SickleCellWI

Official account of @DrAmandaBrandow and @AshimaSinghPhD's #SCD research in WI focused on improving patient outcomes & healthcare at MCW. Tweets are our own

[SickleCellWI @SickleCellWI]

https://t.co/QSe4zlUIfi

[SickleCellWI @SickleCellWI]

Navigating Sickle Cell Disease in Wisconsin? You don't have to do it alone. 🩸

Meet Ms. Barb, a FREE Health Liaison at Versiti Blood Center. She helps families book appointments, secure medical transit, find food pantries, and access job training. Link in comments

[SickleCellWI @SickleCellWI]

From the hospital to the court, BJ is the ultimate teammate! 🏀 Living with #sicklecelldisease, his spirit is unstoppable. Our #scdresearchteam was proud to support him today alongside #TeamIMPACT & Marquette Basketball! @childrenswi @MarquetteMBB @965WKLH #miraclemarathon

[SickleCellWI @SickleCellWI]

We’ve met many heroes, but none like BJ. As a #SickleCellWarrior, his resilience and smile light up the world. Shoutout to his incredible mom—the superhero behind the legend! We’re officially massive fans & so stoked to get our signed shirts. Keep shining, BJ! #sicklecelldisease

[SickleCellWI @SickleCellWI]

@MedicalCollege @Froedtert @childrenswi

[SickleCellWI @SickleCellWI]

Remembering an impactful #SickleCellAwarenessMonth Grand Rounds! #FlashbackFriday honors Ed Jenkins & Dr. Singh for their powerful talk on sickle cell disease. Their insights on awareness, advocacy, and research left us truly inspired. Thank you for sharing your story and work!

[SickleCellWI @SickleCellWI]

Meet James Griffin, a #Warrior & #PublishedAuthor with #SickleCellDisease. This #SickleCellAwarenessMonth, we're launching a photoblog series to elevate and humanize the powerful stories of members of the SCD community, like James. Read his story here: https://t.co/6OvNYsBR0O

[Alaafia @alaafisisc]

Amanda Brandow DO. Congratulations on Your Alaafia Lifetime Award. Thank you for being a beacon of hope and a force for positive change. This recognition is well-deserved, and we are proud to stand with you in the continued work toward justice, healing, and empowerment.

[SickleCellWI @SickleCellWI]

#FlashbackFriday shoutout to our amazing hematologists, Dr. Brandow, Dr. Remiker & Dr. Azul, on #NationalDoctorsDay! Thanks for your dedication to #sicklecelldisease patients! 💪 @childrenswi @medicalcollege

[SickleCellWI @SickleCellWI]

Happy #WorldSocialWorkDay! Celebrating Nicole & Barb, our amazing social worker & community navigator, for their unwavering support & compassion for our pediatric sickle cell families. Thank you for your tireless dedication! #SocialWork #SickleCellAwareness @childrenswi

[SickleCellWI @SickleCellWI]

@MedicalCollege @Froedtert @childrenswi @CDCgov @CDC_NCBDDD @UWHealth @PhxChildrens @alaafisisc

[SickleCellWI @SickleCellWI]

❤️Big thanks to everyone who attended our SCDC-WI Multidisciplinary Team meeting last Friday! Your contributions are invaluable to improving the lives of those with SCD in WI. 🤝 Together, we can make a real difference! #SickleCell #SCD #SCDCWI #Impact #MakingADifference

[SickleCellWI @SickleCellWI]

📢 2 Scholarships for #Students with #SickleCellDisease! 🎓
💰$1,000 from GladysStreetFoundation. Apply Jan 2nd-Mar 31st! https://t.co/DYL2WgIPUe
📍WI Residents: Scholarship for Sickle Cell Patients. Apply Mar 5-Apr 17! https://t.co/qhUNdl7aFv @childrenswi @froedtert @uwhealth

[SickleCellWI @SickleCellWI]

#FlashbackFriday to our amazing time at the #BlackHistoryMonthHealthEvent hosted by @BloodCenterWI. Honored to be part of a powerful celebration of community & history. We're committed to working alongside our neighbors to raise #SCDawareness in WI. @childrenswi @MedicalCollege

[SCDAA @SCDAAorg]

February is Heart Month. Did you know that people with SCD face an increased risk of high blood pressure and other heart-related complications? Protecting your heart is essential—take steps toward better heart health with this helpful guide from the CDC: https://t.co/yu8R1sGiHf

[SickleCellWI @SickleCellWI]

Individuals with #SickleCellDisease (SCD) often require routine blood transfusions to manage pain, prevent complications & maintain their quality of life. Learn more about the importance of blood donations for individuals with #SCD from @RedCross

https://t.co/VMSosnQcDv

[Scientific American @sciam]

This special report on sickle cell disease explores the promise and challenges of new therapies.

This is editorially independent content produced with support from @VertexPharma https://t.co/VrhIGbNLGc

[CDC @CDCgov]

Blood donations from Black donors can help save lives! Sickle cell disease (SCD) affects about 100,000 Americans, most of whom are of African descent. Blood from donors of similar race and ethnicity can help reduce health problems during a blood transfusion. Watch to learn more:

[SickleCellWI @SickleCellWI]

Compensation update: Participants will receive $40 instead of $35

[SickleCellWI @SickleCellWI]

Calling all people with #scd who have #givenbirth in the past 2 years! Check out this #researchopportunity & contact Elizabeth Borto at [email protected] to see if you are eligible to participate in this study @MedicalCollege @childrenswi @Froedtert @NorthwesternU

[SickleCellWI @SickleCellWI]

#FlashbackFriday
Last month, we celebrated the holidays with our amazing #sicklecellcommunity! It was a heartwarming day filled with laughter, connection & joy. Thank u to everyone who joined us &made the event so special. @childrenswi #sicklecellawareness #sicklecellwarriors