
👨‍⚕️👩‍⚕️ Le symposium réunira des experts pour explorer la prise en charge globale et la qualité de vie des patients dans l’acromégalie et le syndrome de Cushing.
#Symposium #Maladiesrares #SFE #Cushing#Acromégalie

[Recordati Rare Diseases @RecordatiD]

📢 Retrouvez-nous au symposium SFE 2025 de Recordati Rare Diseases "Prise en charge de l'acromégalie et du syndrome de Cushing : savoir aller au-delà des hormones”
📅 Le jeudi 25 septembre 2025 de 18h à 19h30
🎤 Modéré par Pr. Jacques Young
#Symposium #Maladiesrares #SFE #Cushing#Acromégalie

[Recordati Rare Diseases @RecordatiD]

Dans le cadre du congrès de la SFE, le jeudi 25/09 à 18h
🔹 Au-delà du cortisol : quel impact du syndrome de Cushing sur la qualité de vie ?
🗣️ Dr. Nicolas Scheyer (Nancy)
#Symposium #Maladiesrares #SFE #Cushing

[Recordati Rare Diseases @RecordatiD]

On Rare Disease Day, we are proud to share our Rare Disease Patient Community Charter, the result of a yearlong collaboration to ensure patients remain central to our planning, thinking, and actions.

Developed with our “patient ambassadors” across Europe and beyond, and with input from Patient Advocacy Groups representing diverse rare conditions, we co-created a charter reflecting their views, expectations, and ambitions.

Built on four key pillars, it formalises our commitment to the rare disease community, holding us accountable and guiding our internal operations and external interactions with all stakeholders, especially patients.

Scroll through below to discover the four pillars of our Charter!

#RareDiseaseDay #Recordati #RecordatiRareDiseases

https://t.co/EQVi6ohYXT

[Recordati Rare Diseases @RecordatiD]

Ahead of @rarediseaseday on February 28th, we’re sharing the story of Reza, a 13-year-old living with cystinosis - a rare condition that causes the amino acid cystine to build up in organs like the kidneys and eyes.

Despite the challenges, Reza is full of optimism and big dreams. He loves dancing, reading, and aspires to become an actor!
“I will try my best to make those around me happy,” Reza shares.

His story is part of a global initiative by EURORDIS and Rare Disease Day to highlight the strength and resilience of people living with rare diseases.

This Rare Disease Day, let’s celebrate Reza and the millions of others facing rare diseases with courage. Together, we can raise awareness and support their journeys.

Read Reza’s full story and discover other rare disease superheroes at
https://t.co/Q6q7WiAWXl

#RareDiseaseDay #RareDiseases #Awareness

[Recordati Rare Diseases @RecordatiD]

Pituitary Awareness Month begins!

Join us in raising awareness about the crucial role of the pituitary gland and rare pituitary disorders.

#ThisCushing initiative, Recordati Rare Diseases is sharing scientific content, patient stories and expert insights throughout October to spread awareness and provide support for those affected by Cushing's disease.

Visit the #ThisCushing website: https://t.co/hDyRbro6WP

#Becausehormonesmatter #CushingDisease #PituitaryAwarenessMonth #ThisCushing

[Recordati Rare Diseases @RecordatiD]

Looking ahead to the Pituitary Awareness Month coming up in October, Recordati Rare Diseases highlights #ThisCushing, an awareness initiative that aims to provide healthcare professionals and patients with valuable resources to increase their understanding of Cushing's disease and its significant burden.

Here's a glimpse of what to expect from the #ThisCushing:
🌐 A dedicated website
📖 Personal stories and testimonials
🗣️ Patient-focused sections

Share the #ThisCushing initiative in the optics of the Pituitary Awareness Month https://t.co/svt8J1gnnr

#BecauseHormonesMatter #PituitaryAwarenessMonth #CushingDisease #ThisCushing

[Recordati Rare Diseases @RecordatiD]

Today, we join the global community in recognizing World Lymphoma Awareness Day, a day dedicated to raising awareness about lymphoma and supporting patients and families affected by this challenging disease.

With over 1 million people living with lymphoma worldwide, it’s essential to shine a light on the importance of early diagnosis, innovative treatment options, and the power of patient education and advocacy.

At Recordati Rare Diseases, we are committed to advancing care and improving outcomes for lymphoma patients through cutting-edge research and partnerships with healthcare professionals.

Let’s come together to spread awareness and offer support. Every action counts!

More information here: https://t.co/jXd9C7ckxt

#WorldLymphomaAwarenessDay

[Recordati Rare Diseases @RecordatiD]

We are thrilled to announce our participation in the upcoming #SSIEM2024 Congress in Porto from September 3-6! This event brings together experts and innovators in the field of inherited metabolic diseases, providing a platform for collaboration, learning, and advancing scientific knowledge.

As a company dedicated to pioneering treatments solutions for rare diseases, we are eager to share our latest research, connect with healthcare professionals, and explore new opportunities to make an impact on patients' lives.

Stay tuned for updates on our presentations and activities at the congress. We look forward to seeing you there!

