Reeve Foundation

[Reeve Foundation @ReeveFdnIS]

@ElderCareRN hope tonight is a short night for you. Feel free to read here for notes on chat

[Reeve Foundation @ReeveFdnIS]

@IndianaTrish feel free to contact me if I can help.

[Reeve Foundation @ReeveFdnIS]

Thanks everyone, that was a quick hour #fem2

[Reeve Foundation @ReeveFdnIS]

Back up plans help. If a wheelchair breaks, know how to fix it or where to go. Unexpected increases stress #fem2

[Reeve Foundation @ReeveFdnIS]

Knowledge is power. Find orgs that support your needs and interests, join advocacy grps, learn as much as you can #fem2

[Reeve Foundation @ReeveFdnIS]

Remember you always have your voice, when you go silent, you get lost in the crowd and forgotten #fem2

[Reeve Foundation @ReeveFdnIS]

Find your strength in creative ways online communities email exchanges postcards, prayer lists anything that helps you feel connected #fem2

[Reeve Foundation @ReeveFdnIS]

Paralysis Resource Guide is also online Chpt 10 http://www.nxtbook.com/nxtbooks/crf/paralysisresourceguide/ pages 286-297
#fem2

[Reeve Foundation @ReeveFdnIS]

Factsheet has tons of resources that are webbased. Often Caregivers log online after midnight #fem2

[Reeve Foundation @ReeveFdnIS]

found here http://bit.ly/6xRZO
#fem2

[Reeve Foundation @ReeveFdnIS]

Reeve Paralysis Resource Center has a great caregiving factsheet #fem2

[Reeve Foundation @ReeveFdnIS]

It is impt as caregivers to know we are not alone. Internet allows us an opportunity to connect #fem2

[Reeve Foundation @ReeveFdnIS]

Dana Reeve preferred to callit regrets and not guilt #fem2

[Reeve Foundation @ReeveFdnIS]

As medicare cuts back, private health care follows. Most policies allow for LTC but only 30-90 visits a year for home care--inadequate #fem2

[Reeve Foundation @ReeveFdnIS]

@christytj Generally it becomes LTC nursing home. To get that many family looses all their resources #fem2

[Reeve Foundation @ReeveFdnIS]

@MarthaStett also quality of care comes into play with the guilt #fem2

[Reeve Foundation @ReeveFdnIS]

@jdp23 the best thing folks have done to help us has simply been to ask. Male or female, just asking helps #fem2

[Reeve Foundation @ReeveFdnIS]

@IndianaTrish I think it is grief IT and they can walk away easier than a spouse. We all have hopes and dream, reality can suck #fem2

[Reeve Foundation @ReeveFdnIS]

areas of help can be, grocery shopping, picking up dry cleaning, sitting with the person in need of care, meals #fem2

[Reeve Foundation @ReeveFdnIS]

Financially we can prepare somewhat but the cost of a high level spinal cord injury is overwhelming #fem2