Cardiomyopathy can run in families, sometimes across generations 👨👩👧👦.
If heart problems run in your family, it’s worth asking why. Understanding your heart history could help you take action earlier 🎯.
Talk to your family. 🩺 Speak to your doctor.
Think Cardiomyopathy. Know Your Heart History.
June is Cardiomyopathy Awareness Month ❤️, led by the Cardiomyopathy Patient Network at @GlobalHeartHub — the international alliance of heart patient organisations. 🌐 Learn more: https://t.co/6WsJagkREY
#Cardiomyopathy #ThinkCardiomyopathy #HeartHistory
This really worries me
A month ago in Wales I suffered a ruptured aneurysm in my abdomen. I lost over 2 units of blood
But the Welsh ambulance service refused to send an ambulance. I was still breathing so apparently didn't need one
I spent 7 hours lying on the ground in a car park. Every time I moved I threw up from the pain. The owners of the car park called 999 6x
One of the people there was a fireman. He couldn't believe that 999 treated each call as a separate incident and couldn't see the details or link to previous calls. He was frustrated because they could see I was seriously ill but you can't see internal bleeding and so there was no way to persuade 999 that it actually was an emergency
Eventually my husband arrived by taxi, journey of more than 3 hours from our home
He gave me my pain meds (the car park people were worried about liability and I was too ill to get them myself). This meant I was able to crawl into the car and he drove me to A&E
He got me into a wheelchair. We waited 75 minutes to see a doctor. I was shivering, heaped with blankets and threw up all over the floor
As soon as a doctor looked at me I was taken straight to resus. The next day I was transfered by blue light ambulance to another hospital, had a blood transfusion and spent 5 days on the high dependency unit
If my husband hadn't been able to come and look after me I have no idea how I would have survived. As it was I nearly didn't
I would not have been able to get myself to hospital nor would I have been able to log into some digital triage system
This scheme seems to assume if you're seriously ill you'll arrive by ambulance and if not you're well enough to navigate a digital portal
My experience suggests that's a dangerous assumption
A week later, back home in England I had another ruptured aneurysm. This time an ambulance came in 2 hours and again I was taken straight to resus
It wasn't the same because I had a recent diagnosis of a ruptured aneurysm so we could tell 999 I was almost certainly bleeding internally. But I was too ill to get myself down the stairs and out to the car. We still needed that ambulance and I still wouldn't have been able to fiddle around with an ipad
Proper triage REQUIRES an actual doctor to look at the patient. It takes a matter of minutes to differentiate between a life threatening emergency and not a life threatening emergency. That's not minutes to get a diagnosis but to know that the person is stable or not stable and if not that needs immediate attention
Seriously ill people can't do it themselves. It doesn't matter how smart or articulate they are normally. Or how tough. Expecting people to manage their own emergency care isn't what a modern health service should do
https://t.co/RMi7L44fUy
You voted against scrapping zero hour contracts.
You voted against banning fire and rehire.
You voted against day one sick pay for workers.
You said the minimum wage was too high for young people.
Reform politicians openly say they don't like trade unions.
You will always put the interests of your offshore crypto billionaire donors ahead of workers.
90% of countries in the world can own their water but not us. People in England want their water back. But the government is protecting private water profiteers.
It’s time to give the public a say. @Feargal_Sharkey wants you stand up and be counted. Sign the petition: https://t.co/NdwoKq7k3o
Can any of you lovely people who are in the Cornwall area please look out for this little dog. My friends are on holiday and he's run off
Please retweet and see if we can get him home
"Picturesque river polluted with sewage just 13 days after being given official bathing status."
Yep the River Avon at Salisbury was designated as a bathing spot on 15th May and just 13 days later on the 28th the EA have to issue a pollution warning due to E. coli levels. What a shambles.
https://t.co/nC3WWbwgt6
Did you know that the first women to land on the Normandy beachhead in June 1944 were nurses of Queen Alexandra’s Imperial Nursing Service?
Their task was to establish a field hospital for 600 wounded soldiers.
