SEDSConnective

Charity - Hypermobility EDS/ GJH MCAS POTS Allergies GI NEURODIVERGENCE AuDHD Dyspraxia TS Dyslexia +
Chair @JGJanegreenMBE / Patrons Dr Eccles, Dr Spiritos

[SEDSConnective @SEDSConnective]

Strange or utterly makes sense!

Did you know some of the connections with hypermobility and neurodivergence ?
#EDS #HSD #neurodivergent

[SEDSConnective @SEDSConnective]

For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective

[SEDSConnective @SEDSConnective]

Some of the amazing SEDSConnective stands we've hosted, covering topics such as Autism, ADHD, Musculoskeletal events, therapies and interventions in physical health, sleep, diet, education and peer to peer support.

These events are incredibly rewarding, but they can also be exhausting! We couldn't do it without the dedication of our amazing volunteers and the support of our community.

A huge thank you to every one of our incredible volunteers! 💛

https://t.co/nLdeZdzOiY
#Neurodivergence #Hypermobility

[SEDSConnective @SEDSConnective]

Thank you !

[limbostate @limbostate1]

@_Chris_Coghlan The main thing is false accusations we were told we were harming our daughter. But she had EDS only thing saving us was research by @SEDSConnective

[SEDSConnective @SEDSConnective]

The ‘BEOND’ survey is now open!

The survey is open to parents / caregivers of autistic children and adults with co-occurring intellectual disabilities. The survey takes about 60 minutes to complete, which can be done online or via post. Every family will receive a personalised feedback report after completing the survey.

@CerebraNetwork
The survey will run for the next 20 years. Families are welcome to take part every couple of years to see how their answers have changed with time. By collecting data over many years, we hope to get a much better insight into how individuals develop over time.

👉 You can learn more and take part here: https://t.co/6ENtpc3foq

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

This matters
K Lisa Yang Centre is focusing on community shaped priorities for physical health &life expectancy.
Exactly what @SEDSConnective championed since 2018
We'd welcome the conversation
Now let's change the future @sbaroncohen @guardian
#Hypermobility #neurodivergence

[SEDSConnective @SEDSConnective]

We're delighted Jane Green MBE has been appointed as a SHCRP Public & Community Adviser.
For SEDSConnective, meaningful research is shaped not only by researchers and clinicians, but by the lived experiences of the communities it aims to serve.

Through SEDSConnective, Jane brings the voices of thousands of people in the UK and worldwide living with symptomatic hypermobility, Ehlers-Danlos syndromes (EDS), HSD, neurodivergence and associated conditions. Those voices, experiences and priorities can help inform and strengthen future health and care research.

Congratulations to everyone appointed. We look forward to seeing public and community involvement continue to shape research that matters.
Find out more about Public & Community Involvement and Engagement (PCIE) @JGjanegreenMBE https://t.co/XjcG64gimu
#HealthResearch #PCIE #PublicInvolvement #Community #Hypermobility #EDS #HSD #Neurodivergence

[SEDSConnective @SEDSConnective]

@JGjanegreenMBE Wonderful news for everyone !

[SEDSConnective @SEDSConnective]

Estrogen and thinking ability study !

✔ Females aged 18–40
✔ Regular menstrual periods
✔ Not using hormonal contraceptives
✔ Not given birth in the past 6 months

📍 3 online research sessions at different points in the menstrual cycle
🕒 Around 30 minutes each
📝 Health, mood, sleep questionnaires + thinking tasks

🎟 Participants will receive a £10 voucher upon completion.

This is an important opportunity to contribute to research improving our understanding of hormones, cognition and women’s health

Email [email protected] for more information.

[SEDSConnective @SEDSConnective]

Volunteer Facilitators Wanted – Join Our Team!
Are you confident using Zoom and Microsoft Teams? We'd love to hear from you!
We are looking for Volunteer Facilitators who can support our charity by helping to host online webinar sessions at regular times throughout the month.

