Retina International

Global umbrella group of patient-led organisations funding & supporting research into cures for rare, inherited & age related retinal dystrophies
RCN: 20206322

[Retina International @Retina_Int]

We are now posting on Bluesky. Stay connected with us for the latest updates on retinal research and our advocacy work.
🔗 Follow us here: https://t.co/NzzWdWIWtp
#RetinaInternational #RetinalResearch #BlueskySocial

[Retina International @Retina_Int]

Today we are celebrating World Braille Day which marks the birth day of the Braille inventor Louis Braille. It also highlights the importance of Braille and other forms of accessible communication for blind and visually impaired people. #WorldBrailleDay #Literacy #Inclusion #UN

[Retina International @Retina_Int]

📅 We are closing December 20th at 5pm and re-open Monday January 6th, 2025. ✨🎅🎉Thank you to everyone who contributed to making 2024 such a successful year for RI. We look forward to continuing our work in 2025! 2/2 #ChristmasArrangements #HappyHolidays #SeasonsGreetings

[Retina International @Retina_Int]

🎄 Christmas Arrangements 🎄As the holiday season approaches, we wanted to confirm our Christmas plans. We will be taking a break over Christmas and the New Year. If you need anything from us before then, please get in touch. 1/2

[Retina International @Retina_Int]

🚨 We’re Hiring! 🚨
We are excited to announce an opportunity to join Retina International as a Financial Accountant part time! If you're ready to be part of a dynamic team making a difference, apply here: https://t.co/ZXWHnbe8s3 #Finance #Hiring

[Retina International @Retina_Int]

Sepul Bio, Doses First Participant in Phase 2b Clinical Trial of ultevursen for USH2A-associated retinitis pigmentosa. More information on https://t.co/pxrNrAFNEA #IRD #RP #RNAediting

[RETINA FRANCE @RETINAFRANCE]

Rétinite Pigmentaire, USHER et LEBER, du nouveau basé sur l'ARN !
Sepofarsen, cible l'amaurose congénitale de Leber de type 10.
Ultevursen, vise à traiter la perte de vision dans le syndrome d'Usher de type 2a et la rétinite pigmentaire non syndromique.
https://t.co/1KmDvUKsx9

[RIWC24 @RIWC24]

Exciting news🎉Retina International World Congress 2024, hosted by @fight_blindness, won the Educational Meeting of the Year award at the 2024 @HealthAwardsIrl by @IMT_latest! A huge thanks to @Retina_Int and everyone who made it a success.
👉 https://t.co/MTUClobdLY

#IMTIH2024

[Retina International @Retina_Int]

Our Head of Research Dr @DrNabinPaudel presenting poster at #ISPOREurope.

[Retina International @Retina_Int]

Delighted to share, our Head of Research and Programmes @DrNabinPaudel has been awarded a Travel Grant to participate at the #ISPOREurope conference in Barcelona. Dr Paudel will present a poster on the short-term evaluation of our flagship educational program-RI Education Hub.

[Retina International @Retina_Int]

RI is supporting World Diabetes Day 2024.
45 million people are at risk of losing their vision due to diabetic retinopathy (DR), an ocular manifestation of diabetes.
This #WDD2024, let’s push for holistic care that supports both physical and mental health.
#WorldDiabetesDay

[Fighting Blindness @fight_blindness]

Join Our Free AMD Webinar to hear from top experts on AMD, the #1 cause of sight loss in Ireland for those over 50. Speakers: Eye Surgeon Mr Mark Cahill, Prof of Genetics @mattcampbelltcd @tcddublin & a Researcher from Prof @SDoyleTcd Group. Register here: https://t.co/Ac01UoIk5C

[Retina International @Retina_Int]

Our recently published study provides insights into the economic burden associated with late-stage Age-Related Macular Degeneration (AMD). 📗

The study estimated burden related to :

- Direct medical costs
- Indirect medical costs
- Loss of productivity
- Reduced wellbeing

[Retina International @Retina_Int]

RI is delighted to announce the publication of “Economic Burden of Late-Stage Age-Related Macular Degeneration in Bulgaria, Germany, and the US” in JAMA Ophthalmology.

Official press release :
https://t.co/UWjTIcMwHo

Full publication :
https://t.co/CnoISM9haB

#AMD #Vision

[Retina International @Retina_Int]

Happy World Sight Day Everyone! #WorldSightDay2024 #LoveYourEyes

[Retina International @Retina_Int]

This World Sight Day, Retina International (RI) will host a Webinar on Thursday, October the 10th at 12pm CET.

Please contact Andrew Ryan [email protected] to register for the webinar.

#WORLDSIGHTDAY2024 #Loveyoureyes

[Retina International @Retina_Int]

Retina International will mark World Retina Day 2024 on September 28th

RI will highlight the importance of Patient Perspective in Decision Making and will host a Webinar on September 27th at 12pm CET.

Please contact Andrew Ryan [email protected] to register

[Retina International @Retina_Int]

Last week, our CEO Avril Daly, Head of Research Dr Nabin Paudel, Chairperson Franz Badura and Operations Manager Sinéad Stafford attended #EURETINA24 in Barcelona.

We had several fruitful and though-provoking discussions with clinicians, partners and colleagues.
#EURETINA24

[ERN-EYE @ErnEyeEU]

@avrilbdaly from @Retina_Int is now speaking about the patient perspective #euretina2024

[Retina International @Retina_Int]

Retina International will mark World Retina Day 2024 on September 28th

RI will highlight the importance of Patient Perspective in Decision Making and will host a Webinar on September 27th at 12pm CET.

Please contact Andrew Ryan [email protected] to register