SCDAA

The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.

[SCDAA @SCDAAorg]

Calling all sickle cell caregivers! The 6th Annual Sickle Cell Disease Caregiver Summit starts this Friday. Session topics include caring for the caregiver, mental health and wellness, establishing a community and more. Don't miss this special event! 🔗 https://t.co/1VzvMBiLnr

[SCDAA @SCDAAorg]

SCDAA's Advocacy Update for Q3 is out now! Get the latest on recently reintroduced SCD legislation, resources on Medicaid and work reporting requirements, the Inaugural Congressional Sickle Cell Disease Caucus Briefing and more ➡️ https://t.co/4DzlrY6d1k

[SCDAA @SCDAAorg]

Stay tuned for more information!

[SCDAA @SCDAAorg]

🗳️ Elections can come with big changes! While the results of the November 3 midterm elections are still coming in, it is clear that the Democrats will hold the majority in both the House and the Senate in the next Congress.

[SCDAA @SCDAAorg]

The 119th Congress still has two months left and will need to address funding for fiscal year (FY) 2027. Currently the government is operating under a short-term funding bill that expires December 11.

[SCDAA @SCDAAorg]

Meet the newest members of the SCDAA board of directors! These dedicated individuals will bring new perspectives to our organization, and we are excited to see where they lead us as we continue our work on behalf of the #sicklecell community. Welcome, all, to SCDAA! 👏

[SCDAA @SCDAAorg]

⏰ TOMORROW! Don't miss our free Blood Transfusions and Iron Overload in Sickle Cell Disease webinar, presented in partnership with @ChiesiGRD.

📅 Nov. 5
🕛 12-1 p.m. ET
📍 Virtual
🗣️ Feat. Dr. Anish Chackochan
🔗 https://t.co/yTUDUYLjt9

[SCDAA @SCDAAorg]

Sickle Cell Voices Shaping Change survey responses are requested by Friday, November 13! 🔗 https://t.co/AOknneLDve (for SCD warriors and caregivers only)

[SCDAA @SCDAAorg]

🚨 Webinar alert! Join SCDAA and @ChiesiGRD for a presentation on Blood Transfusions and Iron Overload in Sickle Cell Disease.

📅 Thursday, November 5
🕛 12-1 p.m. ET
📍 Virtual
🔗 https://t.co/yTUDUYLjt9

#SickleCell #IronOverload #BloodTransfusion

[SCDAA @SCDAAorg]

Join @SCCConsortium for the Project Smile 5K & Fun Run, Sat., Oct. 31, in Dallas, Texas, or virtually. Register: https://t.co/WxcZug6igW #SC3ProjectSmile26 #SickleCell

[SCDAA @SCDAAorg]

Thank you to @beamtx and @csl for sponsoring our 54th Annual National Convention, happening now in Concord, North Carolina. We appreciate your support!

#SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Day Three is here! How are you planning to make the most of our final day in North Carolina? Let us know in the comments!

#SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Thank you to @cvshealth, @genetix_biotx and @sanofi for sponsoring our 54th Annual National Convention, happening now in Concord, North Carolina. We appreciate your support!

#SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Day Two of convention is flying by! Check out this snippet from today's "Summit on Stem Cell Transplant and Cellular Therapies." Sebastien Beauzile joined our medical experts on stage to share how the treatment has impacted him. @ASH_hematology @ASHCollab

#SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Good morning! 🌞 Day Two of the 54th Annual National Convention is here. What are you most excited about today? Let us know in the comments!

#SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Thank you @VertexPharma for sponsoring our 54th Annual National Convention, happening now in Concord, North Carolina. We appreciate your support! #SCDAAHOPE #SCDAA2026

[SCDAA @SCDAAorg]

Do you want to help shape the future of treatments for sickle cell disease (SCD)? Please take our 10-minute EL-PFDD survey for sickle cell warriors and caregivers ➡️ https://t.co/AOknneLDve

[SCDAA @SCDAAorg]

Joining us this week at convention? Make sure to say hi to our staff and volunteers! Anyone wearing an “Ask Me” pin is here to help. You can also review our FAQs here ➡️ https://t.co/yUt5AGoTrN #SCDAAHOPE #SCDAA2026