Raising awareness, Giving support, Seeking a cure #Stargardts | Please capitalise each word in hashtags and use image descriptions #Accessible#Inclusive
Today on @rarediseaseday our CE @bhavna_tailor, has received today's @10DowningStreet@RishiSunak's Point Of Light award, recognising her outstanding work to help build a community for all those affected by #Stargardt disease. We are so proud of you! 🎉 👏 https://t.co/EDPdz8rQAB
Bhavna Tailor is fundraising for Stargardt's Connected. Please support us so we can continue to raise awareness, support our community and seek a cure for #Stargardt https://t.co/PEGYTivKP0
join the @StargardtsC zoom on Saturday, 3 February at 14.00 GMT (UK Time); 9.00 EST; 22.00 AWST to hear from #EmmyAward winning actress Ellen Gould who has Stargardt and is releasing a film about people with #Stargardt https://t.co/WB9QU6dJE1
MCO-010 is a novel adeno-associated virus (AAV2)-delivered optogenetic gene therapy for treatment of severe vision loss in patients with Stargardt disease.
Read more: https://t.co/XVYezV7Gre
Our fundraising calendar is back! You can now order the 2024 calendar featuring photos of animals — all taken by people who have Stargardt’s Disease. All proceeds go directly to raising awareness, providing support and seeking a cure.
https://t.co/MunCK4Qo3t
Have you heard of family support groups? These are instrumental in providing guidance to families affected with diseases, particularly rare disorders.
Listen below to the CEO of the mighty @StargardtsC! Special episode now live!
https://t.co/NnJS20o8X2
#Science#podcast
Our very own Bhavna Tailor, founder of @StargardtsC talks about #Stargardt on the @Eyesonresearch podcast: Unsung Heroes: Charities and Family Support Groups https://t.co/R2XHVZIYRt
There is still time to enter your photo into the 2024 stargardt calendar competition. A great way to raise money for #Stargardts, show off your animal photography skills and have your photo in a calendar all over the world!
https://t.co/896FB2BAcp
Register and join the Stargardt's Connected zoom on Saturday 9 September at 12 pm BST. ReVision Therapeutics will be attending to talk about their pre-clinical trials as they work towards developing a treatment fort #Stargardts
https://t.co/d4xJ9ZbPPx
Don't forget to enter our 2024 #Stargardt#Calendar#Competition. Were would love to see #photos from around the world. Entries Inn by 31 August. https://t.co/896FB2BAcp
Vreselijk verdrietig. Dit is een student van mijn dochter . Lotte (21) heeft de ziekte van Stargardt en wordt blind: ‘Het medicijn komt misschien net te laat voor mij’ - https://t.co/f9S60DTILQ
Such exciting times for our #Stargardt community and thank you @belite_bio for your work on #Tinlarebant. Waiting in excitement for the next phase of trials.
💡Did you know? Tinlarebant has been granted Fast Track Designation and Rare Pediatric Disease Designation in the U.S., and Orphan Drug Designation in both the U.S. and Europe for STGD1. #BeliteBio#FastTrack#STGD1#Tinlarebant
@StargardtsC Calendar Photo Competition is Back! This time the theme is ANIMALS! Information at:
https://t.co/896FB2BAcp
•Submit entries by Thursday 31st August 2023.
Calendars will be sold on our website with all proceeds going to Stargardt’s Connected.
For any #Stargardt in or near #London UK, Come join us for our Annual Picnic in the Park on Saturday 5th August, 12-4 pm at the Parade Ground, #HydePark . Bring a picnic and meet others with #Stargardt. Details on our website https://t.co/nRucYNcLGl