🖤⚫ Jenny B

Moderate to Severe spoonie, just doing what I can...
🎶Gonna start a revolution from my bed🎶

[🖤⚫ Jenny B @SleepyJen]

People make me sick. No offence, it is really sad, but also really true.

I wonder how many other #pwme have to self isolate in order to attempt prevention of flares and crashes.

#ThingsDisabledPeopleKnow

[🖤⚫ Jenny B @SleepyJen]

#SaveKatiana
#greatest

[Amy @alexandrite113]

@katiamek @ProperChels34 https://t.co/QpYgql1Lia

[🖤⚫ Jenny B @SleepyJen]

#SaveKatiana
#greatestmed

[Amy @alexandrite113]

@katiamek @ProperChels34 Here is a recent article from @TheCanaryUK describing Katiana's situation BEFORE she was involuntarily hospitalized. It was already nightmarish even then. - https://t.co/HDqVIoFPDb

[🖤⚫ Jenny B @SleepyJen]

#SaveKatiana
#greatestmed

[Amy @alexandrite113]

What we've been dreading has happened: my friend Katiana (@katiamek) is on her way to being involuntarily hospitalized. Her family believes she is not sick, same with the doctors there. She has VERY SEVERE ME/CFS and this could easily kill her.

She and Josh (@ProperChels34) have been in contact but he is very severe right now and has delegated Katiana's wishes to me. Josh is in contact with Katiana's Greek contacts but if anyone else has any ideas to help, PLEASE contact me. We NEED to get her out. Josh is in contact with someone who is speaking with Katiana's mother and will keep me updated on it but the situation doesn't look good right now.

[🖤⚫ Jenny B @SleepyJen]

#GreatestMEdicalScandal
#Savek

[kirbs 🦋 @kirstymecfslife]

Severe ME is the living death.
Almost any kind of exertion causes suffering and could drastically worsen someone’s baseline for years!

Instead of getting help patients get abused, neglected and send to a psychiatric hospital.

#SaveKatiana 💙

#GreatestMEdicalScandal

[🖤⚫ Jenny B @SleepyJen]

#GreatestMEdicalScandal #Long

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Please read 🙏 #SaveKatiana #MyalgicEncephalomyelitis #LongCovid #MedTwitter #Greece

[🖤⚫ Jenny B @SleepyJen]

Please take 2 mins to help save a life 💙❤️ Read and take action!

#SaveKatiana #MyalgicEncephalomyelitis
#pwME
#MECFS

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Please read 🙏 #SaveKatiana #MyalgicEncephalomyelitis #LongCovid #MedTwitter #Greece

[🖤⚫ Jenny B @SleepyJen]

.@jeffsmithetc I've responded to @DefraGovUK sandeel consultation to support a ban on industrial trawling for this important fish in English waters. Please lend your support and help save our globally threatened seabirds who rely on sandeels to survive. #SaveOurSeabirds

[🖤⚫ Jenny B @SleepyJen]

Have any wheelchair users experienced access issues with Multistorey Carparks. I found myself in one today with no lifts, no signage, no staff in sight! The lady on the help button told me they didn't have any lifts & they weren't a legal requirement. Really? #DisabilityRights

[🖤⚫ Jenny B @SleepyJen]

Shout out to the wonderful @WhalleyRangeTen and Kapoor Pharmacy Services for going above and beyond at the COVID 19 vaccination centre today. I won't name names but you all know who you are 👍👍👍

[🖤⚫ Jenny B @SleepyJen]

@quasimado Post Viral Fatigue the precursor to M.E, this is not a new illness. Millions of us have been living with this for years. Please revise your article to acknowledge this, thank you.

[Whitney Dafoe @DafoeWhitney]

@quasimado Please edit your article and at least mention that the symptoms Covid Long-Haulers are facing are identical to the symptoms of ME/CFS. Research on the two needs to be combined or both patient populations will suffer more.

[🖤⚫ Jenny B @SleepyJen]

@DafoeWhitney Thank your Dad from me xxx

[🖤⚫ Jenny B @SleepyJen]

@queer_potato

[🖤⚫ Jenny B @SleepyJen]

Please Retweet ❤️🌍

[🖤⚫ Jenny B @SleepyJen]

Please Retweet ❤️🌍

[🖤⚫ Jenny B @SleepyJen]

#BBC
#TVLicence
#Racism
#Justice
#Truth
#Equality

21st June please help your fellow human make a statement cancel your TV licence let the world's largest media outlet feel our pain MONEY TALK'S let's silence' the poison

Sharing for a friend 🌍

[🖤⚫ Jenny B @SleepyJen]

#BBC
#TVLicence
#Racism
#Justice
#Truth
#Equality

21st June please help your fellow human make a statement cancel your TV licence let the world's largest media outlet feel our pain MONEY TALK'S let's silence' the poison

Sharing for a friend 🌍

[🖤⚫ Jenny B @SleepyJen]

@queer_potato Thank you 💖 xxx

[🖤⚫ Jenny B @SleepyJen]

Flaring way above my usual today... Everyday is hard, but when you surpass your usual threshold, it's a super fresh level of indeterminate hell #MyalgicEncephalomyelitis

[🖤⚫ Jenny B @SleepyJen]

#philanthropy #JustGiving #MyalgicEncephalomyelitis #EDS please, donate if you can, please Retweet xxx

[Jennifer Brea🦒 @jenbrea]

Liz has #MyalgicE and #hEDS. Her life is at risk because doctors minimized her illness, said it was psychosomatic. Now, she weighs 63 lbs. The good news is, she finally found the care she needs, but she needs your help to fund it. Thank you for saving Liz! https://t.co/3fXkDRX0VN

[🖤⚫ Jenny B @SleepyJen]

@Shraddh63358506 Thank you so much ❤️ I will pass on your details to the team XXX sending love to you xxx

[🖤⚫ Jenny B @SleepyJen]

You can do something wonderful 💗
Please, help save the life of my friend
She needs funds to pay for the life saving treatment she has been waiting so long for
Please donate if you can
Please Share
I want my dear friend to live
www.gofundme/f/Save-Liz

#meawarenesshour