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Reeve Foundation
@ReeveFdnIS
Short Hills, NJ
Joined July 2009
7
Following
147
Followers
56
Posts
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@ElderCareRN
hope tonight is a short night for you. Feel free to read here for notes on chat
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@IndianaTrish
feel free to contact me if I can help.
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Thanks everyone, that was a quick hour
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Back up plans help. If a wheelchair breaks, know how to fix it or where to go. Unexpected increases stress
#fem2
Who to follow
Southwest ADA Center
@SouthwestADA
We answer ADA questions, provide info & training for consumers, businesses, service providers, employers & more! Call us at 1-800-949-4232! (calls confidential)
Spinal Cord Injury Model Systems
@SCI_MS
The Model Systems Knowledge Transition Center (#MSKTC) connects consumers to information on spinal cord injury, traumatic brain injury, and burn injury. #SCI
IgniteAdaptiveSports
@IgniteAdaptive
Since 1975, we have helped those with disabilities and special needs enjoy skiing, snowboarding and other winter sports. Come see us at Eldora Mtn Resort.
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Knowledge is power. Find orgs that support your needs and interests, join advocacy grps, learn as much as you can
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Remember you always have your voice, when you go silent, you get lost in the crowd and forgotten
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Find your strength in creative ways online communities email exchanges postcards, prayer lists anything that helps you feel connected
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Paralysis Resource Guide is also online Chpt 10 http://www.nxtbook.com/nxtbooks/crf/paralysisresourceguide/ pages 286-297
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Factsheet has tons of resources that are webbased. Often Caregivers log online after midnight
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
found here http://bit.ly/6xRZO
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Reeve Paralysis Resource Center has a great caregiving factsheet
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
It is impt as caregivers to know we are not alone. Internet allows us an opportunity to connect
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Dana Reeve preferred to callit regrets and not guilt
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
As medicare cuts back, private health care follows. Most policies allow for LTC but only 30-90 visits a year for home care--inadequate
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@christytj
Generally it becomes LTC nursing home. To get that many family looses all their resources
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@MarthaStett also quality of care comes into play with the guilt
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@jdp23
the best thing folks have done to help us has simply been to ask. Male or female, just asking helps
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
@IndianaTrish
I think it is grief IT and they can walk away easier than a spouse. We all have hopes and dream, reality can suck
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
areas of help can be, grocery shopping, picking up dry cleaning, sitting with the person in need of care, meals
#fem2
Reeve Foundation
@ReeveFdnIS
almost 17 years ago
Financially we can prepare somewhat but the cost of a high level spinal cord injury is overwhelming
#fem2
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