STRONG AYA

An EU Horizon/Innovated UK funded project seeking to establish a COS to evaluate and improve care for adolescents and young adults (15-39) living with cancer

[STRONG AYA @strong_AYA]

👋 We're taking a pause from X.
This account remains, but we're moving our project updates and community to Bluesky.
📲Follow us on Bluesky at: https://t.co/K24A586YrV
See you there!

[STRONG AYA @strong_AYA]

As we wrap up Cervical Cancer Awareness Month we wanted to share some facts about cervical cancer screening in Europe with you. As one of the most common AYA cancers, screening is an integral part of early detection.

[STRONG AYA @strong_AYA]

January is Cervical Cancer Awareness Month, a common AYA cancer. HPV vaccinations and screening are crucial to prevention and early detection ( = better outcomes) but disparities exist across Europe.

STRONG AYA is committed to using data insights to address these disparities

[STRONG AYA @strong_AYA]

This festive season is the season of giving, so we'd like to highlight the gift of data by spotlighting the idea of data altruism, or the action by which people make their data available voluntarily and without reward for the benefit of all. Check it out our carousel for more

[STRONG AYA @strong_AYA]

@CancerEurope @KatieRizvi Finally, @LeedsHospitals @UniversityLeeds colleague Dan Stark gave an important orgal presentation on social integration, a great reminder that AYA care has to be holistic.

We hope you all have enjoyed the congress!

[STRONG AYA @strong_AYA]

STRONG AYA is down under at the 6th Annual Global AYA Cancer Congress🦘🇦🇺

PI @OlgaHusson presented on AYAs with an uncertain/poor prognosis and provided an update on the @EORTC_QLG AYA specific module development

[STRONG AYA @strong_AYA]

@CancerEurope cofounder and colleague @KatieRizvi gave a workshop on patient involvement and will be presenting on the integral role that lived experience and patient advocacy is playing in setting the EU research funding agenda tomorrow 🇪🇺

[STRONG AYA @strong_AYA]

PhD student @Janssen_Silvie presented orally on quality of life in the national 🇳🇱 cancer survivor SURVAYA study (the data of which will feed into STRONG AYA) and presented a poster on the lit review that was part of our core outcome set development 👏

[STRONG AYA @strong_AYA]

Here are some facts concerning young men's health and cancer:

[STRONG AYA @strong_AYA]

We at Strong AYA are passionate supporters of men's health initiatives, including cancer. ��️‍🩹

As part of our project, we pay special attention to the health of young men.👦🏼👨🏼

Not just in November, but all the time.

💡Want to know more? Scroll through the images below

[STRONG AYA @strong_AYA]

We were back in person in Maastricht for our annual hybrid meeting last week. Highlights include a young scholars session and having some of our Patient Advisory Board members in attendance - we wouldn't be successful without these two important groups! #HorizonHealth @EU_HaDEA

[European Cancer Organisation @EuropeanCancer]

‘Goedemiddag’ from Maastricht University in the Netherlands!

ECO’s @CouespelNorbert & Natalia Richardson @NataliaRichard3 are visiting our colleagues here for the @Strong_AYA annual general assembly.

The EU-funded project is entering its third year of research on #adolescents & # youngadults (AYAs) with #cancer. A fitting moment to take stock and look ahead! 

Learn more

https://t.co/88WHF8O0Vx

[STRONG AYA @strong_AYA]

🗓️Today, we celebrate #WorldCancerResearchDay

🔬Innovation in #CancerResearch drives progress towards health equity! All 15- to 39-year-olds in Europe deserve the best cancer care possible
👉https://t.co/hvz8KOKNGt

#AYAcancer #Oncology @Winette_vdGraaf @innovateuk

[European Cancer Organisation @EuropeanCancer]

🎗️ Did you know September is #ChildhoodCancerAwarenessMonth?

Children with cancer have their own age-specific needs and issues. Adolescents (15 to 18 years of age) are a part of this group, and face particular needs and challenges as they navigate the transition into adulthood with a cancer diagnosis. These must be addressed for #CancerCare across Europe.

The EU-funded project Strong AYA is now creating a European network to improve healthcare services, research, and outcomes for young people with cancer aged 15 to 39 years.

Learn more
👉 https://t.co/0p9e8qrUPr

#ChildhoodCancer #AYAhealth #LivingWithCancer #LifeAfterCancer

[STRONG AYA @strong_AYA]

Adolescents and young adults (AYAs) need access to age-adjusted, high quality healthcare.

📄 A new report by @europeancancerorg for the @strong_AYA project describes how. Discover key insights on targeting #CancerCare to this unique population

https://t.co/wmRn0JVPHy

[STRONG AYA @strong_AYA]

Today is #WorldHealthDay2024 with the theme of #MyHealthMyRight. Healthcare is a universal right. Not all AYAs with cancer have access to consistent, age-specific, quality healthcare. STRONG AYA is hoping to change that with cutting-edge technology and data-driven insight.

[European Cancer Organisation @EuropeanCancer]

Cancer screening plays a pivotal role in the #EarlyDetection of cancers. ECO strives to reduce #CancerScreening inequalities across Europe and ensure women benefit from equal access to cancer care. Read more about ECO’s initiatives that #InspireInclusion👉https://t.co/AjhaXfQ8Ed

[STRONG AYA @strong_AYA]

Today is HPV Awareness Day. This common infection accounts for 4.5% of cancers worldwide, and, crucially, nearly all cases of cervical cancer, one of the most common cancers affecting AYAs.

Learn more about HPV in Europe via @EuropeanCancer's report: https://t.co/SMc0sC7IYP.

[European Cancer Organisation @EuropeanCancer]

📑ECO is pleased to present the European Cancer Summit 2023 Report – a summary of key takeaways from leading oncology professionals and patient advocates on how to #Accelerate progress in #CancerCare. 🩺 Discover the full report covering all 12 sessions 👉 https://t.co/hfwGUaE5Ns

[STRONG AYA @strong_AYA]

'Every adolescent with cancer deserves the best possible care, regardless of circumstance.'

A strong message for #ICCD2024, and a key driver of the STRONG-AYA project that also aims to improve cancer care for young adults

➡️ https://t.co/qdxLeqBR3z

#ChildhoodCancerAwareness