Screen4Rare

A multi-stakeholder platform launched by IPOPI, ISNS and ESID aiming to exchange knowledge and best practices on newborn screening for rare diseases.

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👣 Every newborn deserves the best possible start.

Neonatal screening can help identify serious conditions early, supporting timely diagnosis, care and treatment.

A simple screening can make a lifelong difference. 💛

Learn more: https://t.co/Y6kzn65SSZ

#InternationalNeonatalScreeningDay #INSD #Screen4Rare #NewbornScreening #RareDiseases

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👶 International Neonatal Screening Day is a reminder that a safer start begins with early detection.

🌍 As we mark World Patient Safety Day, we reinforce the importance of newborn screening as part of safe, timely and effective care, helping conditions to be identified as early as possible and giving newborns the opportunity for the best possible start.

🔎 Early screening. Early diagnosis. Safer beginnings.

🔗 https://t.co/Q1uFA4U1DO

#InternationalNeonatalScreeningDay #WorldPatientSafetyDay #NewbornScreening #EarlyDiagnosis #IPOPI

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The importance of newborn screening goes beyond a single day. 💛

Every conversation about newborn screening helps keep its importance visible, supporting greater awareness, earlier diagnosis, and better outcomes for newborns worldwide. 🌍

Learn more: 🔗 https://t.co/Y6kzn65SSZ

#INSD #NewbornScreening #EarlyDiagnosis

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💙 Thank you for being part of International Neonatal Screening Day 2026!

Every share, comment and conversation helped raise awareness of the life-changing impact of newborn screening. 👶✨

While the campaign has ended, our advocacy continues. Together, we'll keep advocating for equitable access to newborn screening so every baby has the opportunity for an early diagnosis and timely care. 🌍💙

Thank you for helping us make a difference. 🙌

🔗 https://t.co/Q1uFA4U1DO

#NewbornScreening #RareDiseases

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🎥 We are pleased to share a message from Dr Michaela Majcin Dorcikova, from @UNITAR , supporting this year’s International Neonatal Screening Day campaign.

On #INSD2026, we continue to call for well-planned, equitable and sustainable newborn screening programmes that leave no child behind.

A warm thank you to Dr Dorcikova for supporting the campaign and helping raise awareness of the importance of newborn screening worldwide.

#InternationalNeonatalScreeningDay #NewbornScreening #RareDiseases #EarlyDiagnosis #Screen4Rare #PublicHealth #HealthEquity

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⏳ Just 1 day to go until #InternationalNeonatalScreeningDay!

👉 Learn more: https://t.co/W0DCPYkhQQ

#INSD2026

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🌍 A major milestone for newborn screening worldwide!

The World Health Organization has released its new framework for newborn screening, diagnosis and management, supporting countries in developing well-organised, inclusive and sustainable newborn screening programmes.

Early diagnosis saves lives. Strong, equitable newborn screening programmes can help ensure that every child has the best possible start.

See here: https://t.co/sgEz6Q31WD

#InternationalNeonatalScreeningDay #NewbornScreening #INSD #RareDiseases #EarlyDiagnosis #PublicHealth #WHO #ISNS

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👶 Did you know?

Only about 1 in 3 newborns worldwide receives any type of newborn screening.

As we approach International Neonatal Screening Day, this is a reminder that every baby deserves the opportunity for early diagnosis and timely care. 💙

👉 https://t.co/Y6kzn65SSZ

#INSD2026

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🧠 Quiz time!

🌍 Newborn screening relies on worldwide teamwork. What’s the goal?

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🎥 For International Neonatal Screening Day, we spoke with Prof Jim Bonham, President of the International Society for Neonatal Screening (ISNS), about the importance of newborn screening and why early diagnosis can transform the lives of babies and families.

Newborn screening is a simple test with life-changing potential: it can help identify serious but treatable conditions early, enabling timely access to care and better long-term outcomes.

Watch the interview and join us in calling for broader, more equitable implementation of neonatal screening programmes worldwide.

#INSD #InternationalNeonatalScreeningDay #NewbornScreening #RareDiseases #Screen4Rare #EarlyDiagnosis #IPOPI #ISNS

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🧠 Quiz time!

🧬Globally, newborn screening coverage is highly uneven. Which factor is the strongest determinant of whether a country has expanded NBS?

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👣 As International Neonatal Screening Day approaches, Ema's story reminds us of the power of early detection.

Today, she is thriving thanks to newborn screening and timely treatment. ✨

Every child deserves the best possible start in life. 💙

🔗 https://t.co/Y6kzn65SSZ

#InternationalNeonatalScreeningDay #Screen4Rare #NewbornScreening

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✅ Answer: When started early, treatment is simple and prevents severe developmental delay.

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🧠 Quiz time!

“From lab to life-saving care”👶 Early detection of Congenital Hypothyroidism changes outcomes.

🤔Why does it matter?

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💙 "Today, Presiyan is a big and smart boy, an active swimmer and an excellent student."

When newborn screening detected congenital hypothyroidism in Presiyan during his first days of life, early diagnosis and treatment made all the difference.

🙏 We are grateful to Anelia from Ruse, Bulgaria, for sharing her family's journey and highlighting the life-changing impact of newborn screening.

Every child deserves the best possible start in life.

🔗 https://t.co/Y6kzn65SSZ

#InternationalNeonatalScreeningDay #NewbornScreening

[Screen4Rare @Screen4Rare]

🧡 As International Neonatal Screening Day approaches, we invite you to explore My PKU Life, a platform created by PKU advocate and storyteller Kevin Alexander to share the experiences of individuals living with Phenylketonuria (PKU).

🎥 Through personal stories, videos, and educational resources, the website highlights the lifelong impact of early diagnosis through newborn screening and the importance of ensuring access to timely detection and care for all newborns.

🔗 Explore the platform: https://t.co/Q0jjVAqpTu

#InternationalNeonatalScreeningDay #NewbornScreening #PKU