SCDAA

The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.

[SCDAA @SCDAAorg]

⏰️ The COUNTDOWN is ON! 2️⃣ weeks until the SCDAA Sickletini Happy Hour!

Recognize World Sickle Cell Day with the SCDAA National Office during this free, virtual event. Register today ➡️ https://t.co/JSatfWLmnZ

#WorldSickleCellDay #ShineTheLight #SickleCellMatters

[SCDAA @SCDAAorg]

🚨 ALERT: There is less than ONE MONTH LEFT to submit your work to the SCDAA 2026 National Abstract Competition! 🚨

We want to highlight your work during our Annual National Convention! Submit your research before the deadline to be considered: https://t.co/HDWnlaWLpM

[SCDAA @SCDAAorg]

World Sickle Cell Day is almost here – are you ready to Shine the Light? 💡 🔴

Take part in this global day of awareness ➡️ https://t.co/HDdHqz1X3C

#WorldSickleCellDay #ShineTheLightOnSickleCell

[SCDAA @SCDAAorg]

🗣️ May is #MentalHealthAwarenessMonth. SCD has obvious impacts on your physical health, but it's important to remember that it can impact your mental health as well. Explore the "I Believe in Therapy Toolkit" to learn more ➡️ https://t.co/ZpIRBqBpcs

[SCDAA @SCDAAorg]

Want to learn more about clinical trials? Visit the SCDAA Clinical Trial Finder to find research opportunities near you ➡️ https://t.co/hQFxPHk6Lj

[SCDAA @SCDAAorg]

Today is #ClinicalTrialsDay 🔬

Elisha is a sickle cell trailblazer who successfully completed a gene therapy trial. Hear her story and learn what the journey through a clinical trial looks like – and why it matters ➡️ https://t.co/ticZXEOLqj

#SickleCellMatters

[SCDAA @SCDAAorg]

You're invited! The SCDAA Sickletini Happy Hour is back again this year - and we're excited to return to a virtual format! 🍸️

Learn more ➡️ https://t.co/vjKNqL31GG

#SickleCellMatters

[SCDAA @SCDAAorg]

⚠️ Last chance to register! SCDAA Summer CHW Training starts on Monday. Learn more and register ➡️ https://t.co/qLyEmy6wBS

#CommunityHealthWorker #SickleCellMatters

[ASH @ASH_hematology]

ASH looks forward to tuning in to hear @DrAlexisThompsn, Chair of ASH's Sickle Cell Disease (SCD) Task Force, Dr. Edward Donnell Ivy, Chief Medical Officer of @SCDAAorg , and colleagues from @MinorityHealth discuss the importance of comprehensive care for sickle cell disease.

[SCDAA @SCDAAorg]

34 meetings on Capitol Hill. 13 SCDAA member organizations in D.C. Two days of incredible impact 🫶 Thank you to everyone who joined us last week for our 2026 Advocacy Days!

#BeASickleCellAdvocate #SickleCellMatters

[SCDAA @SCDAAorg]

Save the date to help SCDAA drive change and enjoy a day out on the green!

⛳️ 2nd Annual SCDAA Golf Classic
📅 September 11, 2026
📍 Douglasville, GA
🕗️ Check in at 8 a.m.
🏌️ Shotgun start at 9 a.m.
🔗 https://t.co/gBT7B5SDbc

#SickleCellMatters

[SCDAA @SCDAAorg]

📰 SCDAA Chief Medical Officer Dr. Edward Donnell Ivy recently spoke with The Baltimore Banner about the promise of gene therapy and the many barriers to accessing treatment. Read now ➡️ https://t.co/4WSvmCNl89 #SickleCellMatters

[SCDAA @SCDAAorg]

📅 P.O.W.E.R. ECHO Training date change‼️Please note that the P.O.W.E.R. ECHO Training session that was previously scheduled for May 14 will now be held on May 28 at 12 p.m. ET. 🔗 to register ➡️ https://t.co/WlLBVN938C

#SickleCellMatters

[SCDAA @SCDAAorg]

Register today! The NHLBI and SCDAA are excited to partner and host a free community forum open to the public. “Research That Heals: Partnering with Patients to Transform SCD Care” will be held June 25-26, 2026. Learn more ➡️ https://t.co/fmi3k976zv

[SCDAA @SCDAAorg]

The 2026 SCDAA National Abstract Competition is open! 🙌 Calling all researchers, community-based organizations, physicians, nurses, social workers & beyond! Your sickle cell research could be presented at the SCDAA Annual National Convention in October ➡️ https://t.co/Q5GdiqfzI6

[SCDAA @SCDAAorg]

Are you an individual with sickle cell planning the next step in your education? Check out Pfizer's Sickle Cell Scholarship Program! 📖 🎓️ Learn more and apply ➡️ https://t.co/zlzVwFpWGA

[SCDAA @SCDAAorg]

SCDAA is pleased to hear this news. We will continue to monitor these developments and look forward to learning more about the results of this study. (2/2)

[SCDAA @SCDAAorg]

📰 Breaking News! Novo Nordisk announced that Etavopivat is the first in a new class of drugs to meet both co-primary endpoints in the phase 3 HIBISCUS trial, substantially reducing vaso-occlusive crisis events & improving hemoglobin response in SCD. (1/2) https://t.co/8E2R2gYi9r

[SCDAA @SCDAAorg]

Our final 2025 SCDAA Masterclass (hosted by agios Cheat Codes) is now live! 🎉

Recorded live at the 2025 SCDAA Convention, this Masterclass dives into how sickle cell disease is portrayed in film, TV & beyond.

Watch ➡️ https://t.co/WFuPnf3PaD @BloodStrmMedia

[SCDAA @SCDAAorg]

What is does it mean to have "radical hope?" Find out from Jolene Swain, MSW, during the next session in our "Being a Radical Community Health Worker (CHW)" webinar series.
📅 May 14
⏰ 12 p.m. ET
📍 Virtual
🔗 https://t.co/FK5RXUJzNh

#SickleCellMatters