Rosenau Family Research Foundation

Improving the lives of children by working to promote the expansion of newborn screening, and to further education, awareness and research of Krabbe disease and

[Rosenau Family Research Foundation @Rosenau_Fdn]

What is the work Dr. Lee is doing with his grant funding?

View the complete interview: https://t.co/9qa0vppg4R

Learn more about Dr. Lee’s grant work: https://t.co/LOAhV7NSHV

[Rosenau Family Research Foundation @Rosenau_Fdn]

Meet Heather Techmeier, who comes to RFRF with more than 10 years of corporate experience in finance. Heather was also appointed Finance Director for RFRF in 2018.

Learn more about our team at https://t.co/4tmhxetj3f.

[Rosenau Family Research Foundation @Rosenau_Fdn]

How did Dr. Chris Lee get involved with Krabbe disease research, and how did he hear about Rosenau Family Research Foundation's grant program? 

View the complete interview: https://t.co/9qa0vppg4R

[Rosenau Family Research Foundation @Rosenau_Fdn]

What drew Dr. Chris Lee towards becoming a scientist and researcher?

View the complete interview and learn more about Dr. Lee’s grant work: https://t.co/LOAhV7NSHV

[Rosenau Family Research Foundation @Rosenau_Fdn]

Meet Gillian Hauboldt, who, in addition to being on the RFRF Investment Committee, joined the RFRF Board of Directors in 2022. She works as a senior accountant with Michel M Koscinski CPA in New Berlin, WI.

Learn more about our team at https://t.co/knTW86Hw6F.

[Rosenau Family Research Foundation @Rosenau_Fdn]

Meet Bradley Vick!

Learn more about Brad and our whole team at https://t.co/knTW86Hw6F.

[Rosenau Family Research Foundation @Rosenau_Fdn]

- Experienced in relevant fields such as investment, accounting, banking, financial planning, corporate finance, or non-profit financial sector

Email [email protected] about joining the Investment Committee, or with any questions.

[Rosenau Family Research Foundation @Rosenau_Fdn]

Rosenau Family Research Foundation is looking for individuals for our Investment Committee who are:

- Committed to RFRF’s mission
- Thoughtful in their approach to working with others and challenging the foundation
- Interactive and engaged
- Inquisitive & personable

[Rosenau Family Research Foundation @Rosenau_Fdn]

This month, we are featuring Chris Lee, PhD, who was awarded a $375,000 Rosenau Family Research Foundation grant in 2025.

Learn more about Dr. Lee's grant work: https://t.co/LOAhV7NSHV

[Rosenau Family Research Foundation @Rosenau_Fdn]

We honor Sue's remarkable legacy with gratitude and a renewed commitment to advancing research, supporting families, and bringing hope to those affected by Krabbe disease and Cystic Fibrosis. Her impact will never be forgotten.

[Rosenau Family Research Foundation @Rosenau_Fdn]

On July 31st , we honored the passing and remembered the life and legacy of Sue Rosenau, Co-founder and Chief Operating Officer of what was then The Legacy of Angels Foundation, now Rosenau Family Research Foundation.

[Rosenau Family Research Foundation @Rosenau_Fdn]

Sue's tireless dedication and unwavering commitment transformed the rare disease community, creating meaningful, lasting change that continues to impact families today. Her vision and compassion remain at the heart of our mission, inspiring us every day to carry her work forward

[Rosenau Family Research Foundation @Rosenau_Fdn]

What are both the best and most challenging parts of Natalia Gomez-Ospina's job? 

Learn more about Natalia's work: https://t.co/a8SZjb8lNq

[Rosenau Family Research Foundation @Rosenau_Fdn]

What about Natalia Gomez-Ospina's work gives her hope? 

Learn more about Natalia's work: https://t.co/a8SZjb8lNq

[Rosenau Family Research Foundation @Rosenau_Fdn]

How did July’s featured investigator, Natalia Gomez-Ospina, MD, PhD, become involved in rare disease research.

Learn more about Natalia's work: https://t.co/a8SZjb8lNq

[Rosenau Family Research Foundation @Rosenau_Fdn]

How July’s featured investigator, Natalia Gomez-Ospina, MD, PhD, heard about RFRF’s grant program.

Learn more about Natalia's work: https://t.co/a8SZjb8lNq

[Rosenau Family Research Foundation @Rosenau_Fdn]

A brief overview of the project that July’s featured investigator, Natalia Gomez-Ospina, will be working on with her grant funding. 

Learn more at: https://t.co/20kY7nKBq0

[Rosenau Family Research Foundation @Rosenau_Fdn]

Rosenau Family Research Foundation is seeking candidates to fill additional roles on our Board of Directors!

Express your interest and learn more: https://t.co/ufWYQDTSPZ

[WashU Medicine Endocrinology @WashUMedEndo]

Congratulations to Dr. Jeffrey Millman on receiving support from the Rosenau Family Foundation to understand why people with cystic fibrosis develop diabetes and to identify new therapies: https://t.co/vDHd7nPVLS. @JeffreyRMillman

[Rosenau Family Research Foundation @Rosenau_Fdn]

Learn more about Dr. Brett and his RFRF grant: https://t.co/6AjpysPkKX

Access the entire 2025 Annual Report here: https://t.co/a7UrQUCCcp