Steve Bell

Retired from MND Association

[Steve Bell @SteveBellMND]

@ClarenceHouse Should be pulling the Timmy Taylor’s though 🤔

[Katy Styles @WillowKaty]

Carer resilience? Seriously?

How much more resilient can #UnpaidCarers get?

We’ve been left to get on with it for a whole year. Quietly just getting on with our caring roles with next to no support, nor thought for a whole year.

This is gaslighting.

[Steve Bell @SteveBellMND]

@GeoffreyBoycott @statedartneil @BabyBoycs @jefferskendrick @grayscourtyork Great pic Sir Geoff. So many memories of you as a Keighley lad from 59, and Sheffield to this day from 77. Loads and loads of love to you and yours ❤️

[MND Association VIP & Events @mndVIPteam]

Good to see people enjoying the #ITV doc about @mndassoc Royal Patron #PrincessAnne 👑 HRH has been our Patron since 2008 - even longer for our friends at @MNDScotland - and in her 10th year alone she attended 7 events for us! #commitment

[Steve Bell @SteveBellMND]

Stop press from my last post 😀 just heard from @SYMNDA Chairman where the branch Committee met today. I have been offered a place on the Branch Management Committee today which I immediately accepted. First Branch Committee meeting next Wednesday. Cure and Care people. Good news

[MND Association @mndassoc]

In these difficult times, we can’t hold each other’s hands, but we can be there for each other.

Offer a hand of support and more to someone special this #GlobalMNDAwarenessDay on June 21. Who will you extend a hand to?

Visit 👋 https://t.co/jfYGC9i7Xi! #HandOf #CharityTuesday

[Steve Bell @SteveBellMND]

Really enjoying retirement after 18 years of paid work @mndassoc . However it doesn’t stop there - I have become a Member of the MND Association and am loving building my links and hopefully soon volunteering experience with the @SYMNDA branch. Until a cure, there is care

[MND Association @mndassoc]

The MND Association is saddened to hear today’s news that Ian Pratt has died.

Ian was a tireless MND awareness raiser and fundraiser, raising thousands, for his own @IanPrattMNDF and the MND Association.

Our thoughts are with his family and friends.

[MND Association VIP & Events @mndVIPteam]

Thank you @benshephard, @mndassoc patron @CharlotteHawkns and @DrHilaryJones for highlighting to @MattHancock on @GMB this morning how people with #MND “must definitely” be on the list of people who are ‘extremely vulnerable’ to #coronavirus
Pls help ➡️ https://t.co/S7djfsqWAw

[Sean White @seanwhite1977]

Training how to place NG tubes to enable us to introduce a community NG placement service for @SheffieldHosp during COVID 19 pandemic & beyond. Thanks to @LisaGreenDiet @CHFTNHS for allowing us to gate crash training provided by the brilliant nutrition nurse Jon. @Helenbeagan1

[Ammar Al-Chalabi @AmmarAlChalabi]

It looks like #COVIDー19 can affect the brain as well as the lungs. For example, 40% of people lose their sense of smell, some have seizures, and headache is common. Sign up to help us understand why. Takes just 20 - 30 minutes every two weeks https://t.co/tyWWyFMmhV
@rampstudy

[Nick Goldup @NickGoldup1]

Please find our latest animation advice for people living with MND at https://t.co/XeMkSX11Br @mndassoc @ALSMNDAlliance

[MND Association @mndassoc]

We are calling on the Government to define people with motor neurone disease as being extremely vulnerable as a matter of urgency.

For our latest advice on covid-19 for those with MND, please visit our website > https://t.co/jDQCzjHZKr.

[3/3] #MND #Coronavirus #COVID19

[MND Association @mndassoc]

The MND Association is extremely concerned to see that people with MND have not been included in the Government’s list of extremely vulnerable persons in their guidance on shielding and protecting vulnerable person’s from Covid-19.

[1/3] #MND #Coronavirus #COVID19

[Nick Goldup @NickGoldup1]

Please do take a look 👀 👍

[MND Association VIP & Events @mndVIPteam]

Looking forward to introducing @mndassoc volunteers & funders, people living with #MND and their families and fellow @Cumbrianeuro partners to our Royal Patron, HRH The Princess Royal, tomorrow alongside @sallylight17 and @SteveBellMND 👑

[ALS/MND Alliance @ALSMNDAlliance]

Dr Vicki Flood: Extra Virgin Olive Oil and Exercises were the focus of her analysis and this slide explains why that was chosen.

[Steve Bell @SteveBellMND]

It was an amazing walk. Privileged to have been a part of it 😀

[ALS/MND Alliance @ALSMNDAlliance]

Brilliant footage!!! #ALSMNDSYMP #ALSSymp #ALSMNDWithoutBorders

[Roisin Duffy @Roisinduffoc]

“Palliative care is not just about managing physical symptoms, a holistic approach is needed involving family, friends, neighbours and wider community services - it’s about adding life to days not just days to life” Luc Deliens (Belgium) #alsmndsymp @IMNDA

[Derik Steyn @Fred_Steyn]

What a great idea. @mndassoc would like people to donate their #walk2dfeet T-shirts to make a quilt. This will be raffled to support the #als fellows program. Hand shirts into rego desk if keen to contribute #ALSSymp #fundraising 🙌🙌🙌