Zahra

Without Spinraza™, Zahra will die!
Please trend #SaveZahra @Biogen, the company which makes Spinraza™, and ask them to save Zahra’s life.Spinraza™ costs 750K$

[Zahra @SaveZahraD]

Please follow @SaveZahraD, and use #SaveZahra haghtag to SAVE an adorable child's life.
Without this, Zahra will die. Support her before it is too late. https://t.co/QMci1VKqCX

[duck historian 🐤 @leftistducc]

@Biogen Please grant compassionate use of SPINRAZA for Zahra Dehghanipour, a six-year-old with Spinal Muscular Atrophy who’s only hope of recovering is the drug! Please Biogen, I know you’re good people who will help this beautiful innocent girl! @SaveZahraD #savezahra

[Zahra @SaveZahraD]

@WSJ Thank you for being Zahra's voice

[The Wall Street Journal @WSJ]

The case of Zahra Dehghanipour, who lives in Iran, illustrates a challenge in modern medicine: Access to lifesaving treatments often depends on accidents of geography https://t.co/EBX8zOybBV

[Zahra @SaveZahraD]

@biogen rejected Zahra's request to compassionate use of Spinraza™

[Zahra @SaveZahraD]

Wallstreet Journals article about Zahra https://t.co/H3FSnMs3No

[duck historian 🐤 @leftistducc]

@biogen Please help save Zahra’s life! She is a 6-year-old with Spinal Muscular Atrophy and SPINRAZA is the only way to save her precious life! @SaveZahraD #savezahra

[Yavor M. Hadzhiev @monkov_yavor]

@SaveZahraD @SaveZahraD you can follow SMA Europe's website https://t.co/QO96PRpoFY if you would like some news from this side of the Atlantic ocean. I am sorry there hasn't been an answer from @biogen yet. This is so cruel. Let's hope that very soon a competing medicine will be available!

[Paul Allen @reallyhedrick]

Please take the time to sign and share this petition! @SaveZahraD
Signed from Franklin, Indiana. Stay strong!
https://t.co/13Bvt7dbcG

[Zahra @SaveZahraD]

Dear Angie
Despite all of our efforts , Biogen hasn't respond to our requests yet.
We are trying to convince them to let Zahra use compassionate use.
Iam happy for your son and i hope he retrieve his health soon

[Angie B @Angie_NYCity]

@SaveZahraD Hi can you give us an update on Zahra? Have you reached out to biogen lately? My 17 month old son also has SMA and is receiving Spinraza. I am happy to help you how I can

[Change.org Canada @CdnChange]

Zahra is only 6 years old and she is battling the deadly disease spinal muscular atrophy (#SMA).

There is a treatment, but the drugmaker @Biogen charges $750,000. You can help save her life by asking Biogen to lower the cost of the drug.
#SaveZahra. https://t.co/Un9YfnRJDG

[Yavor M. Hadzhiev @monkov_yavor]

@ADehghannezhad @biogen @SaveZahraD It's just beyond my comprehension how any pharmaceutical company can develop life-saving meds and then doesn't make it accessible to those who most need it. :/ Unfort., the way some national medical systems are run doesn't help either. Parents of children w/SMA in Bulgaria...

[Yavor M. Hadzhiev @monkov_yavor]

@ADehghannezhad @biogen @SaveZahraD ...also have this problem. Government there is not willing to spend the money. I think countries should unite in negotiating better prices and if needed full tax exemption for meds such as SPINRAZA, and use national budgets to buy it for those who need it...

[Yavor M. Hadzhiev @monkov_yavor]

@ADehghannezhad @biogen @SaveZahraD ...In Portugal, a few years ago, people with Hepatitis has the same problem with a med called Sofosbuvir, that can cure the disease in most cases. After protests, the government joined efforts with Spain and managed to buy Sofosbuvir for less.

[Change.org Canada @CdnChange]

Six-year-old Zahra is battling the deadly disease spinal muscular atrophy (#SMA). There is a treatment, but the drugmaker @Biogen charges $750,000. Join the tens of thousands of people asking Biogen to lower the cost of the drug and #SaveZahra. https://t.co/FYPQlCSgl9

[Riley Racer @Riley_Racer]

@biogen Do your share holders have something against compassion? Spinraza may be able to #SaveZahra, but how does a child come up with $750,000? I wonder if insurance companies even cover this medicine yet. Is it only for the rich? Help this child.

[Zahra @SaveZahraD]

@kylielclark @biogen Thank you @kylielclark, we surely consider that.
God bless you 🌹🌹🌹

[Zahra @SaveZahraD]

Please follow @SaveZahraD, and use #SaveZahra haghtag to SAVE an adorable child's life.
Without this, Zahra will die. Support her before it is too late. https://t.co/QMci1VKqCX

[duck historian 🐤 @leftistducc]

@biogen Please help save Zarah’s life! She has Spinal Muscular Atrophy and needs the drug Spinraza to recover. I know you’re amazing people who do good things for others, please lower the cost of the drug for Zarah and her family. @SaveZahraD #saveZahra