SBSK Moderator and Board Member. Co-Chair for the Arc Jacksonville Young Professionals Group. Advocate for the intellectual and developmental disabled community
Drew is diagnosed with Down syndrome and communicates using sign language. His younger sister, Alex, has always wanted to be Drew's caregiver when they get older. Now that the two are adults, they are making plans to live together and share bunkbeds. https://t.co/QLsW8AE9Ai
When @Lin_Manuel and Alex Lacamoire were invited to perform at the White House by President @BarackObama in 2009, Lin took the mic and didn’t throw away his shot.
That night, the world got a glimpse into what would later become the history-making Broadway show, #Hamilton.
Jadiant survived a fire and was put into a medically induced coma. Months later he awoke to a new reality in which others called him a “monster” and threw rocks at him. After years of struggle, Jadiant has learned to love himself. Full interview at https://t.co/lsuzrP0VXk.
During this hectic time, I believe it is vital to check in on the mental health of our friends and family. This is the first episode of our new “How Are You?” series. I called my friends Ruby and Angie to make sure they were well. Full interview at https://t.co/xBuq4cL8xQ
Turner is diagnosed with Down syndrome and his brother has promised to always protect him. Now that the world is facing a pandemic, Griffin is fulfilling his promise by making sure Turner is safe while they are stuck at home together. Full interview at https://t.co/BLW5D37N6J
I wish @chrisulmer can have this @TeamYouTube I’m a huge supporter of Special Books by Special Kids. Unfortunately their videos are disabled from comments even on adults with disability stories including my story.
Do any of my YouTuber friends have examples of their comments being auto disabled when a child appears? I was told the tech to automate this didn't exist by @ytcreators but am now being sent many examples that suggest otherwise.
Traveled to five states the last week and filmed lots of interviews. Multiple flights and hour long drives each day. I feel exhausted, but also have achieved this rare sense of contentment that can only come with exerting yourself in pursuit of a passion. Loving it!
See @BarackObama for a great list of this year’s books, movies, songs — also here are my fav YouTube channels of the year/decade:
SBSK by @chrisulmer
Nerdwriter
Crash Course
Khan Academy
Tasty
Minutephysics
And please comment with your own — always seeking more!
I feel so happy right now. Beginnings of each year always cause me to reflect. I'm editing the first video for 2020 and thinking about how I'm able to dedicate myself to SBSK for another year. I am enjoying the process more than ever and appreciative that this is possible.
Ken survived a fire that burnt over 80% of his skin. Now an adult, he starts each day by reflecting on how he is grateful to be alive. Full video at https://t.co/HViBX9Pb20
As 2019 comes to an end I am equal parts grateful for each friendship I formed this year and eager to continue in 2020. I wanted to briefly let each person I met this year know that I value our bond and feel grateful that we met!
Halle is diagnosed with Pfeiffer syndrome and is often ignored by other children. Her parents want the world to know that it is okay to say “Hi” to Halle and be her friend. Full interview at https://t.co/rvWuo7hV2n
So much to be thankful for this holiday season including catching up with some old friends. Now off to the other side of the country to form new bonds and friendships. Grateful for every person I've met over the years.
Dave is diagnosed with Coffin-Lowry syndrome. This rare genetic condition makes it difficult for him to walk, talk and live independently. If he had one wish, Dave would want to "smile and stay happy". Full interview at https://t.co/yn2HQVu2Zr