SclerodermaRF

Scleroderma Unit @royalfreenhs
Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer

[SclerodermaRF @SclerodermaRF]

Happy #WorldSclerodermaDay
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #RareDisease #Autoimmune #LifeChanging #UnknownCause #NoCure #Scleroderma #Raynauds #ConnectiveTissue #Collagen #Arthritis #InvisibleDisability #ChronicPain #DreamSnatcher #SclerodermaAwarenessMonth

[Royal Free Charity @RoyalFreeChty]

Today is #WorldSclerodermaDay. Scleroderma is a rare autoimmune condition that affects the skin and connective tissue and @RoyalFreeNHS runs a special unit to help treat the condition.

[nicola whitehill @cosmicfairy444]

June #SclerodermaAwarenessMonth 🌻This infographic shows the different types of scleroderma and their similar symptoms https://t.co/RGkiIiY4bm
Click Scleroderma and Raynaud's option https://t.co/vd8wz8p1G7 https://t.co/ik4hEwgGYk
#SclerodermaFreeWorld #BePartOfResearch #NoCure

[nicola whitehill @cosmicfairy444]

June #SclerodermaAwarenessMonth 🌻For facts sake infographic showing what scleroderma is, who it affects and how it is treated.
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #SystemicSclerosis #Autoimmune #RareDisease #NoCure #UnknownCause #BePartOfResearch #LifeChanging

[nicola whitehill @cosmicfairy444]

June #SclerodermaAwareness For facts sake infographic. This infographic highlights some statistics and facts about scleroderma.
#SclerodermaFreeWorld #RaynaudsFreeWorld #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch

[nicola whitehill @cosmicfairy444]

https://t.co/US8sLTdvMk
Wowee 10 years ago☝️#SclerodermaAwareness
June #SclerodermaAwarenessMonth 🌻 https://t.co/RGkiIiY4bm
Scroll for Scleroderma and Raynaud's option https://t.co/vd8wz8p1G7
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis

[nicola whitehill @cosmicfairy444]

June #SclerodermaAwareness Month 🌻#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch #ConnectiveTissue https://t.co/RGkiIiY4bm https://t.co/vd8wz8p1G7

[SclerodermaRF @SclerodermaRF]

@RheumNow #Telangiectasia June #SclerodermaAwarenessMonth
'Living with a rare disease without a cure is most character building, that's for sure
https://t.co/SXZpEse3hW
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #UnknownCause

[nicola whitehill @cosmicfairy444]

June #SclerodermaAwareness month https://t.co/RGkiIiY4bm
Choose amount, donate now. click on the box next to 'I'd like to donate to a specific appeal or fund' Scroll down the menu until Scleroderma and Raynauds https://t.co/vd8wz8p1G7
#SclerodermaFreeWorld #BePartOfResearch

[EUSTAR @EUSTAR_org]

🎙️ Exciting news from #EUSTAR_YIG! We’re launching a new #podcast series on #SystemicSclerosis research.
💥First episode: Decoding anti-Th/To+ in #Ssc- #EUSTAR study.
👉Register for free on the #WSF Academy Platform: https://t.co/C3vVh1hEGf and listen our podcast
Stay tuned❗

[SclerodermaRF @SclerodermaRF]

https://t.co/cIv314LmWz
Happy #clinicaltrialsday
Research provides HOPE for a cure 🙏
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

[nicola whitehill @cosmicfairy444]

Fabulous day 31st annual scleroderma family day @SclerodermaRF @RoyalFreeNHS Truly grateful for these amazing medical professionals 😇 sharing the same dream #SclerodermaFreeWorld 🙏 #RaynaudsFreeWorld #BePartOfResearch #scleroderma #autoimmune #RareDisease #NoCure #LifeChanging

[Alfredo Guillén-del-Castillo @_AlfredoGuillen]

I was very happy to participate in the annual Scleroderma Family Day at @RoyalFreeNHS, where I presented our experience of managing #SystemicSclerosis in Barcelona.
Thank you to the patients from the @AAEsclerodermia for their support!
@vallhebron @SclerodermaRF @GEAS_SEMI

[Royal Free London @RoyalFreeNHS]

We’re looking forward to welcoming patients, families, staff and the wider community on Saturday 16 May for the scleroderma unit family day as the unit celebrates its 31st anniversary 💛

Free to attend, open to all and no ticket required.

Expect opportunities to meet the team, learn more about scleroderma research and free massages from the Royal Free Charity complementary therapy team.

Find out more about Scleroderma on our website: https://t.co/UvH7WY7qcS

[nicola whitehill @cosmicfairy444]

Happy #InternationalNursesDay
Here I am with the amazing Rachel who is head nurse of clinical trials @SclerodermaRF @RoyalFreeNHS at the annual family day 2025.
This year's family day is THIS Saturday, 16th May
#SclerodermaFreeWorld #NoCure #RaynaudsFreeWorld #BePartOfResearch

[SclerodermaRF @SclerodermaRF]

1 week, 16th May annual family day 31st year anniversary of the scleroderma unit 🥳
FREE, accessible to all
Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton team
#SclerodermaFreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #BePartOfResearch #RareDisease

[SclerodermaRF @SclerodermaRF]

2 weeks Sat 16th May: annual family day and 31st year anniversary of the scleroderma unit 🥳
FREE, accessible to all @RoyalFreeNHS
#SclerodermaFreeWorld #RaynaudsFreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #BePartOfResearch

[SclerodermaRF @SclerodermaRF]

3 weeks to go, Sat 16th May: annual family day and 31st year anniversary of the scleroderma unit 🥳
FREE, accessible to all, no ticket required. Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton and team @RoyalFreeNHS 🌟🙏 https://t.co/TzoKlAjpv3
#SclerodermaFreeWorld

[Scleroderma Forum @ScleroForum]

Stay up to date with the latest #SSc science.

Our February slide decks + Literature Highlights just went live on the #SclerodermaForum!

Click here to explore: https://t.co/MUAHuizriK

[nicola whitehill @cosmicfairy444]

#AutoimmuneDiseaseAwarenessMonth Eternal gratitude to Prof Denton @DameCarolBlack @RoyalFreeNHS
#SclerodermaFreeWorld #RaynaudsFreeWorld
#Research #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

[SclerodermaRF @SclerodermaRF]

#WorldKidneyDay
https://t.co/pURPFrD5n9
#SclerodermaFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
@RoyalFreeNHS

[Scleroderma Forum @ScleroForum]

Hear from Professor Christopher Denton as part of our upcoming 'The Role of Autoantibodies in SSc'.

Professor Denton will be discussing autoantibodies in the classification and stratification of SSc. He's joined by three expert speakers for this 90-minute discussion.

Register for this live event here 👉 https://t.co/jWHzCn8dmv