SADS Channel

News of interest and current research on SADS conditions

[SADS Channel @SADSChannel]

In an effort to streamline our social media, we'll now be using the SADS Foundation Twitter account.
Please follow @SADSFoundation!

[PACES Pediatric and Congenital EP Society @PACESep]

Do you run?
Can you walk?
Are you interested in supporting research in pediatric and congenital EP?
Are you going to #HRS2020 in San Diego?
Then join us for the inaugural @PACESep 5K run/walk on Friday, May 8th at 6AM.
Register here! #Epeeps @HRSonline
https://t.co/891AQZdJrV

[SADS Channel @SADSChannel]

Safety Alert: Subset of Medtronic #pacemakers
https://t.co/V2ier7g3zk

[SADS Channel @SADSChannel]

This week the #SADSspotlight is on Lauren and Avery Hannah, who live with #LQTS.

Read the post on our blog here:
https://t.co/HiYASpiE9L

[SADS Channel @SADSChannel]

"You never know what beauty can be found in our darkest moments."
~Kennedy Cooper #CPVT
Read the latest post on our blog here:
https://t.co/5T4KRoM69o

[SADS Channel @SADSChannel]

"Autoimmune and inflammatory #channelopathies have long been neglected but now represent an increasingly recognized mechanism for cardiac arrhythmias."
https://t.co/iSyhsOBr6U

[Jon Silva @JonSilva_StL]

Predicting Patient Response to the Antiarrhythmic Mexiletine Based on Genetic Variation: Personalized Medicine for Long QT Syndrome | Circulation Research https://t.co/aPml2KN12H

[SADS Channel @SADSChannel]

"But even more important, Sofia no longer felt alone.  She found her tribe."
Read Shawna's blog post about her daughter's experience at @Camp_Taylor.
#LQTS #CPVT #FindYourTribe
https://t.co/wIncAShLMP

[SADS Channel @SADSChannel]

Read the story of the brave and beautiful Samantha learning to live with #LQTS and an #ICD on the SADS Channel blog.

https://t.co/8AjuyZyDHJ

[SADS Channel @SADSChannel]

Family relationships, especially communication frequency, are critical factors in family communication of genetic risk.
https://t.co/0cIZN69iWX

[SADS Channel @SADSChannel]

Get your #FamilyHealthHistory kit from SADS today!
Take advantage of the holidays and this special time with family to gather information from your relatives about your medical history.
https://t.co/Z134IGxpKW

[SADS Channel @SADSChannel]

"As someone living with rare, chronic illnesses, I should not be forced to choose btwn quantity of life & quality of life. However, I am hopeful that the risks I take will be worth it."
Read @ggalexis12 's article on living with #LQTS + #SolarUrticaria.
https://t.co/xt261kAI0B

[SADS Channel @SADSChannel]

Recent Advances in #SQTS

[Frontiers in Cardiovascular Medicine @FrontCVMedicine]

Recent Advances in Short QT Syndrome: Oscar Campuzano, Georgia Sarquella-Brugada, Sergi Cesar, Elena Arbelo, Josep Brugada, Ramon Brugada https://t.co/s1FO8XttQO

[STAT @statnews]

“Families are a really valuable, but sometimes underrecognized, part of care." https://t.co/wUWw5HLVCD

[SADS Channel @SADSChannel]

Do you know your #FamilyHealthHistory? Help @GeneticAlliance learn more by taking a very brief survey: https://t.co/EKuUWuJWia

[SADS Channel @SADSChannel]

Today is #WorldwideCandleLightingDay. Light your candle at 7 pm local time, to honor the memories of lives lost too soon.
More information on this event can be found here:
https://t.co/8CM9FSeyz3

[SADS Channel @SADSChannel]

We’re passionate about #FamilyHealthHistory, esp. during the holiday season. Help us work with @GeneticAlliance serve you better. https://t.co/EKuUWuJWia

[SADS Channel @SADSChannel]

Those who were at #SADSConf2018 had the honor of hearing Mary Hickey- @mhickey1945 - tell her family's story of #LQTS. It is now a post on our blog. We are so proud to shine the #SADSSpotlight on this incredible & resilient woman!
Read Mary's post here: https://t.co/tSAGhpurF2

[SADS Channel @SADSChannel]

"These findings reclassify BrS as a combination of structural and electrical defects opening the way to new risk stratification and therapeutic strategies."
#Brugada

[JACC Journals @JACCJournals]

Little is known about the prevalence and significance of structural abnormalities in #Brugada Syndrome. #JACC study addresses this important topic: https://t.co/2NjKTo5G3N. @mauripieroni72

[SADS Channel @SADSChannel]

A review of the current ECG systems used in clinical trials and the new ECG technologies enabling siteless #clinicaltrials that need #ECG testing
https://t.co/n3FMB6hcSg