AJB and Me

Wife, Mom to AJB, learning about Ataxia and Mitochondrial disease and passionate about disability inclusion and advocacy

[AJB and Me @Shan59835986]

@TheTextLine He says thanks!!!

[AJB and Me @Shan59835986]

@Patriots @NFL AJB x 2 ! We can’t thank you enough for this experience ❤️❤️❤️

[New England Patriots @Patriots]

A.J Brown meets a young fan named AJ Brown 🥹

[AJB and Me @Shan59835986]

@AlbertBreer That’s my dude!!! #ajbspowerhousepack

[AJB and Me @Shan59835986]

@libsoftiktok What’s even funnier is how they don’t want to give my disabled son - born and raised in Mass- his benefits! Seems a little backwards…

[AJB and Me @Shan59835986]

@maura_healey Still waiting for you to tell me why Mass Health kicked my disabled child off his coverage. Tried to get answers from the clowns you call customer service today but all he could tell me was “they can term me at anytime” and “no, I can’t escalate this we don’t have supervisors” 🤡

[MitoAction @MitoAction]

Join us at an Energy Walk near you this fall! Check out all four of our wonderful 2025 Energy Walk locations and dates. Visit our website to learn more and register. Riverside registration is coming soon! https://t.co/MrCtiLa7WN

[National Disability Rights Network @NDRNadvocates]

National Disability Rights Network condemns passage of Federal budget bill and deep cuts to Medicaid. Read our statement here:

https://t.co/FbI9PqwSzc

[AJB and Me @Shan59835986]

@MassGovernor Who is protecting my disabled child that keeps getting kicked off Mass Health benefits!? It’s certainly not you

[MitoAction @MitoAction]

Mito can affect any organ at any age and cause any symptoms. It often impacts multiple family members.

1 in 5,000 children have a severe or life-threatening fom of mito.

Learn more: https://t.co/LoPWHRvenS

#IlluminateTomorrow #WorldMitoWeek2024

[National Disability Rights Network @NDRNadvocates]

A legacy media institution as respected as The Economist should not be normalizing ableism. By equating mobility aids with inability they are sending the message that people with disabilities aren't capable of holding public office.

[The Arc of the United States @TheArcUS]

The media can & must do better—narratives like these cause real harm to people w/ disabilities, including health disparities & exclusion from community life. @CBSNews, here are guides & insights on more ethical & inclusive reporting to share w/ your staff https://t.co/RTwvBeLA8b

[National Disability Rights Network @NDRNadvocates]

"The reality is that there are children in this country who are still considered of insufficient quality to go to school. This would never be deemed acceptable for students without disabilities.” –Diane Smith Howard, NDRN Managing Attorney for Institutions & Community Integration

[Rare Disease Day @rarediseaseday]

🎉 Today marks the first day of Rare Disease Awareness Month 2023!

📣 Join us this month to raise awareness for the 300 million people living with a rare disease worldwide!

👉 Find out how you can get involved: https://t.co/93MyugM5Zx

[Mrs. Fumicello @kfumicello]

Look who turned 6!

[AJB and Me @Shan59835986]

@Reeveswoburn 👏 👏 👏

[Mrs. Fumicello @kfumicello]

Look who got to feed and hang out with Bubbles!

[AJB and Me @Shan59835986]

@kfumicello He must have been pumped!

[Mrs. Fumicello @kfumicello]

So much fun evacuating the smoke house! Thanks firefighter John for teaching us about fire safety.