Samir Sethi

President of Indian Rett Syndrome Foundation, India

[Samir Sethi @SamirSethi15]

@ramanuj06

[Tata Institute for Genetics and Society, India @TIGS_India]

The 2nd edition of #REDRESS 2023 is right around the corner!

#REDRESS, an indigenous & recurrent platform to bring together #rare genetic disease researchers & stakeholders working for the #Indian #RareDisease population

Introducing the sessions & speakers for the summit!

A 🧵

[Samir Sethi @SamirSethi15]

@VikasReports @bertyashley @arunshas @HanugenIndia Sir, I am unable to access the entire article, may I request you to please send me a pdf at [email protected]. I am representing a rare disease PSG and would be deeply interested to read your views. Regards

[Samir Sethi @SamirSethi15]

@cdhwings We are an umbrella organisation for patient advocacy in India for rare diseases, Organisation for Rare Diseases India (ORDI). We would be keen to participate in the scheduled conference, will appreciate if you send us more details by email at [email protected]

[Samir Sethi @SamirSethi15]

Rare Diseases Day, one parent in our group from Kerala has used bottles of medicine given to his daughter to convey a meaningful message to the world. Compliments to the family for this unique way in spreading awareness
#RareDiseaseDay
#rettsyndrome
#ordi
#Nord
#irsf

[Samir Sethi @SamirSethi15]

Rare Diseases Day, one parent in our group from Kerala has used bottles of medicine given to his daughter to convey a meaningful message to the world. Compliments to the family for this unique way in spreading awareness about Rare Diseases
#RareDiseaseDay
#rettsyndrome
#irsf

[Samir Sethi @SamirSethi15]

#ordindia
#rarediseaseindia

[Samir Sethi @SamirSethi15]

Celebration for the Rare Diseases Day #RareDiseaseDay with a picnic for the families and individuals diagnosed with #RareDisease. Join us in this initiative and spread #rarediseaseawareness
#ministryofhealthandfamilywelfare
#mohfw
#mosje
#derpartmentofdisability

[Samir Sethi @SamirSethi15]

Celebration for the Rare Diseases Day #RareDiseaseDay with a picnic for the families and individuals diagnosed with #RareDisease. Join us in this initiative and spread #rarediseaseawareness
#ministryofhealthandfamilywelfare
#mohfw
#mosje
#derpartmentofdisability

[Samir Sethi @SamirSethi15]

Returning orders which are not as per description given online is customer's right. This can not result adverse rating or blocking of account as being done by @udaandotcom with no redressal from @udaansupport. This is #unfairtradepractice and should be taken up by @CCI_India

[Samir Sethi @SamirSethi15]

#udaandotcom
#udaancustomercare
#unfairtradepractices
#cci_india
We would like to bring forth unfair trade practices of Udaan in deactivating an account just because we returned products that were not as per description. This is can't be accepted and is condemned in strongest way

[Samir Sethi @SamirSethi15]

@Ram06077451 No, I have not received anything till date.

[Samir Sethi @SamirSethi15]

#udaandotcom
#udaancustomercare
Can anyone explain why our account has been suspended. We are told as we returned one order, as per as the return policy, as product was not as described has made us a bad buyer and a/c suspended. This is not acceptable