StichtingBenthe

[StichtingBenthe @Stichtingbenthe]

https://t.co/y71m9fEZxF

[C. van der Vleuten @HecovanNijmegen]

VASCERN News Flash: Mobile App Launched; vind een behandelaar in heel Europa!

[StichtingBenthe @Stichtingbenthe]

En wij doen mee 😊 #GivingTuesdayNL #StichtingBenthe #zeldzameaandoening #lymphatischemalformatie #vaataandoeningen #nonprofit #bewustzijn #begrip #mooieprojecten

[Persberichten.com @ictberichten]

#GivingTuesdayNL komt eraan! https://t.co/XsqcrxFEeO #persbericht #GivingTuesdayNL via @geefgratis

[StichtingBenthe @Stichtingbenthe]

De Nederlandstalige versie van ons informatieboekje is af en binnenkort verkrijgbaar via onze website. De Engelstalige versie zal snel volgen.

#StichtingBenthe #lymfatischemalformatie #informatieboekje #bewustwording #medisch #goeddoel #nonprofit

https://t.co/RTVl6pA7bP

[StichtingBenthe @Stichtingbenthe]

Nieuwe blog; Schaduwbestaan nu via de website te lezen.
https://t.co/mIHUnAxgCZ
#LymfatischeMalformatie #blog #gezondheid #goeddoel #schaduwbestaan #StichtingBenthe #vaatmalformatie

[StichtingBenthe @Stichtingbenthe]

This Sunday we'll be doing the #MarathonofRotterdam. If you're at the #marathon and spot us in our #TeamBenthe #TeamBenthestic shirt; take a pic, let us know where you saw us and # us at social media #lymphaticmalformation #charity #Awareness #strongertogether #StichtingBenthe

[StichtingBenthe @Stichtingbenthe]

A.s. zondag doen we mee aan de #MarathonvanRotterdam. Zie je ons in ons #TeamBenthe #TeamBenthestic shirt? Neem een foto, laat ons weten waar we gespot zijn en tag ons op social media! #lymfatischemalformatie #goeddoel #nonprofit

[StichtingBenthe @Stichtingbenthe]

https://t.co/XvL8NDpUnx

[EURORDIS-Rare Diseases Europe @eurordis]

Are you interested in the latest developments in rare disease research? Register for The European Conference on Rare Diseases & Orphan Products 10 - 12 May to explore Rare Diseases 360°
Early bird rates until 15 March 2018 https://t.co/FSoTMEvp2P #ECRDVienna

[VBINY @VBINY]

Vascular lesions are classified into two main groups:
1. Vascular Tumors
2. Vascular Malformations

Learn more:... https://t.co/GLLVRZFaTA

[StichtingBenthe @Stichtingbenthe]

#RareDiseaseDay2018 #RareDiseaseDay #ShowYourRare #ShowYouCare https://t.co/owv5LzYCvk

[EURORDIS-Rare Diseases Europe @eurordis]

Tomorrow on @rarediseaseday 2018 we'll be at the @Europarl_EN in Brussels for the opening event of the Rare Lives photo exhibition! Watch out for more photos coming soon... https://t.co/ITZxBJnYCp

[StichtingBenthe @Stichtingbenthe]

Today is #RareDiseaseDay #ShowYourRare #ShowYouCare #lymphaticmalformation #raiseawarreness

[StichtingBenthe @Stichtingbenthe]

Sneak peek; our draft front page of the informative book on #lymphaticmalformation We're proud and pleased to work on this with @KRcommunicatie

[EURORDIS-Rare Diseases Europe @eurordis]

NEW! The official Rare Disease Day 2018 video is out now! Take a look and be inspired by rare disease patients and researchers to join this year’s campaign by painting your face to #ShowYourRare @rarediseaseday https://t.co/v9Opj3pwy4

[StichtingBenthe @Stichtingbenthe]

#RareDiseaseDay #February28 #research #raredisease #lymphaticmalformation #nonprofit #ShowYourRare #ShowYouCare #StichtingBenthe #charity

https://t.co/CJB3KVzotK

[StichtingBenthe @Stichtingbenthe]

Official Rare Disease Day video 2018! #RareDiseaseDay #lymphaticmalformation #awareness #StichtingBenthe
https://t.co/CJB3KVzotK

[StichtingBenthe @Stichtingbenthe]

On behalf of Benthe and her family we want to wish everyone a happy and loving Christmas. May 2018 be full of health, kindness, understanding and happiness. Thank you for your support, kind words and donations. Without your help we cannot reach our goal.

[StichtingBenthe @Stichtingbenthe]

Namens Benthe en haar familie willen wij, het bestuur van Stichting Benthe, iedereen hele fijne en liefdevolle kerstdagen en een gezond en voorspoedig 2018 toewensen. Bedankt voor alle steun, lieve woorden en donaties! Zonder uw hulp kunnen wij ons doel zeker niet bereiken.

[StichtingBenthe @Stichtingbenthe]

YESSS! The first #draft of our #informative #book about #lymphaticmalformations is finished! Now we can start looking for #funds to get it printed! And translate it in English, German and Spanish. #dreamscancometrue #StichtingBenthe #awareness

[StichtingBenthe @Stichtingbenthe]

Almost done writing the first #draft of our #informative #book on #lymphatic #malformations! #proud #awarreness #nonprofit #helpingothers #adreamabouttocometrue