Mum to Heidi (complex medical needs, total superstar) Founder of @PeepsHIE Charity. Passionate about making a difference &raising awareness of H.I.E #HeardOfHIE
It's time - we're ready to feel festive here at Peeps HQ!
To help spread some cheer this holiday season, we have our Winter Wishes Prize Draw.
Some fabulous prizes to be won (huge thanks to everyone who kindly donated, meaning all proceeds will be going directly to Peeps) - including 2 air fryers. IYKYN (if you know you know), because this has recently been a very hot topic of discussion in our fabulous WhatsApp group!
To get your ticket for a chance to enter please head to: https://t.co/akT8687BoG
If you're not in a position to buy a ticket, a like and a share are just as appreciated.
Thanks so much!
As some of you may know (though we haven’t publicly shared before!), we’ve been through a lengthy process recently.
We’re pleased to share yesterday we were approved by panel as adopters 🥳
Team Land will hopefully be growing in the not too distant!
#NationalAdoptionWeek
It’s #WorldCerebralPalsy day.
Cerebral Palsy affects Heidi in lots of ways - and for her sake I wish it didn’t. However, it doesn’t affect her sense of humour, her level of sass, or her ability to light up the room.
💚💚💚
@PeepsHie
So often, as parents to a child with complex medical needs, we’re told self care is important - “have a long bath”, “book a weekend away”, “find a hobby you enjoy”….we don’t have time, & we’re often too stressed! It’s important, and small changes are definitely the way to go ☺️
Self-care isn't selfish. You can't pour from an empty cup💕 So join the Self-Care September challenge and find ways to be kinder to yourself as well as others https://t.co/rry9VO5ADi #SelfCareSeptember
@catherineroyuk I wish we had had more information about when things don’t go to plan - not about scaring families, but informing and preparing, giving choices. Maybe things would have been different I had known more.
Not blogged for a while, but getting started again, and hoping the book will be finished this year🤞🏻It’s been hard looking back on those early weeks and months with Heidi, I don’t think anyone can fully “get it” unless you go through it 💕
https://t.co/vUK9YG0IA7
This rose is called “Heidi Peeps”, a gift a couple of years ago and miraculously it has survived another winter. I’m not green-fingered so pretty happy with
If it’s all getting a bit much (politics!), trying a moment to appreciate the things around 💐
@JamesTitcombe We asked 3 times if H was ok. 3 times she can’t have been. On the 4th she was taken to be resuscitated. I struggle to understand, parents should be listened to, always, and in the situations where everything is ok, reassurance and an explanation of why would be helpful.
Yesterday was H.I.E. Awareness Day, something I set up 6 years ago. It’s been great to see so much more activity and understanding, as the community of families touched by H.I.E. grows.
There’s a long way to go though! Please check out @PeepsHie and find out more 🌻#HeardOfHIE
@NCTcharity It was almost 9 years ago, we have found support elsewhere. I did reach out via email on the 7th May 2020 and the 30th June 2021 but sadly didn’t hear back. You state you are “the UK’s leading charity for parents” and I would very much like to know what this is based on.
@RMatthewsPsyEdu @JamesTitcombe@NCTcharity Yes we had the same, oxytocin all the way! A picture that every birth will be amazing, no interventions necessary if you just remind yourself that it’s all ok…🙄