SRT

Proud Husband, Dad to 3 - 1with Homocystinuria #HCU
Home cook (by delegation)
Energy Consultant & Fellow of the Royal Chartered Association Building Engineers

[SRT @S_R_Thom]

Today is World Homocystinurias Awareness Day - a day to spread awareness of #homocystinuria & celebrate the #HCUHeroes all over the 🌎 who deal with this incredibly rare condition
@HCUAmerica
#WHAD2023
#HCU

[HCU Network America @HCUAmerica]

World Homocystinurias Awareness Day is 5/18 - a day where we spread awareness of all of the homocystinurias & celebrate our global connectedness! 🌎

Join us this #WHAD2023 as we celebrate what makes us #StrongerTogether!

#homocystinuria #HCU #HopeConnectsUs #GlobalCommunity

[SRT @S_R_Thom]

The best donuts around 😋 #vegan #beigedonuts #penzance

[SRT @S_R_Thom]

@HCUAmerica So true. We assumed because of the lens dislocation being the early diagnosis, that the brain was unaffected, but it is definately not. Our daughter has been diagnosed with #ADHD #Autism #dyslexia #Dyspraxia #PTSD in the last 3 years. 10yrs after her #HCU diagnosis at 6yrs old

[SRT @S_R_Thom]

@synlogic_tx @Ginkgo As a parent of a daughter with #HCU #Homocystinuria this is an amazing ray of hope in what the future may hold for her. Very exciting news

[SRT @S_R_Thom]

Wow - thats my little girl :)
so proud of her and alls shes done in her journey so far and what she will do in the future #HCU #HCUhero #Homocystinuria

Read her story here
https://t.co/6WgLzbozjo…

[HCU Network America @HCUAmerica]

Celebrate HCU Awareness Month, read the HCU Herald! - https://t.co/hjz4m4feF2

#HCUHero #HCUAwarenessMonth #LowProteinRecipes #HCURaceforResearch #Research #ClassicalHCU #CobalaminDisorders #SevereMTHFR

[HCU Network America @HCUAmerica]

Today kicks off Day 1 of Homocystinuria (HCU) Awareness month! Start the month by changing your social media profile picture to the #HCUAwareness Ribbon!
#Homocystinuria #HCUAwareness2022 #GoBlueforHCU #HopeConnectsUs

[HCU Network America @HCUAmerica]

Please join our fundraiser to support the #RaceForResearch!
CLICK THIS LINK ➡️ https://t.co/8jGZS8tbjz and @RecordatiRareUS will donate $5 up to $5k to HCU Network America! Thank you for your support! 💙

#HCUHeros #HopeConnectsUs

[SRT @S_R_Thom]

So proud of my #HCUHero daughter who got the grades she needed today to go to Univeristy & follow her dreams in Musical Theatre. Shes my hero & inspiration in life #HCU #Homocysteinuria

[SRT @S_R_Thom]

@HCUAmerica Pleasure - keep up the great work and help my daughter and all the others living with #HCU by finding a cure 🙏

[SRT @S_R_Thom]

Delighted to have raised over £1,000 for @HCUAmerica with my seminar yesterday. Thanks to everyone who donated :) #HCU
https://t.co/XAzWkWwbvb

[SRT @S_R_Thom]

Im giving a seminar on the new Thermal Regulations for dwellings on 26th July in Truro.

Contact me if you like to attend.

Instead of charging, im just making a polite request to donate to @HCUAmerica if you can by clicking here:
https://t.co/1C8JOadtcJ

[SRT @S_R_Thom]

Fantastic opportunity for anyone with a metabolic disorder #HCU #PKU

[Galen Medical Nutrition @GalenMetabolics]

Do you have a metabolic disorder such as PKU?

Apply for our Scholarship Award worth £4000 inc a full technology bundle and £2000 bursary to help with your future. Apply now!

[SRT @S_R_Thom]

World Homocystinurias Awareness Day - a very rare incurable genetic condition.
Strength and hugs to all the ptients and care givers who live with this on a daily basis.
16/09/09 a routine eye test for our daughter revealed dislocated lenses & our journey with #HCU began

[SRT @S_R_Thom]

@synlogic_tx As a parent of a child with HCU, im very grateful for your recognition and investment in this illness and look forward to positive results