This is a voluntary role, ideal for someone who:
- Is reliable and organised
- Is comfortable using Zoom and Microsoft Teams
- Enjoys supporting online events and helping people connect
- Can commit to regular monthly sessions

Please email [email protected] if you're interested 🙏

[SEDSConnective @SEDSConnective]

Please take a moment to watch this recent episode from our Patron featuring our founder Jane Green, sharing her journey.
Jane also speaks about our charity, the work we’re doing together and why we believe we’re helping to make history.
👉 https://t.co/92LlMDQDpp

[SEDSConnective @SEDSConnective]

It's #SmallCharityWeek2026 and we need your help 🙏
We might be small but we have a BIG heart ❤️
Every day, our phone rings and our inbox fills. People reaching out to us for support, information and someone who gets it.
£25 funds one hour of that support. Every hour we can give matters. All our team our volunteers

If you can please donate: https://t.co/NJhu0OtL3S
#SEDSConnective #Hypermobility #Neurodivergence @smallCharityWeek

[SEDSConnective @SEDSConnective]

A welcome read from @guardian today on neurodivergence and a connection to neurodivergent older age diagnosis.
At @SEDSConnective we've spent eight pioneering years joining the dots ( Autism, ADHD, dyspraxia, dyslexia dyscalculia Tourette's +)and symptomatic hypermobility (EDS/HSD dysautonomia, GI Allergies +) as one whole-system picture body/brain

It's never too late....♾🦓
Support us 🙏
#Neurodivergence #Hypermobility https://t.co/XJ28mIIgks

[SEDSConnective @SEDSConnective]

Think it might be more than the brain !
@BBCNews #adhd #hypermobility
Talk to us !
https://t.co/yvSmwBXyK6

[SEDSConnective @SEDSConnective]

📢PhD research. We are delighted to say 😃

The parent/carer part is completed. Now only looking for a few more young adults aged 18-25

Can you help? Are you Autistic or ADHD and formally diagnosed?

✳️Do you have a formal diagnosis of hEDS, HSD or generalised Joint Hypermobility (GJH) diagnosed OR ...

✳️been told it is likely you have these by a professional health medical practitioner?

✳️Were you in mainstream education secondary school for at least one year?

✳️You have no learning or intellectual disability

✳️Are you 18-25

Scan QR code or go to https://t.co/jcBiSc4Dmv

Email [email protected] ethics approved.

#education #neurodivergence #health

[SEDSConnective @SEDSConnective]

Heat-induced neurological dysregulation
Sounds clinical Feels like wanting to throw your laptop out of the window?
When it's really hot, your body and brain are working harder just to keep your temperature stable (homeostasis) which means less capacity for everything else
Emotional regulation Patience Clear thinking Mood
Irritability spikes - Reactions get faster and harder to catch
Mood dips in ways that feel personal but aren't

This is not a character flaw
It's what happens when your whole system is running hot, literally
Name it. Heat rage is real. And it will pass when the temperature does 🙂

[SEDSConnective @SEDSConnective]

We are the first charity for neurodivergence and hypermobility est 2018

[SEDSConnective @SEDSConnective]

New research just dropped and it matters.

“Beyond bendy joints: number of variant connective tissue features predicts neurodivergent characteristics in hypermobile individuals with anxiety”

99 hypermobile adults with anxiety, none previously diagnosed as neurodivergent, were screened for autism and ADHD. Nearly half screened positive for autism. One in five for ADHD.

But here is the key finding:

The more connective tissue features someone had, the stronger their neurodivergent traits and sensory differences. More features. More traits. A measurable relationship.
Your joints, your sensory experiences, your nervous system, your neurodivergence. They are not separate systems. They never have been. They are the same picture.

This is what SEDSConnective has been saying since 2018 and some of us even earlier! Here is more of the evidence. We are so grateful to the researchers and participants whose work continues to advance understanding in this important area: Lisa Quadt, Jenny Csecs, Georgia Savage, Geoff Davies, Parashar Ramanuj, Alan J Hakim (adviser) , Nick Grey, Hugo D Critchley and Jessica Eccles aka @drbendybrain our Patron.

#BSMS #ArthritisUK #MQ #MentalHealth
#Hypermobility #Neurodivergence #hEDS #ADHD #Autism #ConnectiveTissue #Dysautonomia #Embodied

[SEDSConnective @SEDSConnective]

👉 https://t.co/5ItpvCETCx