NISR Solutions

National and International Skin Registry Solutions CLG

[NISR Solutions @SkinRegs]

We are all proud to be part of this collaboration to advance patient registries in Ireland!

[Health Research Charities Ireland - HRCI @HRCIreland]

Today, HRCI & our collaborators NISR & CFRI publish 𝐔𝐧𝐥𝐨𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐏𝐨𝐭𝐞𝐧𝐭𝐢𝐚𝐥 𝐨𝐟 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬: 𝐀 𝐆𝐮𝐢𝐝𝐞 𝐟𝐨𝐫 𝐒𝐮𝐜𝐜𝐞𝐬𝐬. It lays out practical advice on developing & sustaining a patient registry. https://t.co/BV2SrDG0Aq

[NISR Solutions @SkinRegs]

We’re excited to announce our first Annual Report will be published soon. Visit our website and subscribe to our mailing list to be among the first to receive it. https://t.co/1BPMgeDFag

[NISR Solutions @SkinRegs]

We're thrilled to announce our first Annual Report will be released soon. Visit our website and subscribe to our mailing list be among the first to receive it. https://t.co/1BPMgeD7kI

[IPPOSI @IPPOSI]

As part of implementing the EU Health Data Space, @HIQA @roinnslainte @HSELive @hrbireland are creating a Public/Patient Involvement Panel on “Collecting, using, sharing health information for better services, policy, research & innovation” Details here: https://t.co/PMAFYamT2B

[NISR Solutions @SkinRegs]

The Irish EB registry is open and looking for participants, check out this great video to learn more. To register please call @CHIatCrumlin on 01-428 2646
#healthresearchmatters #EB

[NISR Solutions @SkinRegs]

Last years fantastic guide on Unlocking the Potential of Patient Registries, read it here:

[Health Research Charities Ireland - HRCI @HRCIreland]

Today, HRCI & our collaborators NISR & CFRI publish 𝐔𝐧𝐥𝐨𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐏𝐨𝐭𝐞𝐧𝐭𝐢𝐚𝐥 𝐨𝐟 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬: 𝐀 𝐆𝐮𝐢𝐝𝐞 𝐟𝐨𝐫 𝐒𝐮𝐜𝐜𝐞𝐬𝐬. It lays out practical advice on developing & sustaining a patient registry. https://t.co/BV2SrDG0Aq

[Dmitri Wall @DmitriWall]

This is absolutely wonderful! A huge thank you from all the GRASS communities! @BSFcharity @AlopeciaUK
@SinclairDerm @StaraceMichela @Desaze @SergioVanoG @Lidia_Rudnicka @NekiMeah
@SkinRegs

[NISR Solutions @SkinRegs]

RT @HRCIreland: Exciting news! We've just launched the Report & Recommendations from the Nov 2023 Irish Health Research Forum, delving into…

[NISR Solutions @SkinRegs]

Are you a researcher interested in #EB, #Alopecia, or #Eczema?

CONTACT US to learn more about how OUR IRISH PATIENT REGISTRIES support research!

[NISR Solutions @SkinRegs]

Are you a researcher interested in #EB, #Alopecia, or #Eczema? Contact us to learn more about how our Irish patient registries support research! #Skin #registries

[IrishSkin.ie @ISFcharity]

April is #RosaceaAwarenessMonth - #rosacea is a common #skincondition, which mainly affects facial skin. It's most often seen in people who've fair skin & often referred to as the 'Curse of the Celts'. For more, check out our rosacea information page at: https://t.co/TNawUyCMDg

[National Cancer Registry Ireland @IrishCancerReg]

Thank you to all our partners, stakeholders and colleagues for joining us yesterday to mark #30YearsOfData collection, and to celebrate the launch of our 2024 – 2026 Strategic Plan https://t.co/0xRgjjJlDO
@hseNCCP @NSShse @BreakthroCancer @cancertrials_ie

[NISR Solutions @SkinRegs]

RT @IrishCancerReg: This year we celebrate #30YearsOfData collection, a significant milestone in Ireland's efforts to fight cancer. Ministe…

[NISR Solutions @SkinRegs]

RT @AvrilKennan: At the launch of the new @IrishCancerReg strategy, @DonnellyStephen talks about the value of registry data to improve serv…

[NISR Solutions @SkinRegs]

RT @RareDiseasesIE: It's #RareDiseaseDay tomorrow - a day to think about all of those living with rare diseases. Their families and loved o…

[NISR Solutions @SkinRegs]

RT @AllergyEaaci: Open Access: Impact of climate change on atopic dermatitis: A review by the International Eczema Council. First author: S…

[Rare Diseases Ireland @RareDiseasesIE]

~50 people joined first meeting of Rare Disease Patient Forum. Group will feed into development of new National Rare Disease Strategy. Clear there is considerable interest amongst those living with rare diseases in this work. You can still join the group https://t.co/hsmhhXta7Z

[IrishSkin.ie @ISFcharity]

Listen back to @CRdermatology as she discusses different types of #hairloss and ways to treat it with @PatKennyNT #alopecia #alopeciaawareness https://t.co/kymjTQmgto

[NISR Solutions @SkinRegs]

A New Consensus on Assessing Alopecia https://t.co/UaFaaduxiU via @Dermatology Times

[NISR Solutions @SkinRegs]

RT @DermTimesNow: A consensus statement recently published, the Alopecia Areata Severity and Morbidity Index Study, identified several key…

[Dmitri Wall @DmitriWall]

Thanks @DermTimesNow for summarising and sharing our @JAMADerm article (https://t.co/pNOrcn5NJx)
#alopeciaareata #alopecia #ASAMI