Stéphanie Leclerc

Advocate for #Privacy #ViePrivée #RareDisease #MaladieRare #Accessibility #Inclusion #PatientPartner #PatientPartenaire #CarolinesCart #ChangingPlaces

[Centre canadien pour la cybersécurité @centrecyber_ca]

C’est la #SemaineProtectionDesDonnées et le moment idéal de revoir et d’ajuster les paramètres de confidentialité de vos applis et comptes en ligne. 💻 Pendant que vous y êtes, activez le plus de fonctions de protection possible. #SPD2024

[Stéphanie Leclerc @SPLeclerc]

💔 Un moment que je n’ai vu que virtuellement et qui me donne la chair de poule à chaque fois. 💔 Condoléances à ses proches. 💔

[Thomas Gerbet @ThomasGerbet]

Assis sur scène et « magané » (ses mots), le chanteur des Cowboys fringants Karl Tremblay montre tout son courage au #FEQ et donne tout, porté par 90 000 spectateurs.

[Global Genes @GlobalGenes]

Today we recognize Phelan-McDermid Syndrome Awareness Day and want to highlight this story by Elizabeth Brookshire, RARE Mom & Advocate representing Phelan-McDermid Syndrome Foundation. To read the full story, click here: https://t.co/4BYUGb32Qj

#PMSAwareness #PMSF

[CanChild F-words Team @canchildfwords]

"Fun, Function, Family, Fitness, Friends, and Future are six favourite words we use to talk about life and disability in our home. Curious? Check out the Foundations course. You’ll find our kite story and more!” -Sara
https://t.co/5dRocHBomy

[CanChild F-words Team @canchildfwords]

Curious about the F-Words for Childhood Development? Jillian from Niagara Children Centre shares her tool in this months Spotlight on Niagara. Learn more about the F-Words in use in the free, self-paced Foundations Course available now. https://t.co/bVrUCZTRIM

[Stéphanie Leclerc @SPLeclerc]

@WilliamReymond Pour votre offre de code, je suis intéressée! 🙋‍♀️

[Stéphanie Leclerc @SPLeclerc]

@WilliamReymond L’un des problèmes avec les (rares!) lois qui encadrent ces aspects sont les amendes qui sont considérées, pour les contrevenants, du prix à payer pour continuer de contrevenir à la loi (« envoyez-moi l’amende, je peux la payer »!). L’effet dissuasif n’est pas au rendez-vous…

[Canadian Centre for Caregiving Excellence @CdnCaregiving]

Vous ne pouvez pas venir en personne? Assistez à notre Sommet en ligne. Vous aurez l'occasion de vous impliquer et de discuter avec les participants en ligne et en personne. Ensemble, élaborons une stratégie nationale sur la prestation de soins!
https://t.co/zdMPmolSDL

[Stéphanie Leclerc @SPLeclerc]

@AlexM1L @WilliamReymond @LaChuteInfos Intéressée aussi :-)

[Stéphanie Leclerc @SPLeclerc]

@WilliamReymond 🙋‍♀️ Est-ce suffisant pour « s’inscrire » à la distribution de codes? 🙃

[Stéphanie Leclerc @SPLeclerc]

Passez le mot et jetez un oeil sur le cours de base de Mes mots préférés! En partageant des témoignages et histoires de vie dans des modules en ligne, l’équipe de @canchildfwords a voulu saisir les expériences individuelles qui démontrent l’impact réel de Mes mots préférés.

[CanChild F-words Team @canchildfwords]

Spread the word and check out the F-Words Foundations Course! By sharing stories through online modules, we have tried to capture individual experiences that show the true impact of the six F-words. @canchild_ca

[MaggieK 🇨🇦 @MaggieKeresteci]

When you are a #caregiver the role is often 24/7. When you are a caregiver & then become a patient, that 24/7 job becomes untenable. Canada does not have the supports necessary to fill this gap. We desperately need a robust caregiver strategy & #LongCOVID has made the need urgent

[CanChild F-words Team @canchildfwords]

Family, Fun, Friends, Functioning, Fitness, & Future: Announcing CanChild's F-words Framework in The Foundation Course! It's a free self-paced online training course for anyone who supports children & youth of all abilities, providing guidance for everyday life & practice.

[Stéphanie Leclerc @SPLeclerc]

@sarah12192017 I’m sorry someone said that, it clearly has a negative connotation to me. A caregiver is part of the health and social service team, part of the cared person’s life + the link between everyone involved. Surely not someone passively standing beside the patient (my understanding)!

[Stéphanie Leclerc @SPLeclerc]

@Thomsod 2/2 Around 12, another assessment: profound ID diagnosis. She doesn’t have a diagnosis regarding a physical disability nor ASD. We ‘belong’’ in/to the IDD and rare disease communities. Language might differ though so my French-speaking reference might not fit into your context.

[Stéphanie Leclerc @SPLeclerc]

@Thomsod 1/2 Before official diagnosis, my daughter had a global developmental delay (not disability). Genetic diagnosis didn’t change that, and the global dev delay is in the characteristics of her Syndrome (scientific litterature). At 4, an assessment than gave her an ID diagnosis. ->

[Stéphanie Leclerc @SPLeclerc]

@sarah12192017 Please sign! Website and instructions available in English but you can copy-paste the petition’s text in Google to have a translation. No need to be living in Quebec. Thank you! https://t.co/l8VrVuOqOx

[Stéphanie Leclerc @SPLeclerc]

@sarah12192017 That is one of the reasons I initiated a petition asking for the creation of a special commission that could hear citizens and organizations depict the caregivers’ reality, to avoid children, teens and adults with ID, ASD, or other diagnosis, to go back in institutions. 1/2

[Stéphanie Leclerc @SPLeclerc]

@vickyyyf @RaeofSunshine79 A topic for you?