@broadwaybabyto My nurses were strictly enforcing the policy for my visitors but stepped out for this other health care worker to do her thing which meant being in the room for ~1 hr with me. I couldn’t believe someone who works w new transplant patients could be so knowingly careless
@broadwaybabyto I’m sorry you had to go through that. Had something similar when I was 1 day post transplant in the hospital (so at my most immunocompromised) and a transplant coordinator (!!) got annoyed when I asked her to mask since that was also policy for my room (w a sign on my door)
Godspeed to you if you're going to a party (?) to watch tonight, but I had a party in 2016 to watch the results, and the vibe shift that happened was so sudden and horrific that I'll quite simply never do that again in my life.
@joeyabanks Sending you good vibes! Surgery is no joke. Had 2 within a year and the recovery each time was… well it was a journey. You are a champ and you got this!! 💪
@AlaskanKate I agree but when I had a temporary disability, cruising was one of the only convenient ways for me to travel. Still didn't want to do the mega cruises though for the reasons you mentioned. We did a small luxury cruise and it was actually really nice, given the constraints.
@bake_run2@VioletSpiceXXX@Sblahov Everytime I had to ask I got attitude, providers saying stuff like "it's not like I'm standing directly over you" when they just told me they were going to be in my room for an hour and I had a mask sign on my door as a new transplant patient
@Shakeira_C @VioletSpiceXXX@Sblahov In Sept I was fresh out of transplant surgery (so very immunocompromised) and the doctors put a mask sign on my door and so many providers STILL ignored it when coming to my room, including people who's job is specifically to work with transplant patients 😐
…workplaces absolutely do not affirm any sort of disability based on self diagnosis. workplaces require medical documentation and sometimes people provide it and still do not get accommodations.
Sometimes you come across a group of Millennials who are still living fully in the Master of None/Warby Parker era. With their natural wines. These people must be treated gently, like the Japanese soldiers who didn't know World War 2 was over.
i think it’s genuinely strange to always expect a friend who has fallen very ill or is having severe mental health issues to do an “i’m ignoring you but i’m not mad at you” press tour. genuinely. people become incapacitated by these things sometimes
i really believe that after c*vid we will never do anything to stop the spread of anything ever again, bug infestation or disease, because everyone is too offended by it
this makes me really sad to see. especially as i make amends with my body and start to understand it’s consciousness and the way it speaks to me.
the body loves you so much, it really is doing it’s best for you and every time your heart pumps it’s a love letter from the consciousness of your body, who has decided to do everything it can to keep you alive so that you may have a vehicle to experience life.
the body is also YOU. a part of you. it is not the mind so it doesn’t have language to convey what it needs, it has a childlike innocence and understanding that is quite elegant but very simple. when it hears you and sees you preferring other bodies and wishing parts of it away or hurting it because you don’t like the way it looks or functions, the body is pained and bewildered and it holds on to that.
you cannot dream of another body. you are all your body dreams of.
great test of someone’s agency: watching them do chores in someone else’s house
huge difference between asking “anything i can help with?”
vs
just quietly noticing what needs to be done & *doing* it
Dear Apple,
No matter what I happen to click, I never never never never never never never never never never never never never never never never never never never never never never never never never never never never ever want to open the Mail app on my desktop.
Thank you.
@skullface I don't know whether to be thankful to OP for pulling these weirdos out of the woodwork or annoyed because the "apology" was very dramatic, unnecessary and self-serving