Covid-19 Patient Stories

A resource for those recovering from Covid-19. Find out more about what a recovery journey can look like and share your own recovery story to help others.

[Covid-19 Patient Stories @RecoveryCovid19]

Share your own story of recovery with us a research record, but also as a reassurance for others of what different experiences might look like https://t.co/g50IBLoZEL #LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

We've recently had some more submissions to the website, which we will share over the coming weeks.

If you wish to share your stories of recovery from Long Covid, you can still do so here:

https://t.co/g50IBLoZEL

#LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

We've been contacted by a team at Hong Kong Polytechnic University @HongKongPolyU wanting to conduct research into cognitive linguistic difficulty associated with Long Covid.

If you'd like to take part in the research, you can find it here

https://t.co/WhUjuNKDpH

#LongCovid

[Layla Moran 🔶🕊️ @LaylaMoran]

Join @BBCPanorama this Monday at 8pm for an insight into frontline workers, long Covid and what we need to do to support them. @AppgCoronavirus has helped as much as we can and are grateful to BBC for giving this issue the attention it deserves https://t.co/1Eb3y1kzcf

[Covid-19 Patient Stories @RecoveryCovid19]

Our first new story to be published in some time. Read Keith's story of recovery from Covid:

https://t.co/PwFvoMYxQH

At 72 and immune suppressed due to treatment for arthritis, Keith has had a rough ride with Covid.

#LongCovid #PatientStories #LivedExperience

[Covid-19 Patient Stories @RecoveryCovid19]

Thanks to all that have contributed to date by sharing their experiences. 🙏

Thanks to support from @SHCFundraising making this happen with essential research funding. 🙏

Thanks to @long_covid & other networks for the combined, grassroots support this type of activity needs. 🙏

[Covid-19 Patient Stories @RecoveryCovid19]

We shared the publication of the research conducted using the submissions to our website a while back, but only recently got round to confirming this with an web update:

https://t.co/c0ZDG6B3uV

#LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

We've got plenty of stories that we've share here:

https://t.co/L55YCjon6V

But any further raising of awareness & understanding of living with Long Covid will only benefit those that suffer from it.

Share your experiences with @guardian via the form below.

#LongCovid

[Dr Alison Twycross RN @alitwy]

I'm sure Long Covid Twitter can fill up a mailbox or two.

Living with long Covid: we want to hear from you | Long Covid | The Guardian https://t.co/oYaOuak1rY

[Covid-19 Patient Stories @RecoveryCovid19]

We still receive updates from those that submitted recovery experiences.

Today we are sharing Catherine's update:

https://t.co/ul1Pm9p21w

As Catherine continues to recover from Long Covid, a recovery that encompasses many different symptoms.

#LongCovid #LongCovidrecovery

[Covid-19 Patient Stories @RecoveryCovid19]

We're re-sharing one of our other early stories submitted of Long Covid recovery today, as people continue to recover from various variants of Covid.

This is Michelle's story:

https://t.co/g2iQYaJpB7

With lots of desk driven research of symptoms at the time. #LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

Delighted to say our research paper on invisibility & epistemic injustice has been published in Health Expectations @WileyHealth
https://t.co/o3cVOWiZFi

Thank you @SHCFundraising for help make this happen

Thank you to all those that submitted their experiences of #LongCovid 🙏

[Covid-19 Patient Stories @RecoveryCovid19]

If you've experienced Long Covid, particularly if you believe (as testing was minimal then) were originally infected with Covid more than 18 mths ago, do share your story for the benefit of others & as a record for potential research purposes https://t.co/g50IBLoZEL 🙏 #LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

Today we're re-sharing one of our co-founders Long Covid story again, as a reminder that many continue to experience the affects of their original Covid infections. #longcovid https://t.co/9GPuV94zEV

[Covid-19 Patient Stories @RecoveryCovid19]

In our first update for a while, we're sharing Naomi's story. Naomi is now in the 85th week of recovery from suspected Covid, a long recovery journey for anyone to experience. https://t.co/bSdU8MlmdY Wishing you the very best Naomi. #LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

Today we're publishing Melanie's story of Covid recovery https://t.co/ky8Kmz9hHQ As part of Melanie's ongoing recovery, Melanie found a particular technique to help with the symptom often referred to as "brain fog" #LongCovid #livedexperience #patientstories

[Covid-19 Patient Stories @RecoveryCovid19]

Today we're sharing Jackie's story of recovery https://t.co/8KfvA3LJm5 Jackie's Covid illness was from 2021, but Jackie is in week 13 of recovery already. As the mother of someone extremely vulnerable, it wasn't her health that was her initial concern. #LongCovid #PatientStories

[Covid-19 Patient Stories @RecoveryCovid19]

We hope to provide an update soon on the progress of the research and soon after that, with a prevailing wind, share the research paper(s) that are the product of that work. We'll keep you in the loop. #LongCovid #LivedExperiences #PatientStories

[Covid-19 Patient Stories @RecoveryCovid19]

We've been a bit quiet recently. Partly due to the number of submissions having dropped off significantly, which we hope is a positive sign, but we've also been head down in the research analysis of your submissions. 🙏 for sharing these.

[Covid-19 Patient Stories @RecoveryCovid19]

Read Linda's story of Covid recovery https://t.co/y5RQoASOp3 an initial infection back in April 2020, Linda is still dealing with her recovery. Working on a Covid ward, Linda has seen & experienced the impact of Covid on herself & others first hand #livedexperience #LongCovid

[Covid-19 Patient Stories @RecoveryCovid19]

Will add to our resources page shortly.

[Covid-19 Patient Stories @RecoveryCovid19]

The Long Covid Alliance looks a great collaboration between a wide range of organisations for the better good https://t.co/yj4KiIc3iK from patient focussed groups, healthcare specialists to research bodies. Fighting to ensure access to recovery resources for all. 🙏 #LongCovid