Sarcoidosis Sentinel

A digital space to share credible information to help those navigating Sarcoidosis; with a priority given to Black Americans living with the disease.

[Sarcoidosis Sentinel @SarcSentinel1]

Join @stopsarcoidosis for the #IgnoreNoMore African American Women & Sarcoidosis #TwitterChat 10/25 at 11am CT #IgnoreNoMore #AAWS #Sarcoidosis

https://t.co/nt7ss51cop

[FSR @StopSarcoidosis]

FSR announces $100,000 in funding for support of research aimed at improving diagnosis, management, and treatment of cardiac sarcoidosis.

Read more: https://t.co/LIydcUMAux

#sarcoidosis #grant #research #raredisease #cardiacsarc

[FSR @StopSarcoidosis]

Apply now for FSR"s capacity building #grants for hospitals & clinics serving a high percentage of underserved patients who have expertise in advancing clinical trials & clinical trial success. Deadline: 9/15/2023.
Learn more: https://t.co/p1kP6aiDoN

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

FSR is pleased to award the Sarcoidosis Research Fellowship for 2023-2025 to Dr. Christen Vagts from University of Illinois Hospital & Clinic, for her outstanding proposal, Immune Mediators of Active Advanced Pulmonary #Sarcoidosis.

Read more: https://t.co/ZqjZuyzBRa

[FSR @StopSarcoidosis]

Don’t be discouraged if you were not eligible for clinical trials before. Every clinical trial opportunity is different.

Learn whether you can participate in the new RESOLVE-Lung pulmonary sarcoidosis clinical trial here: https://t.co/KJ829sfvYC

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

FSR is offering 3 capacity building #grants to hospitals & clinics that serve a high percentage of underserved patients & who have expertise in advancing clinical trials & clinical trial success. Deadline: 9/15/2023.
Learn more: https://t.co/p1kP6aiDoN

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

Big thank you to Jim Kuhn, FSR Patient Speakers’ Bureau & Patient Advocate, for speaking at the symposium on Interstitial Lung Disease at the @AANP_NEWS annual convention. We are grateful to Jim for advocating for the #raredisease community!

#sarcoidosis

[FSR @StopSarcoidosis]

The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of Calvin Harris Jr., CPA and Joel D. Rosen, Esq. to the FSR Board of Directors. Read the full press release: https://t.co/Kzk9KwGa11

#sarcoidosis

[FSR @StopSarcoidosis]

New episode of the FSR Sarc Fighter Podcast dropped today! Listen in as host, John Carlin, shares two reports about developments in the treatment of sarcoidosis.

Listen now: https://t.co/wJcICNRUVB

#sarcoidosis #podcast #raredisease #chronicillness

[FSR @StopSarcoidosis]

Join FSR on 7/20 for a new FSR-GSCA’s Peer Case Review Session. Two unique cases will be presented! This event is virtual and complimentary. For clinicians only.

Learn more & register: https://t.co/mcxs9qdEFU

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

Only a few days left to apply for FSR's 2 grant opportunities for physicians and researchers interested in the #sarcoidosis space! Applications close July 15, 2023.

Cardiac Sarcoidosis Grant: https://t.co/JT484Xe6eb
Pilot Grant: https://t.co/evmgwo8zYr

#sarctwitter #research

[FSR @StopSarcoidosis]

For clinicians only: Join FSR on on 7/20 for a new FSR-GSCA’s Peer Case Review Session. Two unique cases will be presented! This event is virtual and complimentary. Learn more & register: https://t.co/mcxs9qdEFU

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

Wonderful interview with @MountSinaiNYC, FSR-GSCA Founding Member, Dr. Adam Morgenthau on @ACRheum Air, discussing #sarcoidosis.

Listen here: https://t.co/L9vwkiPIl6

#sarctwitter

[FSR @StopSarcoidosis]

In-person event in Atlanta! Join FSR and @aTyrNews for a free event featuring two sarcoidosis clinician experts, Dr. Bob Baughman & Dr. Paul Boyce. Learn about #sarcoidosis, treatment options, & the latest in research/clinical trials. Register: https://t.co/PspKrSOQmZ

[FSR @StopSarcoidosis]

Erica Courtenay-Mann, Ignore No More Patient Advisory Committee Member & Sarcoidosis Advocate, appeared on "See the Invisible: Living w/ an Invisible or Rare Disease" podcast, discussing the importance of clinical trials & need for representation. Listen: https://t.co/xzYdGRpeWZ

[FSR @StopSarcoidosis]

The FSR Global Sarcoidosis Clinic Alliance is a member program consisting of clinics, hospitals, and individual providers committed to finding a cure and offering patient-centric care for those living w/ #sarcoidosis.
Learn how you can get involved here: https://t.co/J5G1RP8aBf

[FSR @StopSarcoidosis]

There's still time to apply for FSR's two new grant opportunities for physicians and researchers interested in the #sarcoidosis space!

Cardiac Sarcoidosis Grant: https://t.co/JT484Xe6eb

Pilot Grant: https://t.co/evmgwo8zYr

#sarctwitter #research

[FSR @StopSarcoidosis]

Mary McGowan, FSR CEO, is representing the organization this week speaking at @wasog 2023 . The conference theme is “Big data - How to move the field towards precision medicine” and covers different areas in Interstitial Lung Diseases (ILDs).

#sarcoidosis

[FSR @StopSarcoidosis]

75% of those in the FSR community polled believe #sarcoidosis has had a negative impact on their finances. FSR partnered with @GlobalGenes to provide information on Financial and Estate Planning Basics for Individuals Living w/ Sarcoidosis. Learn more: https://t.co/0WO4mAewLr

[FSR @StopSarcoidosis]

Join us on  June 14 from 4:30-5:30pm CST for FSR-GSCA’s Sarcoidosis Journal Club CME, co-hosted by @UIHealth! This event is virtual and complimentary to all clinicians! To learn more & register, visit https://t.co/8IVrKj5AQ0

For clinicians only.

#sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

Physicians & researchers are invited to attend a Grant Writing Webinar June 13th! Attendees will receive exemplary tips, techniques, & examples from experts.
Register: https://t.co/asHLQWaQYL

@peter_sporn

#sarctwitter #sarcoidosis #cardiactwitter #grantwriting