They succeeded.
Please remember these heroines who saved lives:
"Welsh Water faces £44.7m 'enforcement package' for sewage failings."
The most abhorrent part in all of all of this is that Ofwat has just admitted that since 1994 when the sewage treatment regulations were introduced Welsh Water, like every other sewage company in the UK have been breaking the law.
That's 37 years of illegal activity, 37 years of incompetence, 37 years of failure, 37 years of the gross, violent, decimation of our rivers and beaches.
Where's the justice for them, where's the justice for bill players, where's the accountability, why aren't Ofwat's board now being prosecuted for misconduct in public office?
https://t.co/gn0tyg66Ti
#JoininJune4CDH is an awareness campaign set up in 2010 to educate on Congenital Diaphragmatic Hernia (CDH) and to encourage funding for Research.
Each year we choose a different theme or topic to focus on. This year’s theme is individualised care; why it matters and how it can help with transition of care.
The basis of any care plan should be evidence. As far as possible the plan should be standardised, to serve as a bench mark for care and outcomes, BUT as we know with CDH there is no clear phenotype or guaranteed set of co morbidities and so standardising care becomes challenging. Therefore, it is important to look at whole person care and that involves a tailored approach. This plan is commonly referred to as an individualised care plan (ICP). With many years of experience is supporting families, it is our opinion that a robust ICP is a key factor in transitioning children to adult services. It gives both the patient and carer a clear ‘map’ of a person’s health, social and personal needs. This can give a patient a sense of autonomy and ability to cope when issues arise later in life. #cdhawareness
This & other issues could be resolved with a New GP contract that puts patients first rather than 255 pages of tick boxes
An annual birthday month review guaranteed for every patient
An agreed individual plan for the year ahead
ONE ✅
https://t.co/9CMv0zDeLk
The failure of this Government is seen here in it’s entirety
Work to reform the NHS needed - sack those that can help you get it done
Wes Streeting’s plan for reform will be a disaster
Sack the managers, ostracise the Resident Drs, handcuff the GPs, let private sector profit
Single Patient Record is it needed?
Or actually do we really need a more detailed Summary Care Record which is already available?
There are some advantages but also many disadvantages, most people don’t need access to all your GP records
Either way NO to Palantir in either
I’m an OA psych ST5. If one of these medical educators would like to explain to me why I need a medical degree, foundation training, CT and membership exams to “run” a memory clinic (with supervision if req), but a PA with no relevant psych experience can have a go - I’m all ears
Doctors want to work. The NHS and patients need doctors.
Yet potentially thousands of doctors could face unemployment in August while NHS speciality training jobs remain capped by the Government.
This NHS crisis is a political choice. Patients and staff deserve better.
The River Wye has just made UK history.
For the first time, an entire river catchment has been formally recognised as a living ecosystem with rights - including the right to flow, thrive, regenerate, and be free from pollution.
It's a major victory for nature.
A fully qualified FY1 doctor earns £19.27/hr after 5-6 years of medical school and over £100,000 of student debt.
We are asking to reach £23.41/hr over time.
That is fair, reasonable and long overdue for highly qualified professionals.
Doctors deserve to be valued properly.
Oh here we go again. @YorkshireWater claiming they are "INVESTING" £8.3 billion between 2025 - 2030.
That of course turns out to be completely untrue.
The only money I can see that shareholders are putting into the business is paying back the "loan" they took, by March 2027 and the £100 million they were supposed to pay to help reduce sewage dumping by the end of March 2025.
Every other damned penny of that £8.3 billion, that's £8.2 billion is being funded directly out of bill payers' pockets and not a damned thing to do with shareholders.
Why are water companies allowed to tell such utter lies?
Ofwat?
NOT THE NHS AGAIN! Magic or is it?
Tony Blair in the news is a reminder that the Blair Govt were responsible for PFI, with hospitals, schools left with huge payments for years. 70% more costly than Govt borrowing!
PFI & PPP (Public-Private Partnerships)
https://t.co/UUA63RlQgA