Julie Flygare

President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.

[Julie Flygare @RemRunner]

❗️Apple News Top Stories today includes a beautifully-written article from @NatGeo about the scientific breakthroughs leading to novel treatments in development for people with #narcolepsy like me!

https://t.co/MuW0BuKIaR

[Julie Flygare @RemRunner]

Hello from DC! Excited to be here for the 6th annual Sleep Advocacy Forum, bringing together sleep advocates, organizations, professional societies and policy makers! Testing out one of our new signs. 💙

[Julie Flygare @RemRunner]

Let’s talk “energy economics” when living w/ a chronic health condition.

☀️ I’m honored to speak at the Autoimmune Association (@AutoimmuneAssoc)’s FREE virtual Autoimmune Community Summit on Thursday, Oct. 15th!

👩🏻‍💻It’s free! It’s virtual! Register: https://t.co/OixkyDANYv

[Julie Flygare @RemRunner]

I told The Guardian about my stalker.

Sleepiness. Waiting outside my house every day while I try to get ONE more thing done before it breaks in.

TY @guardian @guardianscience for making space for what living w/ #narcolepsy really feels like: https://t.co/3ifyBA6eWz

[Julie Flygare @RemRunner]

@npo_narukokai Love this, so grateful for our amazing friends in Japan! Sending wakefulness your way from Los Angeles!

[Julie Flygare @RemRunner]

Huge thanks to @AlJean for being one of the kindest humans and giving me HOPE that Hollywood can listen, learn, and craft creative portrayals of #narcolepsy. It means so much to have your voice included in this story. 💛 #WorldNarcolepsyDay https://t.co/aTsF7nViri

[NPO法人日本ナルコレプシー協会(なるこ会公式) @npo_narukokai]

9月22日は世界ナルコレプシーの日。
World Narcolepsy Day
過眠症に対する社会的理解がもっと進みますように。
今年も動画を制作しました。
https://t.co/037Vy62map
#世界ナルコレプシーの日
#WND2026

[Tatsuhiko Fujimoto, Ph.D. @Tatsu_Fujimoto]

ちなみにラスカー賞の柳沢先生から睡眠科学の未来に関するプレゼンで感謝されたのは私です😂 2019年から7年先の未来で世界初のオレキシン作動薬

[carolyn johnson @Carolynyjohnson]

Today in 🤯 science: A team led by @Sergiu_P_Pasca engineered mice to be missing a large swath of their brains. Next, they transplanted human brain organoids, which grew and filled in the void. They're still mice, but with a human-dominated cortex. https://t.co/LWT5IwR01F

[Julie Flygare @RemRunner]

@matthorsnell Hoping someone can get the pup some medication to help. Gosta, you are NOT alone living with #narcolepsy. And yes, as @matthorsnell explained, the dog is NOT falling asleep, he's paralyzed while conscious. It's a terrible feeling.

[Julie Flygare @RemRunner]

@Carolynyjohnson In the case reconnect with the journalist almost 17 years later, as she prepares to write a NEW article about #narcolepsy and the first-ever FDA approval of an orexin agonist for the @newyorktimes. What a full circle moment!

[Julie Flygare @RemRunner]

@Carolynyjohnson Tuck the paper away in a pink file folder at the top of your closet for safe keeping...

[Julie Flygare @RemRunner]

It's truly such an incredible scientific story and you captured is beautifully! Thank you @Carolynyjohnson @nytimes !!

[carolyn johnson @Carolynyjohnson]

An alluring scientific idea from the late 1990s came to fruition - showing how basic research can yield fundamental insights into something as fundamental as the neurobiology of sleep. This work just won the Lasker, a big-deal science prize: https://t.co/hgFEk8QmlU

[Julie Flygare @RemRunner]

I'm not crying, promise!!! 🥹 Thank you so much for sharing this amazing full circle story, it's so special to me too.

[carolyn johnson @Carolynyjohnson]

I got to catch up with Julie after 17 (?!) years last week, and learn how that diagnosis inflected her whole life. I met her at what was probably somewhat of a low point, trying to sort her way forward - and to reconnect now was really special.

[carolyn johnson @Carolynyjohnson]

Fast-forward to today - after a lot of time, advocacy, failure, chemistry - there's now a first narcolepsy drug that mimics the missing ingredient in narcolepsy, orexin, and many following behind. 🎁 link: https://t.co/eCbjFwaT9j

[carolyn johnson @Carolynyjohnson]

A reflection on getting older: When I was starting out in journalism, I met @RemRunner. She was super self-possessed, high-achieving - and she had only recently been diagnosed with narcolepsy. I wrote a story about the idea (then kinda fanciful) of creating a targeted drug.

[Julie Flygare @RemRunner]

@pami0831 @project_sleep @US_FDA I hope so too! 🩵☀️

[Julie Flygare @RemRunner]

@project_sleep @US_FDA What a huge day!!!

[Project Sleep @project_sleep]

Huge news! @US_FDA approved #Takeda's ORZEYFUL (oveporexton) today, making it the first #orexin agonist approved for adults living w/ #narcolepsy type 1 in the US. The approval marks a significant advancement in neuroscience and #sleep medicine https://t.co/SFYzZtHRrF