Stargardt's Connected

Raising awareness, Giving support, Seeking a cure #Stargardts | Please capitalise each word in hashtags and use image descriptions #Accessible #Inclusive

[Stargardt's Connected @StargardtsC]

Today on @rarediseaseday our CE @bhavna_tailor, has received today's @10DowningStreet @RishiSunak's Point Of Light award, recognising her outstanding work to help build a community for all those affected by #Stargardt disease. We are so proud of you! 🎉 👏 https://t.co/EDPdz8rQAB

[Stargardt's Connected @StargardtsC]

@chimelrule If you register, you will automatically get the zoom link.

[Stargardt's Connected @StargardtsC]

One day to go before our #Stargardt Day. https://t.co/wxfGb1WKgw

[Stargardt's Connected @StargardtsC]

Bhavna Tailor is fundraising for Stargardt's Connected. Please support us so we can continue to raise awareness, support our community and seek a cure for #Stargardt https://t.co/PEGYTivKP0

[Stargardt's Connected @StargardtsC]

join the @StargardtsC zoom on Saturday, 3 February at 14.00 GMT (UK Time); 9.00 EST; 22.00 AWST to hear from #EmmyAward winning actress Ellen Gould who has Stargardt and is releasing a film about people with #Stargardt https://t.co/WB9QU6dJE1

[Stargardt's Connected @StargardtsC]

Thanks @NSTherapeutics for your STARLIGHT trial for #Stargardt

[Nanoscope Therapeutics @NSTherapeutics]

Thank you @ModernRetina and Dr. Allen Ho for sharing results from our STARLIGHT trial of MCO-010 for #Stargardtdisease #retina #ophthalmology Visit https://t.co/P8JMhPyfTA for more info

[Stargardt's Connected @StargardtsC]

Always so good to hear about novel treatments such as the MCO-010 for #Stargardt.

[Modern Retina @ModernRetina]

MCO-010 is a novel adeno-associated virus (AAV2)-delivered optogenetic gene therapy for treatment of severe vision loss in patients with Stargardt disease.

Read more: https://t.co/XVYezV7Gre

[Stargardt's Connected @StargardtsC]

Our fundraising calendar is back! You can now order the 2024 calendar featuring photos of animals — all taken by people who have Stargardt’s Disease. All proceeds go directly to raising awareness, providing support and seeking a cure.

https://t.co/MunCK4Qo3t

[Stargardt's Connected @StargardtsC]

Thank you @Eyesonresearch for highlighting the role of support to people with #EyeConditions and inviting our fabulous CEO and founder of @StargardtsC to talk about #Stargardts on your podcast

[Eyes On Research @Eyesonresearch]

Have you heard of family support groups? These are instrumental in providing guidance to families affected with diseases, particularly rare disorders.
Listen below to the CEO of the mighty @StargardtsC! Special episode now live!

https://t.co/NnJS20o8X2
#Science #podcast

[Stargardt's Connected @StargardtsC]

Our very own Bhavna Tailor, founder of @StargardtsC talks about #Stargardt on the @Eyesonresearch podcast: Unsung Heroes: Charities and Family Support Groups https://t.co/R2XHVZIYRt

[Stargardt's Connected @StargardtsC]

There is still time to enter your photo into the 2024 stargardt calendar competition. A great way to raise money for #Stargardts, show off your animal photography skills and have your photo in a calendar all over the world!
https://t.co/896FB2BAcp

[Stargardt's Connected @StargardtsC]

Register and join the Stargardt's Connected zoom on Saturday 9 September at 12 pm BST. ReVision Therapeutics will be attending to talk about their pre-clinical trials as they work towards developing a treatment fort #Stargardts
https://t.co/d4xJ9ZbPPx

[Stargardt's Connected @StargardtsC]

Don't forget to enter our 2024 #Stargardt #Calendar #Competition. Were would love to see #photos from around the world. Entries Inn by 31 August. https://t.co/896FB2BAcp

[Stargardt's Connected @StargardtsC]

Exciting #familyday #FamilyFun being held jointly between #VICTA @VICTAUK and Stargardts Connected for 8-17 year olds #visualImpairment and their families on 23 September. https://t.co/Ub1QRrNbET

[Stargardt's Connected @StargardtsC]

https://t.co/PBl7hbYmAM

[ミエルのミライ @GoTak96843541]

AAOから下記がリリースされました🇺🇸
↓
眼底自家蛍光はシュタルガルト病の予後価値を示す
Fundus autofluorescence shows prognostic value for Stargardt disease
https://t.co/8HcMGjy3ov
#眼科

[Leentje Knoes @omaleentje]

Vreselijk verdrietig. Dit is een student van mijn dochter . Lotte (21) heeft de ziekte van Stargardt en wordt blind: ‘Het medicijn komt misschien net te laat voor mij’ - https://t.co/f9S60DTILQ

[Stargardt's Connected @StargardtsC]

Such exciting times for our #Stargardt community and thank you @belite_bio for your work on #Tinlarebant. Waiting in excitement for the next phase of trials.

[Belite Bio @belite_bio]

💡Did you know? Tinlarebant has been granted Fast Track Designation and Rare Pediatric Disease Designation in the U.S., and Orphan Drug Designation in both the U.S. and Europe for STGD1. #BeliteBio #FastTrack #STGD1 #Tinlarebant

[Stargardt's Connected @StargardtsC]

Mel Tollman is #fundraising for ⁦@StargardtsC⁩ by undertaking a #SprintTriathlon on July 6. Read his story and please donate. huge thank you to #TeamTollman and we wish them all the very best. #YouCanAchieveAnything #Winners #BraveAndDedicated https://t.co/JQN6LWgVKP

[Stargardt's Connected @StargardtsC]

@StargardtsC Calendar Photo Competition is Back! This time the theme is ANIMALS! Information at:
https://t.co/896FB2BAcp
•Submit entries by Thursday 31st August 2023.
Calendars will be sold on our website with all proceeds going to Stargardt’s Connected.

[Stargardt's Connected @StargardtsC]

For any #Stargardt in or near #London UK, Come join us for our Annual Picnic in the Park on Saturday 5th August, 12-4 pm at the Parade Ground, #HydePark . Bring a picnic and meet others with #Stargardt. Details on our website https://t.co/nRucYNcLGl