Wellbeing support when parenting SEND children is non-negotiable. I have said it before and will keep saying it. 💛
If you cannot prioritise it for yourself — do it for your child.
Our children feel our low mood, our poor mental health, our depletion.
Write down everything you want to say before that meeting. Every concern. Every question. Every point. 💛
Because the moment you sit down — things go out of your head. Important things. I know because it happened to me over and over.
Now everything goes in my notes.
A safe space for SEND families is non-judgmental. A place where you do not feel watched or like the only one. Where you see people with similar experiences. 💛
A space where you can just be yourself.
We need to keep creating these spaces for families like ours.
When we ask for help — we need it now. Not in three months. 💛
The waiting is one of the most detrimental things in the SEND system.
Find your local parent carer forum. Your family hub. Your SEND community.
We are the experts on our children. I said it to the Department for Education. And I will keep saying it. 💛
Never be afraid to speak up — even when things in your child's annual review are inaccurate. Especially then.
Trust in SEND services is at an all-time low. Not without reason. 💛
We have been let down — by education, health, social care, housing — so many times that faith has simply run out.
And we are discerning. We know who is genuinely there to help and who is just ticking boxes.
One of the hardest lessons in SEND advocacy — from personal experience. 💛
Take the emotion out of the situation. As much as possible.
Not because your feelings do not matter. But because policy and procedure are there to protect you.
When your child's needs are being missed — behaviour is the first thing to change. 💛
Acting out of character. Increasing challenging behaviour. Something that feels different.
That is your fastest indicator. Your child telling you something is not working.
Asking for support does not mean you are failing. It means you are human. 💛
So many SEND families carry shame around reaching out — the narrative that needing help means not coping.
But that narrative is not the truth.
SEND training that stops at senior leadership is not enough. 💛
Our children interact with every person in that school. Dinner ladies. Teaching assistants. Midday staff. Janitors.
Every one of them needs a baseline level of SEND awareness.
There should be a framework.
When a SEND parent shows up frustrated, emotional, at the end of everything they have — that is not a difficult parent. 💛
That is a parent who has been carrying this for so long that this is all they have left.
Schools and professionals — please meet that with compassion.
Showing up at a service and seeing someone from your culture. Someone who is culturally affirming. Someone who understands. 💛
That moment goes such a long way.
It creates trust and safety that nothing else can replicate.
Most SEND parents wait too long to ask for support. The reason is always the same — the belief that they should be able to handle this alone. 💛
But this is uncharted territory. For all of us.
Seek support early. Find your community. Find your tribe.
Three things that would change everything for SEND families. 💛
1️⃣ Listen. Genuinely.
2️⃣ Take visible, meaningful action.
3️⃣ Come back and communicate the results.
Too many of us feel like things are done to us rather than with us.
Headaches. Flu-like symptoms. Unable to function normally. Struggling to care for your other children. 💛
These are your body's signs that the weight has become too much.
For SEND parents — the goal is always to have support in place before burnout hits.
Perfect at school. Completely falls apart at home. 💛
This is masking. All day your child conforms — suppresses everything — to fit the expected behaviour. Home is the safe space where it all comes out.
No folding chairs allowed at a park event. 💛
For someone with a disability who cannot stand for long — that one unconsidered rule meant no access at all.
This is what inaccessibility looks like in everyday life. Small. Unconsidered. Completely excluding.
Is the school doing enough for your SEND child? The answer is not in the paperwork. 💛
Look at the child.
Meltdowns. Behaviour. Peer interactions. Daily experience.
And remember — sometimes schools are doing a lot of things that are not right for that particular child.
How do schools rebuild trust with SEND families they have let down? 💛
Three things. In this exact order.
1️⃣ Listen. Genuinely.
2️⃣ Take visible, meaningful action.
3️⃣ Communicate the results — come back and show families what changed.
Two things every SEND parent needs at school. 💛
1️⃣ A trusted person — head of year, good teacher, senior leader. Use them as your bridge to the right ears.
2️⃣ A paper trail. Put EVERYTHING in writing. Every time. Phone call? Follow up with email immediately.