SToPPS

BDRF and IA funded study to explore communication practices surrounding stoma formation.

[Sarah Squire @SarahSquire73]

I’d love to see a time when poo is not a taboo & stomas are widely known about. They can save lives & improve QoL. I can’t say I love mine but it is what it is & I’m damned if it will rule my life. Life is good! #AnytimeAnywhere #StomaAware #MakingLifeEasier #WorldOstomyDay

[Glen @ostomyadventure]

Big shout out to all ostomates around the world on #WorldOstomyDay2021 👏🏻
Bottom left I’m smiling & inside the excitement is rising as we are just about to enter the building for search and rescue training 👨‍🚒😁
#worldostomyday #AnytimeAnywhere #stomaaware #staystrong

[Vikki aka doubletroublestomagirl68 @vikkipalmer68]

#StomaAwareDay #StomaAware I’ve had so many HCP that have said they would sooner die than be like me to my face comments behind my back they forget I can’t hear them I can challenge this but imagine a new scared stoma patient hearing this

[Giles Lawrence @StampyNTFC]

Taken at work 5 minutes ago in the disabled toilet..
Whilst somebody was hammering on the door telling me to "hurry up"
I've also been swore at before because "it's for disabled people only"
#StomaAware
#StomaAwareDay

[Jessicas stoma journey BCyA @JourneyStoma]

Let's breakdown the stoma stigma , jessica is loud and proud about her stoma and she has been a advocate for so many other people living or needing a stoma 🍎💗 #WorldOstomyDay #kidswithstomas #viral #stomaawareness

[Phil Tozer @philtozer1]

Email [email protected] for more info! #analfistula #colorectalsurgery #QoL #PROM

[Phil Tozer @philtozer1]

Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input 👇🏼

[SToPPS @SToPPS_study]

Once again, thank you to all who responded to our questionnaire. You have given us a lot to think about. We have almost finished going through your responses. Keep your eyes peeled, more information on the study to follow.
@littlemissileo @SarahSquire73 @VBlush @dalevim

[SToPPS @SToPPS_study]

Thank you to everyone around the globe who took part in our online patient and public questionnaire. We had a fantastic response!! We will get analysing!! Focus groups to follow. Thank you!

[SToPPS @SToPPS_study]

SToPPS questionnaire closing Sunday 28th February.

If you:
✅Have a stoma;
✅Have previously had a stoma;
✅Live with or care for someone that has/had a stoma;
✅Have recently been told of the need for a stoma;

Last chance to share experiences. Link: https://t.co/aWD9ETFPHP

[NWRC @NWRCsurgery]

We're thrilled to invite you to join the @NWRCsurgery New Projects Webinar: Thurs 25th Feb 7pm.

Hoping to soon hear a timeline to the end of lockdown, leading to an easier research climate... looking forward to hearing about new projects.

Webinar link:
https://t.co/FuQPA0j5sU

[SToPPS @SToPPS_study]

@BowelResearch @iasupport @ColostomyUK

[SToPPS @SToPPS_study]

Previously had a stoma but had a reversal... we still need to hear from you!

Help us shape research into communication practices around stoma formation.

Stopps study patient and public involvement questionaire still accepting responses: https://t.co/TCpFYL3Its

[SToPPS @SToPPS_study]

Previously had a stoma but had a reversal... we still need to hear from you!

Help us shape research into communication practices around stoma formation.

Stopps study patient and public involvement questionaire still accepting responses: https://t.co/TCpFYL3Its

[SToPPS @SToPPS_study]

Thank you, we've had a fantastic response to our questionnaire so far...!

If you:
✅Have previously had a stoma (reversed);
✅Live with someone that has/had a stoma; or
✅Care for someone that has/had a stoma.

We want to hear from you too. Link:https://t.co/M6QMw1AAG5

[SToPPS @SToPPS_study]

Also if you have previously had a stoma!!!

[SToPPS @SToPPS_study]

If you:
✅Have a stoma;
✅Need a stoma; or
✅Live with/care for someone with a stoma;
We need you!! Share your experiences with us and help shape research into communication practices around stoma formation. Link to questionnaire: https://t.co/hTXf7ZrEjm

[SToPPS @SToPPS_study]

@littlemissileo @SarahSquire73 @VBlush @Sahara88uk @ColostomyUK @UOAA @iasupport

[SToPPS @SToPPS_study]

If you:
✅Have a stoma;
✅Need a stoma; or
✅Live with/care for someone with a stoma;
We need you!! Share your experiences with us and help shape research into communication practices around stoma formation. Link to questionnaire: https://t.co/hTXf7ZrEjm

[SToPPS @SToPPS_study]

If you:
✅Have a stoma;
✅Need a stoma; or
✅Live with/care for someone with a stoma;
We need you!! Share your experiences with us and help shape research into communication practices around stoma formation. Link to questionnaire: https://t.co/hTXf7ZrEjm

[Louise Hunt @louisehelenhunt]

✨STORY TIME ✨ Let me take you back to being three months post panprotectomy surgery. It’s mid August and I’m called in to see my surgeon after a pelvic MRI scan not three days prior. My wound had an second infection 🤢…

📸 https://t.co/aXyee9zUfV via https://t.co/5dd4toRw5a

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

I often talk about the positives of living with a #stoma, BUT, life is not all sunshine☀️ & rainbows🌈 & I think that needs to be talked about too🗣️

In this video, I share my recent experience of an intestinal blockage, and how NOT to manage it! https://t.co/IvFD0Bl99H

[Bullen Healthcare @BullenHC]

This is a great opportunity for anyone with a #Stoma or who cares for someone with a stoma. @JourneyStoma could you share it and complete it?