Looking for a fun way to connect with other ms'ers? Email [email protected] or [email protected] & find out about weekend hosting on our X platform ๐
"Must be nice," they say. ๐๏ธ
Gentle reminder: resting with a chronic condition is very different from a cosy weekend off. Letโs trade "must be nice" for "how are you holding up today?" ๐
Download the https://t.co/y4oSv64QGW app for free ๐๐ฑ
#MS#multiplesclerosis
How did you adapt your working life to prioritise your health and wellbeing? Letโs get a conversation started ๐๏ธ
To watch the full video, head to the https://t.co/y4oSv64QGW app, link in bio ๐คณ
#newvideoseries#MS#msawareness#chronicillness#spoonie
Episode 2 of Re:Work is here. In this episode, Emma, Mary, Noah and Qamar talk about how their symptoms initially affected their work and how they started to manage their MS from the ground up.
As with most MS realities, it definitely wasnโt all rainbows and butterflies. The mental effort, adaptability and re-learning it takes to continue with your career is no joke.
@sxsw@MSassociation@gpeps โณ Voting closes THIS Sunday, 23rd August!
If you want to see the MS community set the standard for patient-led innovation, please take 2 minutes to vote for our session today.
Through Re:Work, our community are defying what it means to be an MSer at work.
Mary found that she could defy the statistics to work out how to make her career work for her.
It wasn't easy for the Re:Work team; some were advised to hide their diagnosis to avoid potential discrimination. Others, however, found that being open about their condition fostered an empathetic work environment.
Vote now to bring the MS community to the world stage! ๐
We believe that when it comes to living with MS, MSers are the experts in the room. So why, when innovating how MS is diagnosed, treated and managed, are MSers left out of the conversation?
@msaa@sxsw Help us show the world that the MS community leads the way.
The deadline to vote is this Sunday 23rd August. If you believe research should be driven by the people living it, please spare 2 minutes and vote for our session now!
Ah yes, because immune systems are famously visible from across the room๐ฎ
Turns out "looking fine" on the outside doesn't stop your immune system from throwing an uninvited rave on your nerve pathways on the inside.
Download the https://t.co/y4oSv64QGW app for free ๐๐ฑ
#MS