SmithSolve

We're healthcare communications experts. We help you understand, engage & earn trust. Want to tell your story, show your value & inspire action? We'll deliver.

[SmithSolve @SmithSolve]

Happy birthday! This year, SmithSolve celebrates 2️⃣0️⃣ years!

We’re grateful to our team, clients, and patient communities for working side-by-side to improve the lives of people with rare diseases through advocacy and communications.

[SmithSolve @SmithSolve]

Learn how one rare disease community works to understand and address mental health challenges in this CheckRare podcast with Dr. Al Freedman, rare disease psychologist and rare dad. Listen here: https://t.co/qaZLQTQqWU

#PatientAdvocacy #RareDisease

[SmithSolve @SmithSolve]

Research shows that mental health challenges are anything but rare within the rare disease community.

According to @rarepatientvoic, 82% of patients & caregivers experience frequent emotional distress, but access to mental health support continues to fall short.

[SmithSolve @SmithSolve]

This #MentalHealthAwarenessMonth, we’re recognizing the distinct pressures patients & caregivers face, reinforcing that better mental health = better outcomes. ❤️🫶📈

[SmithSolve @SmithSolve]

That’s why clinical trial communications need to be relevant and credible. Learn how we help our partners earn trust and rethink communications through a patient-inclusive lens: https://t.co/L36VGgraKw.

#PatientAdvocacy #ClinicalTrials #RareDisease #PatientEngagement

[SmithSolve @SmithSolve]

𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬 𝐝𝐨𝐧’𝐭 𝐣𝐨𝐢𝐧 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐭𝐫𝐢𝐚𝐥𝐬 𝐭𝐨 𝐛𝐞 “𝐬𝐮𝐛𝐣𝐞𝐜𝐭𝐬.” 𝐓𝐡𝐞𝐲 𝐣𝐨𝐢𝐧 𝐟𝐨𝐫 𝐚 𝐩𝐮𝐫𝐩𝐨𝐬𝐞:

To access innovative therapies
To help build a better future
To move science forward

That’s impact. That’s courage. That’s community.

[SmithSolve @SmithSolve]

The CISCRP’s Perceptions & Insights Study reinforces what rare disease families show us every day. Patients are more than participants. They are partners in progress.  They’re advocates and changemakers. Read the study: https://t.co/CXTl3SYHps

[SmithSolve @SmithSolve]

It has been a privilege to see this community evolve, organize, and lead intentionally. We honor every family, advocate, and partner advancing understanding and hope for people living with MPS & ML.

#PatientAdvocacy #RareDisease #MPSAwarenessDay #MPS #ML

[SmithSolve @SmithSolve]

Today, on International MPS Awareness Day, we’re proud to recognize the resilience and progress of the MPS & ML community. 💜

[SmithSolve @SmithSolve]

For more than a decade, we’ve worked alongside people with MPS & ML, their families, advocates, and supporting organizations to advance drug development, design clinical trials, build awareness and disease education, elevate patient insights, and strengthen community capacity.

[SmithSolve @SmithSolve]

📹 Watch a short video of our team and partners reflecting on the journey at https://t.co/B9Grn9YBqd.

#SmithSolve20 #PatientAdvocacy

[SmithSolve @SmithSolve]

20 years ago today, SmithSolve began with a bold goal: to elevate voices across the #RareDisease community.

A lot has changed since then. We’ve grown our team, expanded our capabilities, and deepened our impact. But what’s mattered most from the start are the relationships.

[SmithSolve @SmithSolve]

🔹 “You’re credible because you’re involved. You show up at industry and community forums.”
🔹 “The work you put in makes a difference in the lives of these families.”

We’re proud of the progress we’ve made together – and even more energized for what’s ahead. 🎉

[SmithSolve @SmithSolve]

... which is why we’re working every day to challenge conventional approaches when it comes to connecting patient communities, advocacy groups, industry, policy- and decision-makers, and other stakeholders.

#DisabilityPolicy #DisabilityAdvocacy #RareDisease #RareDiseaseDay

[SmithSolve @SmithSolve]

“I live inside the systems I’m working to change.”

Our team recently heard from Lilly Grossman, founder and CEO of Beyond The Box Advocacy, who was kind enough to share her insights and experience working in disability policy and advocacy.

[SmithSolve @SmithSolve]

Lilly explained her work challenging systems that limit people with disabilities from fully succeeding, connecting dots between policy research and direct advocacy. These challenges are all too common for people with disabilities, rare disease, and other devastating conditions...

[SmithSolve @SmithSolve]

Learn more about our work, our commitment to patients and communities, and the insights and experience of our first 20 years at https://t.co/B9Grn9YBqd.

#SmithSolve20

[SmithSolve @SmithSolve]

2026 marks SmithSolve’s 20th anniversary, and is the perfect opportunity to recognize the lasting relationships we’ve built with clients, partners, and friends across dozens of patient communities.

[SmithSolve @SmithSolve]

Most importantly, we’re working to fulfill our ultimate mission and measure of success: improving the lives of patients and their families.