SW Neuromuscular ODN

The SWNODN brings together patients and professionals in the South West of England to improve healthcare outcomes in neuromuscular conditions.

[SW Neuromuscular ODN @SWNODN]

We are very proud of our 'Wall of compliments', reminding us of the great support we provide to our patients every day #NBTProud #OneNBT @NorthBristolNHS @NBT_Perform

[SW Neuromuscular ODN @SWNODN]

We are looking forward to welcoming healthcare professionals from across the South West at our SWIM conference tomorrow, 24th April 2024 @tauntonrfc
Covering an important topic, "Breaking the taboo on Sex, Relationships & Disability" #swimapr24 @SWNODN @NorthBristolNHS @NmskNbt

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

PA EMPLOYER TRAINING - COMPLETE COURSE 2

Join us on Friday 26th January at 5pm for an introduction session to learn about being a PA Employer.

Details to sign up are below, hope to see you there!

📆 Friday 26th Jan 2024
⌚ 5pm - 6pm
📝 Sign up - https://t.co/oeeOBTZvJn

[SW Neuromuscular ODN @SWNODN]

If you are an experienced Nurse, Social Worker, Occupational Therapist or Physiotherapist with the passion & drive to make a positive difference in patients' lives, join our team of Neuromuscular Advisors. Please contact us for more info 😀
Job Advert: https://t.co/kzSZJodFui

[LGMD Awareness Foundation, Inc @LgmdAwareness]

Only one week until the 9th annual LGMD Awareness Day will be celebrated worldwide on September 30, 2023.

Are you ready? 💚 Learn more at https://t.co/737EGwXQGM

#LgmdDay2023
#TogetherWeAreStronger
#LimeGreen4LGMD
#LGMDawareness

[Muscular Dystrophy UK @MDUK_News]

Can swallowing exercises work for people living with oculopharyngeal muscular dystrophy (OPMD)?

Speech & language therapist Jodi Allen talks about weighing up the pros and cons.

#OPMD #OculopharyngealMuscularDystrophy #OPMDAwareness #OPMDAwarenessDaySept23

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

UpLift INFORM PA Recruitment

MEET THE SPEAKER - Ross

📆 Mon 16th Oct
⌚ 18:00 - 19:00
📍 Online Webinar
💷 FREE
📝 https://t.co/TRlOq2TKdH

[Muscular Dystrophy UK @MDUK_News]

This mitochondrial disease awareness week’s theme is fatigue. Our handbook is here to help you understand and manage your symptoms, offer information, identify potential triggers, and provide management techniques. #WorldMitoWeek @MitoAware https://t.co/xW1PdKB6lN

[WheelPower @wheelpower]

On #NationalFitnessDay why not join WheelPower for an hour of Yoga this morning from 11am, LIVE and for FREE on Zoom 🙏 Join the Movement by booking yourself a ticket before we get underway later this morning https://t.co/THRb1tvirZ #FitnessDay #FitnessForAll #DisabilityFitness

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

UpLift EMPOWER Music

@asksupermann produces rock and hip-hop beats under the name of Supermann on da Beat.

Alex is a singer and guitarist in the world’s first Duchenne-fronted alternative rock band, Alex James.

Both live with DMD

Sign Up here: https://t.co/6TOvbBq5P7

[SW Neuromuscular ODN @SWNODN]

**Job alert** We currently have a job vacancy for a Neuromuscular Advisor to support children & adults living with a Neuromuscular condition. The job is full-time, based at @NorthBristolNHS @NmskNbt Click here for more information: https://t.co/TI0CRG6TCl Come & join our team!

[Duchenne UK @DuchenneUK]

Like to know more about Duchenne muscular dystrophy (DMD) and meet other people in the community?

Come to our New Horizons conference in March.

It’s for family/caregivers, and those working to help people with DMD.

You can pre-register here 👇
https://t.co/Ri2RB9KW7u

[British Myology Society @BritishMyology]

Upcoming BMS events (register now):
👉11th Sept: BMS Muscle Teaching Day (Adult Muscle) https://t.co/Lq5WwnmovL
👉11th and 12th Sept: BMS Annual Meeting https://t.co/629yijrABS
👉14th Nov: BMS Muscle MRI Workshop https://t.co/MF7UfmhKB5
👉Coming soon: BMS AHP Teaching Day

[SW Neuromuscular ODN @SWNODN]

We are looking forward to welcoming up to 90 healthcare professionals at our SWIM conference (South West Interest in Muscles) tomorrow, 29th June @tauntonrfc .
The topic is "Peripheral Neuropathies with an emphasis on CMT" #swimjune23
@SWNODN @NorthBristolNHS

[CMT United Kingdom @CMTUnitedKdom]

#cmtawarenessmonth
CMTUK brings together young people through CMT Kids who all share a very significant part of their lives – having CMT. But we don’t let this stop us!

If you would like to find out more and how to get involved, please phone CMTUK’s office: 0300 323 6316

#cmt

[Spinal Muscular Atrophy UK @SMA_UK_]

In part 1 of the latest Living With SMA #podcast episode, @rosslannon chats to Mia and Steven who share their personal experiences about needing to be assertive, higher education and the university experience. Listen here: https://t.co/75qdV7tNSr 🎧

[CMT United Kingdom @CMTUnitedKdom]

There are over 100 types of #CMT, making it a complex condition.
Everyone experiences CMT differently.
As part of CMT Awareness Month, we wanted to highlight this, so we asked our members which CMT symptoms they are MOST aware of.
#CMTawarenessmonth #charcotmarietooth

[Action for Happiness @actionhappiness]

Find gentle ways to fill up your cup - walk, relax, journal, sleep 😴

Image: https://t.co/UVumQFCuWA

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

Join us! Pathfinders are recruiting academic writers with various levels of experience.

Writing will take place from September through to January. If you have a Neuromuscular Condition and are interested in helping, get in touch with [email protected]!

[Remap @RemapUK]

Sylvia needed a tray fitted to her wheelchair which was both secure enough for her to carry items, but also easy for her to remove and place back on as she lives alone.

She can now move around her property with the table in place, remove it and place it back on independently.

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

In the month of October UpLift is running their Dating, Relationships & Having a Family event in London.

Come join on the 14th October at 12pm to learn more from people with muscle weakening conditions about their lived experience and ask any questions you may have!