@TheRealMcCoy aka Meghan

Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @[email protected]
T2: same as here
@rippermd41.bsky.social

[Ror Preston @RorPreston]

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

[@TheRealMcCoy aka Meghan @RipperMD41]

@CovidComunidad @Naomi_D_Harvey @LauraMiers @elisaperego78 @calirunnerdoc @JanetDafoe @angryhacademic Sorry PEM wiped me out for a bit. This is the group https://t.co/knmsiQkwho

[@TheRealMcCoy aka Meghan @RipperMD41]

@CovidComunidad @Naomi_D_Harvey @LauraMiers @elisaperego78 @calirunnerdoc @JanetDafoe @angryhacademic Check out the Abilify for ME/CFS group on FB. Lots of posts on this.

[charlos @loscharlos]

Turn 36 today & I’ve spent my entire thirties with #LongCovid. When I turned 30 I was biking to work 10 miles a day, & since my mild covid infection — I struggle to walk more than a block or work more than a few hours a week.

Here’s 4 things I wish everyone knew:

[Hazie Thompson @haziethompson]

Crisis Alert.
Severe patient with no access to food water or care.
Please consider sending direct aid.

[@TheRealMcCoy aka Meghan @RipperMD41]

@CrazySadAzn When I read TLG that’s all I could see. He’s so stressed and just barely getting through that he develops tunnel vision and misses things.

[Hazie Thompson @haziethompson]

I’m just getting sicker & sadder.
There is no event, big or small, that is worth this loss.
Masking saves lives & livelihoods.
Take care while you still can.

[Seets💫 @MamaSitaa__]

Day 3 of my sister trying to go back to work and it's destroying her. Just one month of radical rest could be the difference of recovery or a second heart attack. Every dollar helps, every re-tweet helps.

Thank you all so much, I'm humbled and grateful for the help.

[@TheRealMcCoy aka Meghan @RipperMD41]

@seanstidston @Sabrina_Poirier I don’t know. She does not respond well to feedback at all. I haven’t even seen a screenshot of what she deleted this time around.

[davidtuller @davidtuller1]

Hey @WesternU, what's up with this unethical study??

[@TheRealMcCoy aka Meghan @RipperMD41]

@davidtuller1 Apart from the lying my favorite part is they claim to understand PEM, but then do this:

“The intervention was informed by existing rehabilitation frameworks, which have shown promise in managing chronic fatigue syndromes.”

Except source 12? It’s about MS. Not ME 🤦🏻‍♀️

[Rhi @rhirhiarhii]

Wow we are almost at 1000 signatures now. Thanks for all those signing especially those on behalf of Megan 🥺 @MECFScomrade you’re still making the world a better place

[Todd Davenport @sunsopeningband]

Thanks,
@mecfscomrade. I just signed - will you join me? https://t.co/IEme8bNmEC

[@TheRealMcCoy aka Meghan @RipperMD41]

The news about Megan @MECFScomrade is crushing.

All I can think about is how much the medical system failed her.

[Dfrizz @Dfrizz007]

I just saw this on Facebook. I'm fucking gutted right now. Gutted

Megs please tell me this isn't true

[@TheRealMcCoy aka Meghan @RipperMD41]

@Naomi_D_Harvey I do this way too often.

[Adam @ABrokenBattery]

Apologies are extremely rare in the world of ME/CFS, so it’s encouraging to see such a good example of someone acknowledging a mistake, taking responsibility and implementing a solution. This is how you write an apology. I’d like to see more of this, please.

[@TheRealMcCoy aka Meghan @RipperMD41]

@haziethompson ❤️‍🩹🫂

[@TheRealMcCoy aka Meghan @RipperMD41]

Any #pwME use Lumia?

Do you find it helpful?

How does it compare to other wearable tech you tried?

#MECFS #Dysautonomia #POTS

[@TheRealMcCoy aka Meghan @RipperMD41]

@CureLongCovid @HarryLeeming Unfortunately these biopsychosocial (BPS) researchers are entrenched in the ME world.

It’s taken decades of patients fighting against them to turn the tide and get research to focus on physiology and not just psychology.

Chalder’s history

https://t.co/Vopy48Cv6E