Cerebra Network

Information resource from the Cerebra Network. A research network dedicated to improving the well-being of individuals with ID.

[Cerebra Network @CerebraNetwork]

Who is the Cerebra Research Network?

We are a unique academic team that integrates knowledge across four leading institutions, focusing on children with rare and complex syndromes. Click this link to learn more: https://t.co/iLlsbPtPoI

[Cerebra Network @CerebraNetwork]

🎙️ Our New #Podcast Trailer! 'Research to Reality in #RareSyndromes' launches later this autumn. Practical, evidence-based insights for #FamilyCarers & professionals on #autism, #mentalhealth, #sleep, #BehavioursThatChallenge & more.

Listen & subscribe: https://t.co/0WCDu942ZO

[Cerebra Network @CerebraNetwork]

Sharing this @centre_ub webinar which will be starting in less than two hours and features Dr @MarieDunnion revealing insights into our new upcoming #podcast series: 'From Research to Reality in #RareSyndromes' - watch this space for episodes being released from next month!

[CENTRE-UB @centre_ub]

Join us tomorrow for our first Coffee with Fellows
Date: 11th April Time: 11-12:30 pm.
Register here: https://t.co/znjlDCrnvW

[Cerebra Network @CerebraNetwork]

In support of #RareDiseaseDay, the Cerebra Network team @unibirmingham have popped on some @MedicsForRare stripy socks and displayed their posters to raise awareness for #raredisease - did you know that 3.5 million people in the UK live with a #RareCondition? #ShowYourStripes

[Cerebra Network @CerebraNetwork]

*Discussion Group Opportunity* For those thinking ahead to #2025, you may be interested in taking part in this #OnlineDiscussion group in January. Contact details for more information are contained in the post.

#RareGeneticSyndromes #FocusGroups #PPI #CerebraNetwork #Podcast

[Cerebra Network @CerebraNetwork]

❓ 'Are the resources you offer free?' 'Where can I access these resources?'

🙋 We are pleased to announce we have revamped our website. You can now find all FREE #CerebraNetwork resources in one place! Please follow this link to access our website: https://t.co/IcvOwIQmwm

[Cerebra Network @CerebraNetwork]

🤔 What is the #LaddersProject? A project developed in collaboration with parents/carers of autistic children, to help reduce anxiety for children during frequently encountered activities.

🌐 To learn more about the project, please follow this link: https://t.co/HM7u20dpf0

[Cerebra Network @CerebraNetwork]

Identifying #Pain in children with limited communication can be challenging. 

To download the #CerebraBeWellChecklist, please click here: https://t.co/yCk72AkFsz

To watch Dr. Kelly Wade explain the role of pain in affecting behaviour, please click here: https://t.co/Gxf4RL7mZH

[Cerebra Network @CerebraNetwork]

On #WorldMentalHealthDay, a reminder to parents caring for children with complex needs: your well-being matters too. 

Take the support you need—you don't have to do it alone. Here are some helpful resources. 💙 

#MentalHealthMatters

[Cerebra Network @CerebraNetwork]

Parenting is incredibly rewarding but can also be challenging at times when supporting a child with anxiety. 

Please follow this link to download the #BeWellChecklist: https://t.co/yCk72AkFsz

To watch the short video on anxiety and behaviour click here: https://t.co/yQpbIQdnJd

[Cerebra Network @CerebraNetwork]

Researchers @UniofOxford @UniOfSurrey @uclare are looking for volunteers (4-9 years) with #DownSyndrome #FragileXSyndrome #WilliamsSyndrome to join a study to better understand numeracy education. Intro video: https://t.co/E9qhdkQwm4. Contact [email protected] with questions.

[Cerebra Network @CerebraNetwork]

FREE @CerebraCharity Sleep Webinar on the 26th September (12:30 - 2pm): https://t.co/HHxCqIArhd

In this webinar, we will consider what #sleep is, why sleep problems occur more often in children with #GeneticSyndromes, and how to improve sleep.

[Cerebra Network @CerebraNetwork]

❓ Are you a person with a genetic syndrome? ❓

We need your help to improve a free teacher training resource focused on supporting children with genetic syndromes and intellectual disabilities in schools.

Interested? Email Katherine for more details at [email protected].

[Cerebra Network @CerebraNetwork]

Today is SATB2-associated syndrome Awareness Day.

You can learn more about our research from the YouTube video ‘Behaviours in SATB2-Associated Syndrome’ : https://t.co/aBYzyoQf0d

You can also learn more about SATB-2 on the SATB2 Gene Trust UK website: https://t.co/ADRYmhDIkj

[Cerebra Network @CerebraNetwork]

Last weekend, @CerebraNetwork attended/presented at the @Kleefstrasyndro Family Conference in Cheshire. These pics show one of the Network's Leads, Prof Caroline Richards (Clinical Psychologist, @RichardsLabUoB) speaking to families about understanding & reducing #SleepProblems.

[Cerebra Network @CerebraNetwork]

An excellent presentation from last week's @CerebraNetwork @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Here is @Drhayleytrower introducing the 'Be-Well Checklist: Thinking Differently About #BehavioursThatChallenge': https://t.co/ulXhPmntuO

[Cerebra Network @CerebraNetwork]

Following an impactful June, Kiran & @MarieDunnion once again enjoyed sharing a wealth of @CerebraNetwork resources at this @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Including @CerebraCharity Parent Carer guides & https://t.co/YQx6S3PDM3

[Cerebra Network @CerebraNetwork]

An excellent research presentation as part of our @CerebraNetwork @AstonUniversity event on improving outcomes for people with #LearningDisabilities. Here's Jess Hughes presenting @Autistica The Ladders Project (https://t.co/h3vBFYoaeS): Anxiety Strategies for #AutisticChildren.

[Cerebra Network @CerebraNetwork]

Today's @CerebraNetwork @AstonUniversity event has just started: 'Working together to improve outcomes for people with #LearningDisabilities.' Here's @Waite_Aston giving an overview of Aston/Cerebra Network #LearningDisabilityResearch to #HealthService clinicians & practitioners.

[Cerebra Network @CerebraNetwork]

July 3rd is Rubinstein-Taybi Syndrome (RTS) awareness day.

Please follow this link to learn more about our research and key facts: https://t.co/GEQZHqnnrf

[Cerebra Network @CerebraNetwork]

A huge thank you to @CdLSUKIreland for inviting us today to the the #CdLSFamilyFunDay at the #WestMidlandsCircusCentre. We had an amazing time getting to know families and children as well as having fun with silks and hoops, crafting, and a lovely picnic!