Joyce Koelewijn-Tukker

[Sjogren's Syndrome Info @SjogrensTrials]

The relationship between neuropathic pain and lower urinary tract symptom scores in patients with primary Sjögren’s syndrome. #Sjogrens
Research | Open access | Published: 20 November 2024 https://t.co/SC089NZt7d

[Sjögren Europe @SjogrenEurope]

Our recent webinar on mental health is now available !🌟

👉 https://t.co/yd9peA30v4

Expert advice on managing mental health challenges, tools for mental well-being…

Let’s continue breaking the stigma and empowering each other with knowledge‼️

#Sjögren #Disease #mentalhealth

[Joyce Koelewijn-Tukker @SjogrenJoyce]

@SjogrenEurope Worth to watch!!!

[Sjögren Europe @SjogrenEurope]

#Sjögren patients often experiment stress, anxiety and depression. Join us for this free webinar where we will address these issues with Dr Al Freedman, psychologist

Don’t forget to register ⬇️

https://t.co/d9N31WEI7K

[Sjögren Europe @SjogrenEurope]

📣 FOREUM has launched a one-year "Call for International Fellowships" to support RMD research and foster global collaboration in rheumatology.

Details on their website. Letters of intent due by 10 Nov 2024!

https://t.co/MVABNpVUne

#funding #research #foreum #rheumatology

[Sjögren Europe @SjogrenEurope]

#Sjögren patients, let’s be heard! 📣

Sjögren Europe board members are helping develop the "Sjögren’s Tool for Assessing Flare." Join us by taking the survey below

Let’s contribute to research ‼️

https://t.co/yZIawumYNh

#UnmetNeeds #Research #PatientVoice #PatientPartnership

[Sjögren Europe @SjogrenEurope]

SAVE THE DATE - 18th july 2024📣

Free, open to anyone and subtitles in many languages. 🌍
To register :
https://t.co/fT5bqPy0sj

#webinar #dysautonomia #unmetneeds #Sjogren #worldsjogrenday #neurological

[Joyce Koelewijn-Tukker @SjogrenJoyce]

@KPKellyNC @SjogrenEurope Yes, it is available on https://t.co/Ylg5t9vMDB
In the future it will be available at the Sjögren Europe website as well.

[Sjögren Europe @SjogrenEurope]

After a very strict Delphi consensus process, with top experts in rCTDs, our #Sjögren T Rex buddy 🦖 finally got a name: Maurizio. Isn’t he a sweetie?? Come around and say hi! @ern_reconnet @eular_org

[Ana Vieira @SjogrenpowerAna]

My dream trial for #Sjögren disease: CAR-T cell therapy. How far are we to make it real? 📣 Shout to researchers with interest in Sjögren: can we make it happen?? Hope is insanely needed for patients living with this complex, debilitating and challenging condition.
#EULAR2024

[Sjögren Europe @SjogrenEurope]

On International Women's Day we want to pay tribute to women who face daily challenges due to diseases like #Sjögren. Despite the daily obstacles, keep taking care of yourselves, keep working, keep studying and keep fighting so that the disease does not define you!

[Manuel Ramos-Casals @ramos_casals]

Special issue on Sjögren (December 2023) of the journal Clinical & Experimental Rheumatology.
The easiest way to be updated about the latest research advances in Sjögren's disease:
· Impact of climate change and pollution
· Microbiota
· Inflammasome
· Organelle development
· Sex and age at diagnosis
· Evolution of glandular function
· Diagnostic Role of Salivary Electrolytes
· Dental Implants & Oral Health
· Cardiovascular Risk and Metabolism
· Subgroups: anticentromere, thyroiditis, RA
· Neural networks and machine learning
· New diagnostic techniques: ultrasound, PET

FREE ACCESS TO ALL MANUSCRIPTS!!
https://t.co/yoUYbNHkrt

[Coralie Bouillot @CoBouillot]

Combined anti‐Ro52/TRIM21 and anti‐Ro60/SSA antibodies are associated with increased #Sjögren's disease severity through interferon pathway activation - Bettacchioli - Arthritis & Rheumatology @ACRheum https://t.co/V0lp902Koy

[Sjögren Europe @SjogrenEurope]

Survey on #neurological manifestations of #Sjögren. Rheum community, please share the link with your patients! Patient feedback on this poorly addressed topic is urgently needed. Thank YOU! (available in 6 European languages)

https://t.co/6ZFxSOqfit

[Joyce Koelewijn-Tukker @SjogrenJoyce]

@springles82 Congratulations!

[Sjögren Europe @SjogrenEurope]

Day 1 at @eular_org congress 2023 in Milan. Make sure you stop by booth Z19. #Sjögren #SjögrenEurope #EULAR2023

[Sjögren Europe @SjogrenEurope]

EULAR 2023 is about to start and we're looking forward to meeting you at our #SjögrenEurope booth Z19. The European Congress of Rheumatology is the perfect place for researchers, rheumatologists, health care professionals and patients to exchange information and connect. #Sjögren

[Sjögren Europe @SjogrenEurope]

Our April's campaign has given the spotlight to the numerous patient #unmetneeds. Many thanks to all who contributed to the success of this campaign: together we can make positive changes and build up a better future for #Sjögren's patients. It's time for #change! #patientsmatter

[Joyce Koelewijn-Tukker @SjogrenJoyce]

April is Sjögren Awareness maand, meer bekendheid over de onvervulde behoeften van de Sjögrenpatiënten is van groot belang.
De Nederlandse vertalingen van deze campagne zijn ook te vinden op https://t.co/xV7dV42eFW

[Sjögren Europe @SjogrenEurope]

It's time for change! The numerous unmet needs must be acknowledged and addressed. #SjögrensAwarenessMonth #Sjögren #SjögrenEurope #patientsmatter #patientsvoice #timeforchange #StrongerTogether #unmetneeds

[Sjögren Europe @SjogrenEurope]

It's time for change! The numerous unmet needs must be acknowledged and addressed. #SjögrensAwarenessMonth #Sjögren #SjögrenEurope #patientsmatter #patientsvoice #timeforchange #StrongerTogether #unmetneeds