SUMSstudy

Tweets to raise awareness of SUMS (Standing Up in MS) research study for people with progressive multiple sclerosis.

[SUMSstudy @SUMSstudy]

Jody Barber, experienced neurological physiotherapist, talks about a standing frame service for people with MS. A great example of how you can translate evidence from the SUMS study into your practice. https://t.co/WGWV4iNwok

[SUMSstudy @SUMSstudy]

Six years on from participating in the Standing Up in Multiple Sclerosis study (SUMS), Sally Morgan and John Kendrick tell their stories about how using a standing frame continues to be an important part of their daily lives: https://t.co/Co7rm5q2vE
Inspirational.

[SUMSstudy @SUMSstudy]

"Stand and Deliver" - a great session on the use of standing frames at an excellent conference. MS Trust has delivered yet again.

[SUMSstudy @SUMSstudy]

Read the stories of our standing participants. Our SUMS study qualitative results are now published in BMJ Open. Freely available via: https://t.co/2VG9Mzkpei

[SUMSstudy @SUMSstudy]

Are you a health or social care practitioner working with patients with physical disabilities or movement impairment? If so, we would like to hear your views in our survey on telerehabilitation: https://t.co/tCBfHr5ILh. To find out more e-mail: [email protected].

[SUMSstudy @SUMSstudy]

A message to us from Janice Cox, a SUMS participant:
"I have been stuck in the house since the lock down and have used my standing frame every day as usual. Thank goodness I can keep it going as it's my lifeline, keeping me strong and stopping my legs from becoming too tight"

[SUMSstudy @SUMSstudy]

"I'm still standing in the frame every day. I got a new wheelchair a while ago and it gave me a pressure sore. I can't lie on my side so standing for two hours a day was the thing that cured my pressure sore"

[SUMSstudy @SUMSstudy]

See the " Special Orders Template" on our web-site https://t.co/yGa3fNss44. The template for your own Organisation may differ slightly, but much of the information you may need is written here, providing the case for your patient having a standing frame

[SUMSstudy @SUMSstudy]

Read our SUMS study results, published online in Lancet Neurology today - open access: https://t.co/j4MXg31zGE

[SUMSstudy @SUMSstudy]

BBC coverage highlighting the results of the SUMS study: https://t.co/rgeDLvStMj
Lets hope this helps to make the frames more readily available for people with progressive MS.

[SUMSstudy @SUMSstudy]

The word is spreading! People with MS enjoying a new standing frame group session at a UK MS Therapy Centre, inspired by our presentation of @SUMSstudy results at the recent @MSTrust conference.

[SUMSstudy @SUMSstudy]

Wendy Hendrie sharing @SUMSstudy qualitative results at the MS Trust conference as part of winning best poster. Watch the short films on our website to hear the experiences of some of those who used the frames. https://t.co/kGeE3dN2kj #mstconf #physiotherapy

[SUMSstudy @SUMSstudy]

Jenny Freeman sharing the fantastic results from @SUMSstudy at the MS Trust conference. Take a look at our website for more information and helpful resources which we'll continue to update over the coming weeks. https://t.co/kGeE3dN2kj

[SUMSstudy @SUMSstudy]

Another great opportunity to share the stories of people with MS engaged in the SUMS standing trial at ECTRIMS

[SUMSstudy @SUMSstudy]

Sharing our RCT results with 9400 delegates at @ECTRIMS

[SUMSstudy @SUMSstudy]

The SUMS team shared the study results with participants at venues across the South West and East Anglia. We thank everyone for participating.

[SUMSstudy @SUMSstudy]

Presenting some of our results at RIMS2018
A wonderful opportunity. Thank you @eurims

[SUMSstudy @SUMSstudy]

Our team, wonderful colleagues and students got cycling for the MS Trust as part of Be Bold Be Blue MS Awareness week. 345 miles covered and £134.46 raised to date. Great work everyone!

[SUMSstudy @SUMSstudy]

A great PPI discussion group this morning, talking about what/ how we share research data with participants. Helpful ideas- thank you! #MSresearch #research

[SUMSstudy @SUMSstudy]

We are delighted to report that @SUMSstudy has completed data collection and are moving on to analysis. See our website https://t.co/va1pKjwBkc for our latest newsletter and to keep up-to-date with our progress. Thanks to everyone involved.