Srishti fight SMA

Please save our only child, Srishti Rani from a rare & deadly disease, Spinal Muscular Atrophy (SMA) Type 1. need Zolgensma (16 Crores) earliest.
Please help

[Srishti fight SMA @SrishtiFightSma]

आप हमारी बच्ची सृष्टि रानी को Spinal Muscular Atrophy (SMA) Type 1 से जरूर बचा सकते हैं। कृपया मदद करें।🙏

https://t.co/lTH7g3g4WH

news:
https://t.co/f5vAkjYTt3

Help!

[SECL @secl_cil]

Safer Internet Day - Stay Smart, Stay Safe! Follow these tips to protect yourself online.

@kishanreddybjp
@satishdubeyy
@CoalMinistry
@CoalIndiaHQ

#teamsecl #coalindia #saferinternetday

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 29: #Zolgensma offers hope to those with #SMA, but it's crucial to remember: even if treated, individuals can still carry the SMA gene and pass it to their children. Genetic counseling to ensure screening is essential. Knowledge empowers! 💙 #SMA #Zolgensma #GeneticHealth #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 30: 🔍 Curious about Risdiplam? We've gathered and answered some frequently asked questions about this drug to help you understand it better. Stay informed and empowered! 💡 #RisdiplamExplained #MedicalFAQs
#BattleAgainstSMA
#SMAawareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAjourney with #Evrysdi #Risdiplam :
🌟 Amazing progress for Visrutha, a 5.5-year-old from Tamil Nadu, thanks to Risdiplam! She's regained her crawling ability and is on a positive journey of improvement. Let's support and encourage this brave young princess. 🙌
#SMAawareness
#BattleAgainstSMA #RisdiplamSuccess #LittleWarrior
@Roche @rocheindia @mkstalin

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 31: Today's factsheet delves into the promising future of #SMA treatment with approved drugs and a robust pipeline of potential therapies. Discover the evolving therapeutic strategies and the potential of combination therapies. Let's envision a brighter tomorrow together!
#SMAawareness
#BattleAgainstSMA
#FutureIsBright

[Ajey Nagar @CarryMinati]

It's really sad to hear about the Odisha train accident, Doing a charity stream at 9 pm today. Please come & support with whatever amount is possible from your side doesn't matter small or big every contribution counts.

Livestream link: https://t.co/Y4mU3rZ9YX

[Alpana Sharma @alpanaS16]

Patient & parent @curesmaindia r livin d worst nightmare We hv been requestin 4 Govt intervention but r loosin precious live despite an approved therapy being available but not accessible. @SanjayAzadSln 🙏🏻 4 agreein to take our plea to @narendramodi @PMOIndia #BattleAgainstSMA

[Alpana Sharma @alpanaS16]

Thanks @news24tvchannel @sandeep_news24 V @curesmaindia lost more than30 life in last 6 month while waitin 4 d Govt support, lifesaving medicine #Risdiplam #zolgensma can save lives. we helpless parent hav to watch our child dyin slow death in front of our eye #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Thank you @News24 for being the voice for our cause #BattleAgainstSMA 🙏
Dear @PMOIndia @nsitharaman
@AyushmanNHA
@MoHFW_INDIA requesting you to wave off GST from #Evrysdi, DCGI approved drug for patients of all ages. #Zolgensma #Evrysdi can save lives!
https://t.co/1wGVKN12ew

[Moumita_SMA_Mom @MoumitaG_17]

Thank you @INOXSupport for reaching out and looking forward to accessible theatre in future South City INOX kolkata

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many Congratulations @aiimsjodh_rare @drkuldeep @dr_didel @aiims_jodhpur for being approved as the CoE in Rajasthan 👏👏👏. This was much awaited n long due. We look forward 2 working with u 4 d betterment of #SpinalMuscularAtrophy #RareDisease community.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji @narendramodi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#NovartisSupportCureSMAIndia
Heartfelt gratitude 2 @DubeAmitabh @saumil_mody @iyervaishali @aditiroybasu @NovartisIndia 4 meeting 2day with @curesmaindia @alpanaS16 2 understand patient's journey in #BattleAgainstSMA. Looking frd 2 working 2gether 4 Indian SMA community 🙏

[Jennie Berry @WheelieGoodLife]

SHOCKED AND DISGUSTED WITH ALBASTAR AIRLINES - told me I should wear a nappy on board as I’m disabled and they don’t have an aisle chair. This is what I had to resort to. Please share - This isn’t acceptable!!! #disabled #wheelchair #AlbastarAirlines

[Jennie Berry @WheelieGoodLife]

Please sign my petition for aisle chairs to be made mandatory on all U.K. flights. Let’s start here and then tackle the rest. Your support is really appreciated and I can’t thank you all enough ❤️ https://t.co/1U9DXEXrR5

[Dipanshu Kabra @ipskabra]

सबसे मुश्किल घड़ी में खुद को भुलाकर साथ निभाना ही सच्ची दोस्ती है...

भूकंप आते ही सभी बच्चे सुरक्षित स्थान की ओर भागे. सिर्फ एक बच्चा ने घायल मित्र की मदद की. घटना CCTV में रिकॉर्ड हो गयी.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 26: Today's #factsheet is about the drugs targeting muscle function improvement. There are many potential drugs on clinical trials currently. These drugs in combination with drugs acting on SMN gene may yield better treatment outcomes in all #SMA patients!

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 16: Today's factsheet is on the nutrition and gastrointestinal concerns - the risk factors & common issues. Swallowing difficulty, constipation, acid reflux are some of the common problems faced by #SMAwarriors .
#BattleAgainstSMA
#SMAckSMA