#SMAJourney: Meet Dilkhush & Raghav, #SMAwarrior brothers from Bihar. Their story is one of unyielding resilience. When scoliosis dimmed dreams, prenatal testing revealed SMA fate for Raghav. Amidst self-blame, the mother's strength shines. Raghav's #Spinraza access through SIPHAP at @peerless_info brings hope, while Dilkhush's scoliosis restricts. Their story echoes unwavering love amidst helplessness!
@biogen
#BattleAgainstSMA
#StrengthInAdversity #HopePrevails
#SMAawarenessMonth
Day 17: Discover today's factsheet, which delves into managing swallowing difficulties through dietary adjustments and adaptive feeding techniques. These practical insights are tailored for home care, offering valuable assistance. Your daily read brings you closer to effective #SMA management. 📖💙 #SMAcare #KnowledgeSharing
#SMAawareness
#SMAawarenessMonth
Day 16: As we continue our efforts to raise awareness about #SMA, focusing on gastric complications is vital. Did you know that gastric issues are the second most common reason for hospitalization among SMA patients? Often, we face symptoms without understanding their origins or how to manage them. We encourage you to read and share this valuable information. #BattleAgainstSMA
#GastricIssues
Embark on an inspiring #SMAJourney with us! Meet Ruvantika & Immanuel Kavipriyan, #SMArtwarriors from Tamil Nadu. Their mom, Selva Sri Priya, shares their story of strength and determination, managing care for two SMA children with unique needs. She's also raising awareness for G-tube users through their journey. More power to these mighty warriors and their dedicated parents! 💪💪👍 #SMAAwareness #InspirationalStories
#homeschooling
#SMAjourney : Follow the inspiring journey of Ahan Pal from West Bengal, who battled #SMA Type 2 with unwavering strength. From his first steps to his educational milestones, his parents Tapas and Brojokishori stood by his side. Let's raise #SMAawareness and join the #BattleAgainstSMA. 💪