Julie Flygare

President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.

[Julie Flygare @RemRunner]

@npo_narukokai Love this, so grateful for our amazing friends in Japan! Sending wakefulness your way from Los Angeles!

[Julie Flygare @RemRunner]

Huge thanks to @AlJean for being one of the kindest humans and giving me HOPE that Hollywood can listen, learn, and craft creative portrayals of #narcolepsy. It means so much to have your voice included in this story. 💛 #WorldNarcolepsyDay https://t.co/aTsF7nViri

[NPO法人日本ナルコレプシー協会(なるこ会公式) @npo_narukokai]

9月22日は世界ナルコレプシーの日。
World Narcolepsy Day
過眠症に対する社会的理解がもっと進みますように。
今年も動画を制作しました。
https://t.co/037Vy62map
#世界ナルコレプシーの日
#WND2026

[Tatsuhiko Fujimoto, Ph.D. @Tatsu_Fujimoto]

ちなみにラスカー賞の柳沢先生から睡眠科学の未来に関するプレゼンで感謝されたのは私です😂 2019年から7年先の未来で世界初のオレキシン作動薬

[carolyn johnson @Carolynyjohnson]

Today in 🤯 science: A team led by @Sergiu_P_Pasca engineered mice to be missing a large swath of their brains. Next, they transplanted human brain organoids, which grew and filled in the void. They're still mice, but with a human-dominated cortex. https://t.co/LWT5IwR01F

[Julie Flygare @RemRunner]

@matthorsnell Hoping someone can get the pup some medication to help. Gosta, you are NOT alone living with #narcolepsy. And yes, as @matthorsnell explained, the dog is NOT falling asleep, he's paralyzed while conscious. It's a terrible feeling.

[Julie Flygare @RemRunner]

@Carolynyjohnson In the case reconnect with the journalist almost 17 years later, as she prepares to write a NEW article about #narcolepsy and the first-ever FDA approval of an orexin agonist for the @newyorktimes. What a full circle moment!

[Julie Flygare @RemRunner]

@Carolynyjohnson Tuck the paper away in a pink file folder at the top of your closet for safe keeping...

[Julie Flygare @RemRunner]

It's truly such an incredible scientific story and you captured is beautifully! Thank you @Carolynyjohnson @nytimes !!

[carolyn johnson @Carolynyjohnson]

An alluring scientific idea from the late 1990s came to fruition - showing how basic research can yield fundamental insights into something as fundamental as the neurobiology of sleep. This work just won the Lasker, a big-deal science prize: https://t.co/hgFEk8QmlU

[Julie Flygare @RemRunner]

I'm not crying, promise!!! 🥹 Thank you so much for sharing this amazing full circle story, it's so special to me too.

[carolyn johnson @Carolynyjohnson]

I got to catch up with Julie after 17 (?!) years last week, and learn how that diagnosis inflected her whole life. I met her at what was probably somewhat of a low point, trying to sort her way forward - and to reconnect now was really special.

[carolyn johnson @Carolynyjohnson]

Fast-forward to today - after a lot of time, advocacy, failure, chemistry - there's now a first narcolepsy drug that mimics the missing ingredient in narcolepsy, orexin, and many following behind. 🎁 link: https://t.co/eCbjFwaT9j

[carolyn johnson @Carolynyjohnson]

A reflection on getting older: When I was starting out in journalism, I met @RemRunner. She was super self-possessed, high-achieving - and she had only recently been diagnosed with narcolepsy. I wrote a story about the idea (then kinda fanciful) of creating a targeted drug.

[Julie Flygare @RemRunner]

@pami0831 @project_sleep @US_FDA I hope so too! 🩵☀️

[Julie Flygare @RemRunner]

@project_sleep @US_FDA What a huge day!!!

[Project Sleep @project_sleep]

Huge news! @US_FDA approved #Takeda's ORZEYFUL (oveporexton) today, making it the first #orexin agonist approved for adults living w/ #narcolepsy type 1 in the US. The approval marks a significant advancement in neuroscience and #sleep medicine https://t.co/SFYzZtHRrF

[Julie Flygare @RemRunner]

This is such an exciting time for #narcolepsy, w/ #orexin agonists moving through clinical trials, yet KEY aspects of narcolepsy research remain underdeveloped and ready for students, #sleep specialists or social scientists to join us. 2026 wishlist: https://t.co/TWmnKR0eo9

[Julie Flygare @RemRunner]

✨BEYOND honored that "Wide Awake and Dreaming: A Memoir of #Narcolepsy" is Stanford SASI's Summer 2026 Book Club pick!

San Fran friends, join for this special event next Thurs. 7/2 at Stanford Medical School from 5-7pm PT: https://t.co/R5wNkZvHjA

[Julie Flygare @RemRunner]

@lyft I want to keep using your service but for people with sensitivities to smells like air fresheners and smoke, are there any settings or tips possible to help avoid rides with smells? A smokey or air freshener car is a full day headache for me. Anyone else?

[Project Sleep @project_sleep]

🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #SleepApneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: https://t.co/H9JL4dIzDt