SHELLS

Establishing Effective Diagnostic Criteria for Lichen Sclerosus (SHELLS)

The SHELLS study aims to improve the diagnosis of vulval lichen sclerosus

[SHELLS @SHELLS_study]

Today is World Lichen Sclerosus Awareness Day! We are excited to share with you a new LS information website created by our study chief investigator, Rosalind Simpson in collaboration with many other specialists and patients!

Learn more about LS here:
https://t.co/wePtOZErOv

[SHELLS @SHELLS_study]

Merry christmas from the SHELLS study team!

[Sophie Rees @drsophierees]

WE WON! The LS Guide won an award for 'Communicating effectively with patients and families' at the Picker Experience Network National Awards last week. Our fabulous patient representative Clare Baumhauer @VulvalCancerUK also won for her individual patient contribution.
#PEN25

[SHELLS @SHELLS_study]

@VulvalCancerUK Congratulations Clare, so well deserved!

[SHELLS @SHELLS_study]

Over a third of the way there now for SHELLS study participants! We are so grateful to all those giving their time to this research

[SHELLS @SHELLS_study]

We are celebrating our 6 months of opening with the SHELLS study! Thank you to our recruiting sites and participants involved so far, we can't do it without you!

[SHELLS @SHELLS_study]

@VulvalCancerUK That's amazing!

[SHELLS @SHELLS_study]

We've reached 50 participants in the SHELLS study! Well done to all of our recruiting sites who are doing a brilliant job, let's keep up this great momentum!

[𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 @DrNighatArif]

BBC5 Live: That Time Of The Month: Spotlight on Lichen Sclerosis

https://t.co/RqR6gnWZug

Guess how many times we said “Vulva” and “Vagina” at lunchtime!??

We had such a massive response to this episode of That Time of the Month on BBC5 Live hosted by @TVNaga01 @DrEkechi and Me as we discussed everything about #lichensclerosus. We were joined by Clare Baumhauer founder of @LichenSclerosisUK & @VulvalCancerUK who shared her lived in experience

If anyone wants more information- here are list of trusted sources:

@WellbeingofWmen
https://t.co/dN5F7kLTRQ

Dedicated website in partnership with British Society of the Study of Vulval Disease, and the British Association of Dermatologists
https://t.co/cMwnyngByZ

@eveappeal
https://t.co/iQSHsa8lid

Click here to listen 🎧 to our episode 👇🏻
https://t.co/RqR6gnWZug

#WomensHealth #LichenSclerosus #TTOTM
Producer: @alisonacton

[Sophie Rees @drsophierees]

Ever wondered what happens to the skin in lichen sclerosus? Watch our video 'What is vulval lichen sclerosus?' https://t.co/U8GKj9AIa1 and visit https://t.co/O6I1yCUHUp

[SHELLS @SHELLS_study]

The new LS Guide launched a week ago today! Have any initial thoughts or feedback about the website? Follow this link to share: https://t.co/cDnhMthNl8

[Vulval Cancer UK Awareness @VulvalCancerUK]

17th January is World Lichen Sclerosus Day

[Sophie Rees @drsophierees]

Our Lichen Sclerosus Guide is now LIVE! It's an incredible resource for people with vulval LS and also for healthcare professionals who want to know more about how to diagnose and support people with this condition. Visit us at https://t.co/RTsSksaOEC

[SHELLS @SHELLS_study]

#LichenSclerosus #Dermatology #WomensHealth #VulvalDermatology #Gynaecology #Menopause

[SHELLS @SHELLS_study]

Today is World Lichen Sclerosus Awareness Day! We are excited to share with you a new LS information website created by our study chief investigator, Rosalind Simpson in collaboration with many other specialists and patients!

Learn more about LS here:
https://t.co/wePtOZErOv

[Sophie Rees @drsophierees]

This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a brand new resource for people who have vulval lichen sclerosus (LS). The aim is to empower people living with LS to learn about the condition, access the right treatment, and live more comfortably.

[Vulval Cancer UK Awareness @VulvalCancerUK]

This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a new resource for people who have vulval lichen sclerosus (LS), their loved ones, and health professionals who support them.
https://t.co/4C3qJ4mGsC

[SHELLS @SHELLS_study]

Merry Xmas and happy new year from the SHELLS team! We are closing the year with 9 research sites opened and 25 participants recruited. We look forward to making even more progress in 2025!

[SHELLS @SHELLS_study]

Following our second month opening, we have 23 participants recruited, and 8 sites opened!