SBS Cure Project

Seeking new Treatments + Cures for Short Bowel Syndrome + Intestinal Failure while educating our fellow SBS/IF brothers + sisters about their treatment options.

[SBS Cure Project @SBSCure]

Travel Grants are available for upcoming conferences!!
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Need help getting to educational conferences or specialized care? Simply print the application below, and submit via email or fax # on the form.
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We look forward to hearing from you!!

The SBS Cure Project Team

[SBS Cure Project @SBSCure]

TODAY | Free webinar on omega-3 fatty acids in parenteral nutrition: focus on critical care and major surgery. If you can't make the 10AM webinar, join for a rebroadcast with live Q&A at 3PM ET. Register here: https://t.co/kH5E34wvzN

#Shortbowelsyndrome

[SBS Cure Project @SBSCure]

This is an older article but the issue is evergreen.

"How to fight an outrageous medical bill, explained"

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis #ibdawareness #ibs #chronicillness

[SBS Cure Project @SBSCure]

TECHNOLOGY x SBS | Here are some apps that will help you stay engaged with hydration. Disclaimer: Seek medical advice from your physician.

https://t.co/r4fGw4v11S

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis #ibdawareness #ibs

[SBS Cure Project @SBSCure]

CLINICAL TRIAL - RECRUITING| "Pilot study looking at the effect on Liraglutide in the reduction of parenteral support in patients with short bowel."

More info 👉 https://t.co/2WlHVZME4g

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis

[ASPEN @ASPEN_nutrition]

WEBINAR TOMORROW: Join us for "Refeeding Syndrome: New Consensus Recommendations" at 3:30 PM ET. It's not too late to register! https://t.co/zp19Rdw33U

[SBS Cure Project @SBSCure]

IBD x SEPSIS | "IBD patients with severe infections, abscess, or sepsis are ineligible for standard treatment using biological and immunosuppressive drug regimens. " More 👇

https://t.co/oo8QGzLeDx

From our friends at JPEN.

#shortbowelsyndrome #intestinalfailure

[SBS Cure Project @SBSCure]

This clinical trial studies Immune Regulation in Ulcerative Colitis or Crohn s Disease. Sponsored by the National Institute of Allergy and Infectious Diseases. 👉 https://t.co/UM20QJsqbw

#shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis

[SBS Cure Project @SBSCure]

INNOVATION x HOPE | "RECOVERY" is an acronym for Randomised Evaluation of COVID-19 Therapy; is a model for learning faster about what works."

@WSJ oped by @ScottGottliebMD 🙏🙏🙏

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease

[SBS Cure Project @SBSCure]

REMINDER | Oley Foundation Conference WOULD have been last weekend but this year, due to COVID, will be held Virtually on August 3 & 6. For more information 👇.

https://t.co/9WHPeNULoz

#ibd #shortbowelsyndrome

[SBS Cure Project @SBSCure]

PEDIATRIC RESOURCE | "Cases and Commentaries in Pediatric Short Bowel Syndrome" with @CHPtransplant , and faculty P. Wales, and Y. Avitzur. Register: 👉 https://t.co/j7WOcItYMV

SBS Cure ProjectSBSCure

#shortbowelsyndrome

[SBS Cure Project @SBSCure]

Mark your calendars. Parenteral Nutrition support group Zoom chat 👇
https://t.co/b3gIeMs4J3

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis #ibdawareness #ibs #chronicillness #ibdwarrior #invisibleillness #crohnswarrior #

[PIFRS PEDSINTESTINE @PifrsP]

Supported by an Independent Educational Grant from @TakedaPharma with @CHPtransplant Dr. George Mazariegos, @paulwalesGIFT Paul Wales, and Yaron Avitzur
Register at https://t.co/p5RWvxBRek
*Developed in partnership with @ChildrensPgh and @SickKidsNews with @MedscapeCME

[PIFRS PEDSINTESTINE @PifrsP]

Join us virtually at the 11th International Pediatric Intestinal Failure and Rehabilitation Symposium on June 26th from 1:35-2:35 PM for a CME/CE program, Cases and Commentaries in Pediatric Short Bowel Syndrome - A Virtual Symposium @MedscapeCME

[SBS Cure Project @SBSCure]

What if we provided you with the same #shortbowelsyndrome updates you love, but in a podcast and video format (along with relevant visuals) - would you tune in?

Comment below👇

#ibd #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis

[SBS Cure Project @SBSCure]

CLINICAL TRIAL - RECRUITING | "A Study of the Efficacy, Safety and Tolerability of Enteric-Coated Cholestyramine Capsules for Adult Short Bowel Syndrome" https://t.co/t2F5VZHyBx

Responsible Party: Pharmascience, inc.

Disclaimer: This is NOT medical advice.
#shortbowelsyndrome

[SBS Cure Project @SBSCure]

Catheter Care is self-care. Here are some helpful resources from our friends at the Oley Foundation.

https://t.co/0tMESelirS

#ibd #shortbowelsyndrome #intestinalfailure #crohns #crohnsdisease #colitis #ulcerativecolitis

[SBS Cure Project @SBSCure]

RESOURCE | There are 4 types of intestinal transplant: isolated intestine, liver-intestine, modified multivisceral, and multivisceral. To see a visual of each visit: https://t.co/F9QjVNeQTO

From our friends at https://t.co/TIiM4Kjn8e

#shortbowelsyndrome #intestinalfailure

[Snow Companies @SnowCompanies]

Swapna's advice to those living with a rare disease? "Find your
rare disease family. Find your champion in your disease. Learn from them. Find your community. Lean on them."
Don't miss her on #iampatient tomorrow.
#shortbowelsyndrome #shortgutsowhat #raredisease

[SBS Cure Project @SBSCure]

RESOURCE | COVID-19 is a novel virus that is even scarier for immunosuppressive individuals like intestinal transplant patients. Here's a resource to learn more

#intestinaltransplant #gutrehab #gutsy #donatelife #shortbowelsyndrome #intestinalfailure

https://t.co/Po82IcUawp

[SBS Cure Project @SBSCure]

New Resource | Transplant Unwrapped: Kayla Pfabb felt that she could have received better care if there was better knowledge available regarding intestinal transplants. Hence, transplant unwrapped was born. Follow them on twitter, they are going to do big things! @TxUnwrapped