More information: https://t.co/Df4OmfMdGP

[Recordati Rare Diseases @RecordatiD]

🎉 Congratulations to our team of 70 dedicated colleagues who participated in the "Enfants sans Cancer City" charity run, supporting the French patient association @ImagineforMargo !
By joining forces with Imagine for Margo, we help fund essential research that is crucial in the fight against pediatric cancer, providing hope and better futures for countless children and their families.
Thank you for your commitment and for making a real difference. Together, we can turn the tide against childhood cancer and create a better tomorrow for young patients everywhere.
#ImagineForMargo #EnfantsSansCancerCity #FightingChildhoodCancer

[Recordati Rare Diseases @RecordatiD]

Tomorrow, a dedicated team of 70 colleagues from Recordati Rare Diseases will be participating in the Enfants sans Cancer City charity run in Paris la Défense!

We are incredibly proud to support the association @ImagineforMargo in their efforts to combat pediatric cancer. Their mission resonates deeply with our commitment to making a difference in the world of rare diseases.

We invite you to join us in supporting this incredible cause. Whether you’re running, cheering from the sidelines, every bit helps in the fight against childhood cancers!

For more information about Imagine for Margo and how you can contribute, please visit: https://t.co/wzzrh10fKq

Let’s make a difference together!

#CharityRun #ImagineForMargo #ChildhoodCancer
#RareDiseases #EnfantsSansCancer

[Recordati Rare Diseases @RecordatiD]

Today is World Homocystinuras Awareness Day! Homocystinurias are a group of rare genetic disorders affecting how the body processes methionine, leading to elevated homocysteine levels in the blood. This can result in a range of health complications impacting the eyes, bones, central nervous system and cardiovascular system.

On World Homocystinurias Awareness Day, join us in amplifying the voices of those impacted by Homocystinurias and advocating for greater awareness and resources. Together, we can make a meaningful difference in the lives of patients and families affected by these rare disorders.

#HomocystinuriasAwarenessDay #RareDiseases #PatientCare #FocusedOnTheFew

[Recordati Rare Diseases @RecordatiD]

We’re excited to announce that Recordati Rare Diseases will be hosting a symposium at the SIOPE Congress, on Thurday 16 May, from 1 to 2 PM CET in Milan!

Intended for healthcare professionals only, join us for an insightful discussion on "Real world clinical practice in refractory and relapsed neuroblastoma," where leading experts will share valuable insights and experiences in tackling this challenging aspect of paediatric oncology.

🗓️ Mark your calendars and don’t miss this opportunity to engage with experts in the field!

#SIOPECongress #PaediatricOncology

[Recordati Rare Diseases @RecordatiD]

As the curtains fall on this outstanding ECE edition in Sweden, we express our sincere gratitute to everyone who contributed to its success. 🙌

The opportunity to participate allowed us to connect with international dedicated attendees, fostering valuable conversations and forging meaningful relationships. We are truly thrilled by the connections made and look forward to continued collaboration!

Thank you for being part of this incredible journey! 🌐👩‍⚕️👨‍⚕️

#ESEndocrinology #ECE2024 #HealthcareInnovation

[Recordati Rare Diseases @RecordatiD]

🌟 Join Our satellite symposium!

As an Healthcare Professional, would you like to learn more about the latest news about #CushingsSyndrome and #Acromegaly management? Look no further! Gain expert insights from Drs. Fleseriu, MK Biller, Reincke, and Esposito.

🗓️ When: Monday, 13 May, 12:40 – 13:55 TRT at the congress in the Victoria Hall and streamed live to ECE@Home delegates.

#ESEndocrinology #ECE2024

Learn more at https://t.co/SITQ0P12Cz. See you there! 🎉

[Recordati Rare Diseases @RecordatiD]

Today is the opening of the European Congress of Endocrinology (ECE). At RRD we are proud to be part of this event with healthcare professionals. Meet us at our booth n°28! We will also share latest news on #Cushingssyndrome and #Acromegaly during our Satellite Symposium from Monday the 13th!

🔗 Network, Learn, Engage: Let’s ignite conversations. Shape the future. 🌟

#ESEndocrinology #ECE2024

[Recordati Rare Diseases @RecordatiD]

We are excited to announce that Recordati Rare Diseases will be participating in the upcoming SIOPE Congress, organized by the European Society for Paediatric Oncology, from 13-17 May in Milan! This prestigious event for healthcare professionals brings together leading minds in the field of paediatric oncology and offers a unique interactive format to discuss the current priorities and needs in the field of childhood cancers.

Come meet us at booth, space 13 – 14 level 1 and stay tuned, more information on our scientific activities will be shared in the coming days!

More information here: https://t.co/XaVgUrWZ0f

#SIOPECongress #PaediatricOncology

[Recordati Rare Diseases @RecordatiD]

At Recordati Rare Diseases, we’re thrilled to be part of the ECE Congress 2024 hold this year in Stockholm, Sweden from 11 – 14 May 2024, mark your calendars! 🗓️

🔍 What’s in store?
- Join us at Booth #28 to explore groundbreaking advancements in endocrinology.

- Don’t miss out our satelite symposium on May 13th to dive into...
> The latest litterature review on #CushingsSyndrome and #Acromegaly.
> Insights from our expert panel to optimize patients management.

🔗 Learn more at https://t.co/xX47GMtNHK and stay tuned for updates!

#ESEndocrinology #ECE2024 #HealthcareInnovation