Shelly Williamson 💙

Chair of IIH UK. Daughter lives with IIH, Epilepsy, Autism, PDA, Chiari, IBS, Asthma and psoriasis. All views are my own.

[IIH UK @IIHUK]

We’ve added an important message to the latest news section on our website today regarding the IIH Intervention trial.
https://t.co/qQZ3o3XIZ2

[IIH UK @IIHUK]

Coming soon!

Today we joined @ur1FitLife at their studio in Christchurch for a day of filming for an exciting new project! More coming soon.

#GetMovingWithIIH
#Working2RelieveThePressure

[IIH UK @IIHUK]

Thank you BIOS for promoting the HOPE Programme for people with IIH in your newsletter! @HOPE4TC

https://t.co/CqIzXtDkqp

[Sally Abbott @sallyabbottRD]

We have recently published our study on the experiences of PLwO prior to/soon after undergoing bariatric surgery. Highlights the need for #psychological support and to reduce waiting times for #bariatricsurgery
https://t.co/Q2LtS3soxz

[Dr Susan Mollan @DrMollan]

Nitrous oxide causes sight threatening papilloedema. Important to ask about recreational drugs. https://t.co/jvWj1wMwFt
@UHBNeurosurgery @IMSR_UoB @eyeuhbtrust @UKNOSoc @NANOSTweets @EunoSsociety @djnicholl @ABNTrainees @NANSIG1

[Dr Susan Mollan @DrMollan]

@UHBNeurosurgery @aimee_goel https://t.co/jvWj1wMwFt

[Shelly Williamson 💙 @ShellyW64]

@O_Grech @BrainLabBhamUk @daniel_j_fulton @IMSR_UoB @unibirm_MDS I love this post! Congratulations Dr Grech. 👏👏👏👏

[Shelly Williamson 💙 @ShellyW64]

@ZoeLCook @DrMollan She’s atypical IIH as she’s never been overweight. Currently 59kg x

[Shelly Williamson 💙 @ShellyW64]

@ZoeLCook @DrMollan That was 10 years ago, nothing since. :)

[Shelly Williamson 💙 @ShellyW64]

@O_Grech @EHF_Official @BrainLabBhamUk @HeadacheKCL Congrats Olivia. Well deserved. 👏👏👏

[Sally Abbott @sallyabbottRD]

An important publication on the patients’ perspective of healthcare communication about weight management for Idiopathic Intracranial Hypertension (IIH), including recommendations from patients on how HCPs can improve their practice https://t.co/CSDT9arELo

@DrMollan @IIHUK

[IIH UK @IIHUK]

Just published!

Weight management communications in idiopathic intracranial hypertension: challenges and recommendations from the patients’ perspective

https://t.co/d3EnFonTbJ

[Mark @MarkHeadache]

Short summaries: #IIH and #pregnancy
- Disease control before preg recommended
- IIH diagnosed in preg was rare 2%
- Similar long term #visual #outcomes between those with established IIH who become pregnant and never pregnant
https://t.co/PJKGdn9zYQ

@BrainLabBhamUk @IIHUK

[Mark @MarkHeadache]

#Headache #Stigma is massive and all aspects of life affected. Excellent study #EHC23 by Prof Goadsby. We can all do better, certainly in work and medical colleagues.

[Mark @MarkHeadache]

#EHC2023 #IIH #Pregnancy
Does pregnancy affect outcomes in IIH?
https://t.co/3vgGbM9x4q

What's the risk of gestational problems?
https://t.co/mVbDUiYKYE

Need practical advice on managing IIH in pregnancy?
https://t.co/sSdZWuUCm9

@DrMollan @BrainLabBhamUk @EHF_Official @IIHUK