Imagine Trump ever being invited to join a photo like this — not in a million years.
Four presidents. Zero drama. Just smiles, respect, and a shared love of country. 🇺🇸
Hey @elonmusk why so very few RT? I have. A feeling that @X brings down RT people they don’t want and exponentially RT people no one wants to know about…..any ideas or comments?
Day 16
Have you participated in any trials?
The only trials I’ve participated in were research studies where no medication was administered. Not because I didn’t want to — I absolutely would have welcomed the opportunity — but because I was never eligible at any point in this journey.
By the time I was diagnosed with ALS, my breathing capacity had already diminished to less than half of what is considered normal for a healthy adult. That’s very uncommon. For most people with ALS, the breathing muscles are affected much later in the disease. But as I always say, no two people experience ALS the same way.
A respiratory test called FVC (Forced Vital Capacity) measures lung function. At diagnosis, my FVC was 42%. For reference, healthy adults are typically near or above 100%. Most clinical trials automatically disqualify anyone below 65%. As you can imagine, that was incredibly discouraging.
And even if my breathing hadn’t already been compromised, I still would’ve been ineligible for most trials. Because ALS progresses so aggressively, many studies require participants to be within two years of symptom onset. Looking back, my symptoms had actually started nearly three years before my diagnosis — effectively disqualifying me from almost everything before I even had answers.
It’s frustrating, because people facing a terminal illness often have the least access to the very treatments that could potentially help them. I understand trials need structure and safety measures, but it’s hard not to wonder why those of us with the most to gain are so often excluded.
I don’t believe there will be one miracle drug that suddenly “cures” ALS. I think progress will come through layers of treatments, therapies, research, and individualized care. Different things will likely work for different people. I’m not a scientist, just someone living this reality every day — but I do know this: people with ALS deserve hope, options, and the chance to fight for more time. #ALS #ALSawareness #FightLikeAGirl #EndALS
The first time President Obama met with his US Attorneys, he told us, “I appointed you but you don’t serve me. You serve the American people. And I expect you to act with independence & integrity.” None of us ever forgot that.
1/n: I could be wrong, of course, but my take about this hantavirus outbreak is less about the actual outbreak and more about what it means in the context of the last two decades and moving forward. Let me explain...
The victory of the opposition in Hungary yesterday, like the Polish election in 2023, is a victory for democracy, not just in Europe but around the world. Most of all, it’s a testament to the resilience and determination of the Hungarian people – and a reminder to all of us to keep striving for fairness, equality and the rule of law.
I am now the most banned author in the United States--87 books. May I suggest you pick up one of them and see what all the pissing & moaning is about? Self-righteous book banners don't always get to have their way. This is still America, dammit.
Breaking🚨: A "double impeachment" is being prepared that could change the course of the U.S. In 2026.
Do you support starting impeachment proceedings against Trump and Vance?
Bruce Springsteen on Trump: “I couldn't care less what he thinks about me. He's the living personification of what the 25th Amendment and impeachment were for. If Congress had any guts, he'd be consigned to the trash heap of history."
RETWEET if you stand with @Springsteen!
Putin is our enemy. He's helping Iranian soldiers target American soldiers and assets.
Zelenskyy is our friend. He's helping American soldiers shoot down Iranian drones.
Most Americans understand these basic facts.
Trump, for whatever reason, does not.