Shadow Jumpers provides meaningful experiences and a sense of community to individuals and families living with sun-related disorders and disabilities.
Tomorrow the Kypreos family will be in the building as the #SJSharks take on the Ducks. Addison will be crossing off some more cool experiences so tune in ๐
Meet Addison and the Kypreos family ๐
Addison has Erythropoietic Protoporphyria, a rare disorder that makes her extremely sensitive to the sun. Because of her disorder and subsequent liver failure, Addison had to temporarily give up her favorite sport; hockey.
The #SJSharks and @ShadowJumpers_ teamed up to give her the ultimate hockey weekend with her favorite team!
Triathlon? โ๏ธ Doing it while covered up? โ๏ธโ๏ธ Beating the sun like itโs no problem? โ๏ธโ๏ธโ๏ธ Congrats to Addison, who crushed her Triathlon this past weekend sun and all. #shadowjumpers#longsleevecrew